Friday, 29 September 2017

Word of the Week -Go


Should I stay or should I go?
This week has been a little out of the ordinary as I've been out of the house a lot more than usual.

On Monday we had to pick up my eldest from her work and take her to another hospital, it would have taken her an hour and half on the bus but we managed to get there in half hour by car.

On Tuesday I had my hospital appointment, such an awkward time 3.20pm right as the younger kids leave school. So hubby had to leave me there and go back for kids before coming back to pick me up.

Wednesday, it was eldest son's turn. I had to take him to the bank and to pick up a parcel. He doesn't get out much either, and doesn't like going out without me.

Thursday I managed to rest and not go out, but I didn't mind being stuck inside after such a busy week.

I do find it difficult going out and I tend to avoid it if I can. But I also get cabin fever staying in all the time. I think I've coped well this week, I've not suffered too much from going out. In fact the evening have been okay, it's when I get into bed that the pain starts and I can't get to sleep. My consultant has told me to increase my night time medication which does help me sleep. I'm going to do it tonight when I know I don't have any early morning commitments tomorrow and I don't have to worry about the effect lasting through the day.

I have decided that I need to get out more. It will become more difficult when it gets colder but as long as I wrap up warm I should be okay. (Although I'll still need to avoid rain as much as I can.) I have not been to the local shops in ages. I used to pop over there all the time and all the shop keepers knew me, but now it's hubby they have to deal with. So getting over the shops more is in the plan.

Also, I would like to do some supermarket shopping each week. I can't do a full shop, it totally wears me out, but I could do a top up shop or go for fresher meat and vegetables than I get in my delivery. Honestly, some weeks  I can order five different types of meat and fish and they are all due to go out of date in three days...so I have to freeze some and it just doesn't taste the same after being frozen.

I would also like a day out with hubby each week, maybe an National Trust property, or a market, or a pub lunch. Without the kids, just the two of us, sounds good! Maybe we could even just go down to the park and take my rollater with a seat so I can practice some outside walking.

I've already planned a day out with the kids for the half term break, we are going to carve pumpkins at a local farm. I think I'll pick one of our local National Trust places for more activities and a second day out. The kids like to vegetate in the house too, but getting out and about is so much better for them and creates so many lovely memories. Most of my (very few) memories of my Dad are ones when he took me out for the afternoon. The park, the pub (With garden) and the bluebell woods, I remember them so well despite him passing away when I was only 8 yrs old. I want my kids to have those memories too.

So, what do you think, would you be happy if  you were stuck indoors day after day? Or would you push yourself to get out more even if it was uncomfortable and caused you further pain? I already know how I feel.

I shouldn't stay, I should GO GO GO!


The Reading Residence

Thursday, 28 September 2017

Survey and Thorntons Chocolate Give Away

I need your help! 

But I'm not asking you to give it to me for free. I have a lovely little gift to give away to one lucky participant in my little blog reader survey. It's so short it literally takes just a couple of minutes to complete. Then if you put your e-mail at the end I'll enter you into my prize draw.

I am trying to learn more about people who read blogs, why do they read them, what are they looking for in a blog post and what makes them come back again. I want to create a blog reader persona and you can help me, even if you don't really have much interest in blogs there must be something that brought you here today. It doesn't matter if you read hundreds of blogs a day, or just one a month, I really want to hear from you. The questions are simple and multiple choice, so you just have to tick a box or boxes. And like I said, it really won't take up much of your precious time.

Now what am I giving away as a prize?

How about some chocolates from Thorntons?

Thorntons are currently promoting their Autumn Collection of chocolate, toffee and fudge, perfect for when the nights start to draw in.

How about a lovely box of chocolate covered toffees. First gooey then chewy!


Or Maybe you are nuts about nuts and would prefer this lovely box of nuts and praline collection?




Can't make up your mind? How about a classic collection where you can choose from Creamy fudge to Honeycomb, Coffee Truffle to Turkish Delight. Something for all tastes in this delicious selection.


Can't decide? How about a perfect Autumn Bundle containing no less than Ten lovely selections to suit everyone's taste.


