My Word of the Week -Changes

On Monday the two youngest went back to school after the Easter Holiday. Star had a few more days off because they are moving to a brand new building and extended the holiday a few days before and after the Easter Break to give them time to complete the move. Star started back to school yesterday and it’s been a big change for her. It’s also been a change for me having the kids back at school after the holiday, it’s been so quiet without them.

Also on Monday I had an appointment with my consultant which involves some changes. I am now weaning off the steroids is good news because I’ve hated being on them. Apart from the weight gain, they’ve interrupted my sleeping pattern and given me gastric problems. I’m pretty sure they’ve affected my blood pressure too. All that and they’ve not made any improvement to my condition.

So the next change is that I’m being put forward for another line of treatment, Intravenous Immuniglobulin (IVIG) I’ll speak more about that later, but it has had some excellent results in other sufferers. so I’m feeling hopeful. I’m just waiting now to hear if and when the treatment will start.

On Tuesday I sold my old electric wheelchair for spares and repairs as it was falling apart. It wasn’t in the best of condition when I bought it second hand a year ago, but I’ve had some good times in it, it served me well. It’s a pity it didn’t fit in the boot of the car otherwise I may have considered paying to get it fixed, but I need something smaller. The money I sold it for has gone into my new wheelchair fund which is now standing at £740! I’m hoping I’ll be able to afford a new chair for the summer. It’ll be a nice change having a new chair that will fit in the car boot. It’s also meant we could change around our dining area as that’s where the old wheelchair was stored.

Wednesday we had a move around of furniture and I got hubby to bring the new bookshelf down that had been banished upstairs after I decided I didn’t like it. I’m still not in love with it, but it fits in better now we’ve moved things around. The old bookshelf has now gone upstairs. It’s made a big change to the room and I’m happy with it now.

On Thursday I decided to clear out my wardrobe. It’s been long, enough, I can’t keep onto my old clothes as I’ll never wear them again. I did feel quite sad piling up my jeans, I also didn’t realise how many pairs I had! So the old clothes are gone and now I have room for the clothes that do fit me and the change in my wardrobe is impressive. There is something quite satisfying about a cleaning out your wardrobe.

So, it’s been a week of changes but they’ve all been good and I’m looking forward to things to come now.