Thursday, 21 April 2016

Word of the Week - Eyes

This week I had to take the Little Man to see an orthoptist and an optometrist at the paediatric eye clinic. He'd been given an eye test at school and it had shown that he was weak in one eye, so he was sent to the clinic.

They gave him another eye test and again it showed him weak in one eye...but the other eye! After all the tests were done it was shown that he didn't have a problem but there might be one starting, so they are going to monitor him for a while, with a further appointment in 3 months time.

I'm not sure what's going on with my Little Man, first it's hearing tests, then eye tests. Is he being mischievous or is there a problem? My concern with his eyes is that he could have Elhers Danlos Syndrome like Star. We already know he has hyper mobile joints, in fact he and Boo are both more bendy than Star and score higher on the beighton chart. They both have experienced joint pain at times too, but the difference with Star is that she has had joint pain since birth. Elhers Danlos Syndrome affects the connective tissues by the over production of collagen, and the eyes are 80% collagen. Another similarity is that both Star and the Little Man suffer from photophobia, which is not a fear of photos (which is how I feel when I see one of myself) but a sensitivity to bright lights or sunlight.

Star was referred to a geneticist because of her problems and although it was agreed that she does have Elhers Danlos Syndrome, it was concluded that it may not be type 3, which is what we originally suspected. There are several types of EDS but she doesn't fit neatly into any of them yet, that doesn't mean that other symptoms could arise later. It's worrying but it's also good that she is being looked after properly now.

So, Star is also being sent to have her eyes checked out at the hospital. Apart from the photophobia she doesn't really seem to have a problem with her eyes,apart from an other sign of EDS, blue sclera which means the whites of her eyes are actually blue. When the appointment came through for her at the hospital it was the week she is supposed to be doing her SATS at school so  I managed to re-arrange the appointment for the week after.

Finally, just so that Boo gets a look in on this post, she got shampoo in her eye during her shower this evening and screamed so loud it's a wonder the neighbours didn't call the police!

This weeks word of the week just has to be eyes!

The Little Man posing at the clinic after the eye drops which made his pupils enlarge.


The Reading Residence

6 comments:

  1. Oh yes, definitely the word for you. So many appointments. It's good that they've spotted something early on with Little Man so that they can monitor it, so here's hoping nothing more comes of it. I hope Star's appointment goes well, too. And poor Boo! My Boo hates shampoo in her eyes, too! Thanks for sharing with #WotW x

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  2. Oh gosh! My friends and I were only talking about Elhers Danlos Syndrome this morning. I knew I had heard of it before but couldn't remember where! It must have been from you. My friends sister has it and is having a rough time at the moment.
    What a week for you! I hope the appointments go well x

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  3. sorry to hear of potential eye problems but as you say it is far better they are keeping an eye on it (no pun intended) from now. Miss T needs regular checks at orthoptist and optometrist too because JIA can be linked to uveitis which she did in fact have this time last year so it was a releif when we got to see the eye doctor to get it treated. x

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  4. Oh I am sooo sensitive when it comes to my eyes too. I always have to have a towel nearby when Shampoo and Conditioner are involved.

    As for the medical condition it sounds like you know a great deal so they are in good hands whatever the outcome. #WotW

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  5. Perfect word of the week for you. It must be hard going thru all of those appointments but as you said, at least its been flagged & spotted so that the problem can be helped.
    #WoTW xx

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  6. That does sound an eyeful of a week - hope it all works out ok #wotw

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