Have I tempted your taste buds? Feel free to click through and take a look at what's on offer but don't forget to go through Top Cashback first. All links are my affiliate links but you can just visit the main Thorntons site if you want to browse through yourself.

So my dear chocolate (or toffee) lovers, this survey is very important to me but I know you are all really busy. That's why I'm offering a box of Thorntons chocolates in return for your time in answering my questions. 

Strike that!! I'm going to be giving one lucky participant TWO boxes of Thorntons Chocolates! All you have to do is fill in my survey form below and enter your e-mail at the end for your entry. E-mail addresses will not be collected, they are purely for identification for the give away, so please don't forget to fill it in if you want to enter.
 Please see details at end of post for how to enter. Prize draw ends 27th October.

COMPETITION ENDED.



A few Terms and Conditions:



  • UK Only (sorry)
  • Competition closes when survey ends on 27th October 2017
  • Prize is 2 boxes of Thorntons Chocolates
  • Prize may differ from items shown but will be of the same value
  • One winner will be chosen at random
  • Winner will be chosen by e-mail address left on survey form
  • E-mail addresses will be collected for competition purposes only, if you don't leave your e-mail I cannot accept your entry but you can still fill in the survey form.

Remember, I can't choose a winner unless you have left your e-mail address for identification. E-mails will not be collected for any other purpose.


Sorry, I've had to close the survey early, all entries so far are received and ready for the draw on the 27th. If you have only just arrived here and not yet entered then please feel free to leave a comment saying you wish to be entered. I can then rip your e-mail from the comment and no-one else will see it. You will need to comment and say you wish to enter so I can take your e-mail though as although I can see your e-mail it would be unfair for me to take it without your wish. All e-mails will be used for competition entry only.

If you did wish to subscribe to my blog you can do so using the bar at the top of the page or the section in the sidebar.

Tuesday, 26 September 2017

Insignificant Events in the Life of a Cactus - Book Review


Choosing books for older children or teenagers can be a problem. When Star was little she'd be happy with any new book, now she's a little more fussy and likes to choose her own reading. Sometimes, though, I come across something that would make a great addition to her library.

Insignificant Events in the life of a Cactus is a book that should amaze and delight any young reader.

Hardcover: 272 pages
Age Range: 8 - 12 years
Publisher: Sterling (7 Oct. 2017)
Language: English
ISBN-10: 1454923458
ISBN-13: 978-1454923459
Product Dimensions: 13.7 x 2.3 x 20.1 cm

The Blurb


Aven Green didn't lose her arms in an alligator wrestling match or a wildfire in Tanzania. That's just what she tells people when she gets the "looks."  The truth is Aven was born without arms, but, at age 13, that hasn't' stopped her from doing almost anything. Then her parents take a job running Stagecoach Pass, a rundown Western theme park in Arizona, and Aven has to leave everything she knows behind. 
Aven struggles to make friends at her new school, where the kids can't seem to see past her missing arms. But her life takes another unexpected turn when she meets Connor, a Classmate who also feels isolated because of this own disability. Together, they discover an old storage shed at the park that holds bigger secrets than Aven ever could have imagined. It's hard to solve a mystery, help a friend, and face your fears. But Aven's about to find out what she's capable of....and how far from insignificant she is.

First Impressions 

The book is hardback with a cover which takes you straight into the wild west of Arizona. I love the cactus chapter numbers It's a nice touch. Each chapter is only around six pages long so it's very easy to read in short bursts which can be attractive to young readers. Watch out for the surprise picture in the back.

The Verdict

I couldn't put this book down. Aven is like no character I've ever met in a book before and it's not because she has no arms. She is charming, clever, inspirational, brave and very humorous. The story is in first person so we get to see all of Aven. She is human, she has feelings that can be hurt, she also notices other people that often get ignored. She's sees the good in everyone and helps them to see it in themselves. She is far from insignificant.

The story revolves around Aven's new life in a run down theme park in Arizona. Her adoptive parents are the ones that have taught Aven everything, but is there also some part of her birth mother in her too? 

I'd recommend this book to any young reader, whether they have a disability or not. It really makes you think about how other people are feeling. It's also very inspiring to read how other people manage to do things that you could not imagine doing.

