A few weeks ago my word of the week was Procrastination. There was a number of little jobs that I wanted to do but just didn't get around to doing.
Well this week I managed to do some.
And it's totally wiped me.
On Monday, the kids were off school as it was bank holiday. I chose this day to sort out the Little Man's bedroom. I went in there with good intentions and the kids were going to help. I turfed the kids out after ten minutes as they were only making things worse. I gave it my all, but was so frustrated at my limitation. I can't bend, I can't pick things up off the floor. I was emptying boxes on the bed and sorting them out while sitting down, and still it was totally exhausting. From 6pm I could do nothing but lie on the settee, by 9pm I was ready for bed. I was hit by fatigue like I've never known before, I was completely drained.
Tuesday they were back at school so I took things easy. I needed to, I was still exhausted.
On Wednesday I had to go into the city centre for a meeting. My other half took me and I was in my wheelchair the whole time. We were out for around three hours total. I was exhausted. My poor OH had been the one pushing me around, he'd done all the work but the whole experience of going out had totally wiped me, again.
Thursday the kids were off school again because their school is a polling station. I decided to tackle my kitchen drawers. I'd learnt my lesson and for every fifteen minutes of work I rested for five minutes. It seemed to be working, so after doing the drawers I tackled the downstairs bathroom. Again I needed to rest afterwards, I didn't want to, I'd got the cleaning bug, but I forced myself by picking up my colouring book for a while. Then I made lunch for the kids and afterwards we went to the polling station to vote.
That was it, I was exhausted again.
I was helping my OH to cook dinner but couldn't do much more than give instructions from my perching stool.
I have to go out again today, Friday. I have to go for my physio at the hospital. I'm not sure I have the energy for it, I guess I'll be resting all afternoon. I've a meeting at the school at 3pm
and I'm already exhausted thinking about my day.
One of the hardest things about this condition is the fatigue. I'm not used to being wiped out so quickly. Yes, as a chronic pain sufferer for many years I am used to fatigue and how doing to much can wipe me out, but seriously, with this I hardly have to do anything at all and I'm done for.
So my word for this week just has to be fatigue.