I had my IVIG in hospital last week. It was a good day, I met a new friend and we talked a lot. It was good to find someone that understood, that I had something in common with. It’s sad that that common feature is pain.
The weekend was not so good. First I had the migraine which is a side affect from the IVIG. I’ve not had one for a while so I’m thinking they may have pushed it through at a faster speed. They were incredibly busy and understaffed on the ward, so this is feasible. Then on Sunday I had this pain in my chest which I believed was the start of a chest infection.
By Tuesday I was in the hospital, but there is not much they can do as I don’t tick all the boxes for something treatable. I have a rare condition and no-one knows what it can or can’t cause, or how to treat it.
The pain has continued throughout the week, with nothing making it feel any better. It’s just something I’m getting used to dealing with, just like I have to with everything else this ridiculous condition throws at me.
The time is approaching for the visit with my consultant so I’m busy scribbling down everything I want to ask. And everything that has happened since my last visit six months ago.
Then I have another appointment with a different professional just to see if they can help me with my heart arrhythmia. Which may be why I’m getting chest pain.
I’ve not really done much this week. Even the Little Man has had a couple of days off Home School as I’ve not been up to teaching him. It’s okay to let him read or do math puzzles instead, but I feel like I’m letting him down.
But it’s not just me, Graham has been unwell too. He’s had a pain in his neck and an awful migraine. And this morning Star was complaining with neck pain. I’m hoping she just slept in an awkward position and that it has eased by the time she comes home from school. Because of her cervical spine surgery we have to be vigilant when she complains of neck pain.
I’m beginning to wonder who will be next?
I’m hoping that next week will be relatively pain free!
How’s your week been?