Star is now reading this book and she said she's enjoying it a lot.


I received my review copy of Insignificant events in the life of a Cactus from The GMC Group
It will be available for purchase from 7th October 2017











Monday, 25 September 2017

#GBBO Star Selasi Launches Share a Meal

Do you remember banker Selasi, a contestant on last year's Great British Bake Off? This year he is supporting World Vision, a children's charity, with their new 'Share a Meal' Campaign. How would you fancy sharing a meal yourself with star baker Selasi?


Win a meal for two with Selasi!


Love Great British Bakeoff, but having Selasi withdrawal symptoms? We can help. The Share A Meal competition gives you the chance to get up close and personal with the coolest baker. (And we’re not biased just because he’s a World Vision UK ambassador!)
If you’re missing seeing Selasi on screen, enter our Share a Meal photo competition for your chance to win a meal for you and a friend cooked by Selasi – and help vulnerable children at the same time. 
Post a picture of a Share a Meal event on Instagram and share it using the hashtag #ShareAMeal and tagging @WorldVisionUK to enter.
Terms and conditions are available: www.worldvision.org.uk/shareameal 


Star baker, Selasi – who recently visited the desperate children and families living in Uganda in Bidi Bidi, the world’s largest refugee settlement – is asking people to share a meal with friends and family and donate together to support World Vision’s work with the world’s vulnerable children. 

Following his visit, Selasi said: “It’s heartbreaking to see pain and hunger etched onto the faces of orphaned children and hear their harrowing stories of rape and violence. It is vital that, as a community, we come together to do what we can to help provide these kids with a better future.”

Hundreds of thousands of children are streaming into Uganda’s refugee settlements from a brutal civil war in neighbouring South Sudan. Many flee after seeing their parents murdered and walk for days or weeks without food or shelter. They hide in the bush during the day, moving at night to avoid being killed by fighting parties. They arrive at the border alone, traumatised and hungry.

World Vision is helping to feed children in the refugee settlements, find them foster families and give them a new start. However, global funding to tackle the humanitarian crisis is nowhere near enough and food supplies are running out. Children survive – just - for months on meagre rations of beans and flour. Far more must be done.

Tim Pilkington, World Vision UK CEO added: “World Vision UK feels strongly that we can’t stand by while children in Uganda go hungry or fail to grow because they don’t have enough good food. We are confident that through Share A Meal, we can help some of the world’s most vulnerable children.”

To find out more, visit worldvision.org.uk/shareameal


Ways to Keep Positive.


The pain you feel today is the strength you feel tomorrow. For every challenge encountered there is an opportunity for growth


Last week I began this post and just couldn't finish it. Things were not going well and being positive was far from my mind.
We had a pretty awful week including arguments, emergency hospital visits and many tears. The stress levels were through the roof, which is a big achievement in our three story house!

Now things have settled a little and we have a plan to prevent (hopefully) future breakdowns like this and I can look back and reflect. The bad things will get better, I'm sure, so I'm going to keep working on them and now look at the good things about last week.


  • The kids went back to school completely stress free and they all had a fabulous week
  • I focused on getting ready for my consultant appointment (Tomorrow) and I know exactly what I'm going to tell him and what treatment I expect. There is a choice of treatments so I'm feeling positive.
  • I had a gorgeous bouquet of flowers which, although they were for a review, they have really cheered me up with their lovely colours and beautiful fragrance
  • On a day when I felt I was hitting rock bottom, I let my friends know and they sent me loads of love and support.
  • I've been out twice, once with hubby and the other time with hubby and the kids. It always makes me feel better to get out of the house. ( I could say three times, but I'm focusing on the good things so the hospital visit doesn't count.) 
  • I have my holiday voucher so I'm going to book next years summer holiday. I've already decided where we are going (South Devon) and we are going for a full week instead of a mid week break, and we are going in the Summer holiday instead of Whitson. (Although we do tend to have really nice weather at Whitson which is never guaranteed in summer.) 
So, despite having a really rotten week, I can still find the positives. These little things that don't solve my problems but give me hope and happiness. 


What do you do when life throws you lemons?


