Thursday, 8 June 2017

Immunoglobulin - My Word of the Week

I could have had a few words for this week, the most obvious one would have been hospital. I've been receiving treatment every day in hospital this week and on Wednesday we had to take The Little Man to A&E. He fell over when leaving school and was fine for about an hour, then he was complaining of headache and became drowsy so we couldn't keep him awake. Then he started being sick so Dad took him straight to A&E where he was checked out. Luckily he was fine, although it ended up being a late night with them not getting home until 11.30p.m.

Of course I could have chosen Election as my word, by the time this is published we will know the results, but for now I can only hope that the party I voted for will win. It has been a very heated election though, particularly with all the media, I remember as a child that people were a lot more private about their political opinions.

The word I have chosen, however, is Immunoglobulin. This is what I have been having by intravenous infusion at the hospital every day. Immunoglobulin is part of your blood's plasma which is full of anti bodies. When someone gives blood the plasma is extracted to give to people with auto-immune conditions, like me. 

Having talked to other people with my condition who have had Immunoglobulin intravenously (IVIG) I have heard many different results. The best being that it has made a big improvement after the first dose, the worst being that it not only worked but made them very ill with sepsis meningitis. The average being that it works after a couple of months although it's not that noticeable until the next dose is due and you realise how dependent you are. It's all a little uncertain.

So far it has made me feel quite ill, starting with massive headaches and evolving into nausea and exhaustion. Maybe once my body gets used to it then I will feel the benefits. I live in hope. If there is no improvement at all then I will have it taken away as it's an expensive treatment. If there is, some improvement then hopefully I will get to keep it as it will prolong my life if not make me better. 

I am in hospital today having my fifth treatment today. I am hoping that I will still see some improvement, keep your fingers crossed for me please x

The Reading Residence

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