When stressed I also have things that keep me calm and happy and stop my mind from going into overdrive. These include;

  • Crochet. I like to make small things so I get my achievement sooner. I love amigurumi which is a Japanese term for small stuffed creatures. 
  • Colouring. I have a plethora of colouring books which meet my every need, I also have many pens and pencils but I do like pencils best.
  • Reading. I have trouble reading because it gives me headaches and I tend to fall asleep, but a good book takes me away into another world and I love that. I've read nearly two books this past week.
  • Baking. Although I do have trouble with this now I do still love to bake and really enjoyed making bread last week.
All these things help me to practice mindfulness. The times I am engrossing myself in these activities I am focusing on them purely and everything else doesn't matter. This teaches me to be in the moment. what ever has happened in the past has happened and there is nothing you can do to change it, whatever happens in the future hasn't happened yet, so you can't do anything about that either. The only thing you can do is live in the present and whatever you do right now is what is most important, so make every day count.

An awful week may have happened but it's past now and today is a new day, today I managed to finish this post!

Every morning we are born again. what we do today is what matters most.





School Runs and Shopping Trolleys


Debs Random Writings



Photo by Madison Nickel on Unsplash

Sunday, 24 September 2017

My Sunday Photo - 24th September 2017



Why do people cry 'it's too early' when Christmas is mentioned in September? You can already find Christmas cards and gifts on sale in the shops and many people getting up in arms about it. Maybe they are Christmas haters? Maybe they think we spend too long planning for Christmas. Maybe they don't want to think about it until last minute.

Personally, I think the run up to Christmas is the best part. I enjoy planning and deciding what to buy. I don't have a huge amount of presents to buy but I like to give them lots of thought. Then there is the money side, Christmas might seem like a long way away but it's only three or four pay days depending on which time of the month you are paid! I don't like leaving everything to the last minute. I like to start early and not have to worry about paying out a huge amount in one go.

This photo was taken in August in Stratford-on-Avon. The Nutcracker Shop is open all year selling Christmas things. If I lived nearer I would visit frequently, why not?

What do you think, does Christmas start arriving earlier every year? Do you prefer to think of it at the last minute? Should Christmas be left well alone until December?
or, do you 'Wish it Could Be Christmas Everyday?'

I've made the photo a little more Christmassy, now does it look better than the one taken in August?



I pin My Sunday Photo pics I visit on my Pinterest Board. Please let me know if you wish your photo to be removed.



Photalife

Sunday Snap



Saturday, 23 September 2017

A Beautiful Bouquet from Prestige Flowers - Review

bouquet of flowers
When the flowers arrived the Lilies were still in bud but the bouquet still looked and smelt amazing.




I love flowers. I love them in the garden, in parks and in my home. There is something really special about a lovely bunch of flowers on display in the home. They look and smell beautiful and really brighten up your room and mood.

Prestige Flowers provide flowers by post for any occasion, from birthday to get well, new baby to anniversary and so much more. You can even buy corsages and buttonholes (boutonnierre.) Then of course there are funeral and sympathy flowers. Everything is covered, even you just want to sent a gift or be romantic.

You can make your flowers even more special by adding gifts like balloons, chocolates, a teddy bear or wine. Even a hamper of goodies if you wish. One thing is for certain, whatever you choose you will be certain to make an impression with Prestige Flowers.

In a hurry, or a last minute gift? Prestige Flowers offer next day delivery on a selection of flowers and gifts.

I was lucky enough to be sent a gorgeous bouquet of flowers from the luxury range. I was sent the Exquisite bouquet which consisted of gorgeous pink germini, white lillies and pretty lilac lissanthus along with some delightful smelling greenery.

This can be bought from £34.99 for standard, £29.99 for medium and £44.99 for a large bouquet. It comes beautifully presented in a black square bag. My flowers arrived on next day delivery and were packaged carefully in a large box, they arrived in perfect condition. The flowers stems were wrapped in a wet cloth to keep them fresh and then in black cellophane which was a stunning contrast to the pretty colours of the flowers.
The lilies where still in bud when they arrived but they still looked lovely. Once the lilies opened they were even more stunning.

close up photo of flowers
The White Lilies opened their delicate petals to reveal bright red stamens.



























close up photo of flowers
My vase of flowers soon became full of pretty colours and delightful fragrance.



























My flowers also arrived with a lovely glass vase, which can be added to your order for just £5.99.

I was really pleased with my delivery from Prestige flowers, and even though my flowers were delivered a week ago they are still looking lovely thanks to the little tip booklet that came with them and the flower food.

I'd love to know what you think of my flowers? Would you order flowers online?
Family Fever

Disclosure: I was sent these flowers for the purpose of this review, all thoughts and opinions are my own.




Friday, 22 September 2017

Back to School, Finally!


Well it happened, our extended holiday ended and the kids went back to school on Monday. I don't who was most nervous, me or the kids!
Star had a bit of a wobble because she didn't know where she was going for registration. She was calmer when we gave her coping strategies, first she had to find fellow classmates and find out where they were going, then if that failed she had to go to the school reception and ask. Of course, as soon as she arrived at school she met up with classmates and went in happily.

Boo was really excited because she loves her school friends and couldn't wait to see them again. Not only that but they were going to be in a brand new school building! What was there not to be excited about!

The Little Man was just not wanting to go. He claimed school was boring and he wasn't interested in meeting up with his little friends again. Of course, that changed as soon as he reached the playground. He's been really happy all week. Soon he'll be moving to the new school building with Boo. It must be really quiet in his school with all of the years four to six missing.

So the first week back has gone really well. Well, apart from the uniforms. I really need to stock up on some more jumpers, but when you have three kids and you have to buy the special (much more expensive) jumpers with the badges on, it's a big spend. Not only that, I normally spread the cost by buying some early and some later, but they are for the new school and were only released for sale a couple of weeks ago.

I hope they continue to enjoy their school week, we are already in a firm routine which was no trouble at all. I think we all strive on routine so it's working out well for everyone.





The Reading Residence


Thursday, 21 September 2017

Half Price Books for Autumn!

I love to read, it helps to relax me and I can't resist being taking into other worlds, other lives and imaginations. I've just finished re-reading Philip Pulman's Dark Materials trilogy, I love the books which are aimed at young adults but are incredible stories that I've enjoyed too. Maybe you've seen the film, The Golden Compass? This is based on the first book in the series, Northern Lights. Why have I been re-reading them? Well, because the books were published 22 years ago, but now there is a brand new succession to the series beginning with 'La Belle Savauge' which will be released next month. I, for one, am truly excited and you can pre-order this book now at Waterstones for half price.

Don't forget that you can also get cash back for Waterstone's purchases from TopCashback.


Book of Dust, Philip Pullman


Publisher: Random House Children's Publishers UK 
ISBN: 9780385604413 
Number of pages: 560 
Weight: 866 g 
Dimensions: 240 x 162 x 46 mm

If you want to read the older books too they are also on the half price offer, you can buy them all separately for £5.99 or buy a hardback volume of all three books for just £11.99.


If Philip Pullman is not your cup of tea then how about the Booker Prize 2017 shortlisted book 'Autumn' by Ali Smith? A story about ageing and time and love and stories themselves. 
This is also in the sale at just £6.99 for a paperback copy.

Ali Smith, Autumn

Publisher: Penguin Books Ltd 
ISBN: 9780241973318 
Number of pages: 272 
Weight: 193 g 
Dimensions: 198 x 129 x 17 mm


Maybe you are already stocking up on your Christmas presents? I am, I like to get in early it seems like less of an expense and you can grab some great bargains. Books make great presents and I have to buy a copy of the Guinness World Records for my kids each year. You can grab this years copy for just £10, that's half price!

Guinness World Records

Dimensions: 198 x 129 x 17 Publisher: Guinness World Records Limited 
ISBN: 9781910561713 
Number of pages: 256 
Dimensions: 303 x 226 x 20 


Perhaps you'd like to try some new recipe's this Autumn. I don't usually associate Jamie Oliver's recipes as quick and easy but his new books states otherwise. 
Each recipe has been tried and tested (and tested again!) to ensure the book is packed with no-fuss, budget-friendly dishes that you can rustle up, any day of the week. With over 130 recipes, and chapters on Chicken, Beef, Pork, Lamb, Fish, Eggs, Veg, Salads, Pasta, Rice & Noodles and Sweet Things, there's plenty of quick and easy recipe inspiration to choose from.
You can get this new hardback book from Jamie Oliver for just  £13! That's another half price bargain!

Jamie Oliver cookbook

Publisher: Penguin Books Ltd 
ISBN: 9780718187729 
Number of pages: 320 
Weight: 1198 g 
Dimensions: 254 x 196 x 29 mm


You can find many more books in the Sale at Waterstones, why not take a browse at their Books of the Month.

Here are a few more bargains you may be interested in, click the book to find out more.
£12.99
 £.749
£7.49
£5.99

£8.99
£11.99





Disclosure: This post contains affiliate links which if you click they won't cost you anything but they may help me build up my book fund.


Tuesday, 19 September 2017

Ed Place - The Home Education Resource

Sometimes kids need a little extra help with their learning at home. Sometimes parents choose to educate their children at home. I've done both.
When my eldest daughter was young she did the last three years of her education at home. We did have help with tutors and I really don't know what I would have done without them. Back then the internet was fairly new and their was little in the way of home education resources online.

When Star was in her halo brace and couldn't go to school she had a year of home education. Again, I had help from a professional tutor, but this time we found lots of helpful resources online.
Then there is Boo, who has had a little trouble catching up with her peers and I've been giving her that little extra push with online activities to help her improve, and it's worked.

Today I'd like to tell you about a new program that I've found EdPlace. It's a comprehensive educational resource that's available 24/7. All content has been written and checked by teachers with over five years experience. It is 100% national curriculum aligned and prices start from just £10 per month for one subject and £15 a month for all subjects. You can even trial the program with full access for fourteen days for just £1.


EdPlace is the most accessible online educational tool in the UK. They believe every parent should have access to quality educational support that effectively helps their child succeed. As parent champions, their mission is to become the most trusted partner for parents with the biggest impact on their child’s education. They do this by providing parents access to the best educational tools, technology, resources and teachers. They cover English, Maths and Science across the National Curriculum in Key Stages 1 to 4 (age 5-16). They see big opportunities to help parents by blending the best online tools with leading resources created by their teachers.

Once you sign up to EdPlace you are assigned topics for your child based on their year and their progress will be adapted to their progression.You can keep check on how well your child is doing through the parent dashboard. There are also fun and customisable  rewards to keep your child motivated.

What do you think? Does your child need a little extra help at home with their school subjects. I know as they get older the homework increases, do they really need more work on top of that? I do believe that if a child wants to improve on their school work, at whatever age, if there is someway of making the learning fun and rewarding they will do it. Then there is always the problem of revision, EdPlace can help with that too.

Also, you can get up to £10.50 cashback at TopCashback, and £10 off any subscription with the code 10FREE



Disclosure; This post contains affiliate links.

Sunday, 17 September 2017

Great British Bake Off - Cottage Loaf

I'm really getting into the Great British Bake Off now, despite the missing Mary, Mel and Sue. It's all about the baking after all.
This week was bread week and I love baking bread...but I've not done so for a long time. The signature task was to bake tea cakes, something I've never tried before but I may try one day as I do like a nice toasted tea cake with my cuppa. The technical challenge was a cottage loaf, again I've not made one before but I do remember making a mini one many many years ago at school. Finally, the show stopper was a bread sculpture, yes, like I'd have the time, or energy for that!

So, I went for the cottage loaf. I love making bread kneading by hand but with my hands giving me so much trouble lately, it was good to have two little helpers to hand, Star and Boo, who each took turns with the kneading.

The recipe I used was a basic white loaf recipe.

Ingredients

500g bread flour
25g butter
1tbs sugar
1 1/2 tsp of salt
1tsp dried yeast
320 ml of warm water

Method:

rub the butter into the flour
add the sugar, salt and yeast,
mix in the water a little at a time until you have a firm dough
knead the dough for 10 mins and leave in a bowl covered with cling film, or a tea towel for about 1 hour
knead the dough again and shape into two rounds, one slightly bigger than the other
Put the smaller mound on top of the larger one and push two fingers all the way through both rounds from the middle of the top round.
leave to prove, covered lightly, for a further 30 mins.
Bake at 180 C for 40 mins, or until it sounds hollow when tapped on the bottom.


cottage loaf























=




Mummy Mishaps

My Sunday Photo

































I love receiving flowers and these were delivered yesterday. The lilies have yet to bloom but it's still a beautiful bouquet. They are a lovely addition to my home especially as the summer days are ending and Autumn is creeping in.

I really miss having flowers in my garden. In my last home we had lots both in the front and back garden. We have lived here four years now but nothing has grown for us. We have some plants in the front, but no flowers, and nothing at all out the back. The soil is terrible so I bought some pots of plants, but even those have refused to grow. Maybe next year will be different.

I pin My Sunday Photo pics I visit on my Pinterest Board. Please let me know if you wish your photo to be removed.



Photalife

Sunday Snap



Friday, 15 September 2017

Word of the Week - News



We've had good news and bad news this week, which would you like to hear first?

Okay, let's start with the bad news.

Last Friday I ended up in A&E and discovered that my condition is progressing much faster than I would like. Roll on my time to visit my consultant where I'm going to ask for treatment to stop it progressing further. You can read the full story on my post here. The pain is still pretty bad every-time I stand up, but hasn't woken me up for the past few nights so I guess that's not too bad.

So, although I've been feeling pretty rough this week we have also had some good news!

Our car was fixed and returned, yeah, I did miss Bernard while he was gone. I'm still waiting to hear if I can drive, I'm dreading it if they say no, but I do have my special controls and I never drive when not feeling well, so fingers tightly crossed. In the meantime I have to rely on hubby, but we are still having trouble with my back seat driving, I need to realise he's not a bad driver and I don't need to act like a driving instructor.

But that's not the best good news.

I haven't mentioned it too much (probably worried I would jinx it) but my daughter, Star, had genetic testing earlier this year in May. We knew we would have to wait four months for the results but it's been a hell of  a long four months. The geneticist has spotted some familiar signs of a really rare condition called Loeys Dietz Syndrome. It's a nasty condition which comes with a dodgy heart and can be a killer. At first I fretted like crazy, but then I read some more about the condition and there is only one person in the UK with it, so I figured that Star would be okay. Well, the results came back and she doesn't have it! How fantastic is that!
Not only that but she doesn't have any other indicators of heart related conditions like EDS type IV or Marfan Syndrome. There is a chance that these may develop later in life as she does have so many indicators, in particular for Marfan Syndrome, but they realise this and will check her yearly from now on. Just for peace of mind.

Next month Star goes to see her neurological surgeon to see how her neck is. I am feeling quite confident about this because she seems just fine and rarely complains of neck pain any more. Thankfully they are also keeping a check on her for this and again she will be having yearly check ups.

The only problem at the moment seems to be the stomach one, but we are working hard on that one and she sees a specialist nurse every six weeks. We'll get to the bottom of it I'm sure. (there is a joke there somewhere but I'm not willing to share it!!!)

I'm focusing on the good news this week and hopefully, in just a couple of weeks time, I will have some better news on my health.

Oh, and I've worked out how to dictate my blog posts if my hands do give up, so don't worry, you won't be getting rid of me that easy :)

The Reading Residence


A little Note About Positive Reviews on Raisie Bay



Some people only write reviews when things go wrong with products, which is good because it lets people know that there could be potential problems. I've also seen negative feedback with say things like, I had to return this item because the colour did not suit me...is this useful?

I write reviews on most items I buy because I like to give genuine feedback. If I have a genuine problem with a product I will write my review in the appropriate place.

I write reviews on my blog too, but they are mostly positive. Why? Because I only write reviews for the things I've loved. If I don't love them I let the person who sent me them know with details why and then let them decided if they would rather me write a negative review or not write one at all. It's always the latter.

This is my blog, my place and I'll let you know about the things I love. If you want to find out what other people have hated about the product then you will need to look elsewhere.

My reviews may all be positive, but they are still genuine.
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