I had my IVIG in hospital last week. It was a good day, I met a new friend and we talked a lot. It was good to find someone that understood, that I had something in common with. It’s sad that that common feature is pain.
The weekend was not so good. First I had the migraine which is a side affect from the IVIG. I’ve not had one for a while so I’m thinking they may have pushed it through at a faster speed. They were incredibly busy and understaffed on the ward, so this is feasible. Then on Sunday I had this pain in my chest which I believed was the start of a chest infection.
By Tuesday I was in the hospital, but there is not much they can do as I don’t tick all the boxes for something treatable. I have a rare condition and no-one knows what it can or can’t cause, or how to treat it.
The pain has continued throughout the week, with nothing making it feel any better. It’s just something I’m getting used to dealing with, just like I have to with everything else this ridiculous condition throws at me.
The time is approaching for the visit with my consultant so I’m busy scribbling down everything I want to ask. And everything that has happened since my last visit six months ago.
Then I have another appointment with a different professional just to see if they can help me with my heart arrhythmia. Which may be why I’m getting chest pain.
I’ve not really done much this week. Even the Little Man has had a couple of days off Home School as I’ve not been up to teaching him. It’s okay to let him read or do math puzzles instead, but I feel like I’m letting him down.
But it’s not just me, Graham has been unwell too. He’s had a pain in his neck and an awful migraine. And this morning Star was complaining with neck pain. I’m hoping she just slept in an awkward position and that it has eased by the time she comes home from school. Because of her cervical spine surgery we have to be vigilant when she complains of neck pain.
I’m beginning to wonder who will be next?
I’m hoping that next week will be relatively pain free!
How’s your week been?
Sorry to hear you’ve been in so much pain this week, and your poor hubby too. I hope the consultant appointment goes well and that the other health professional can help you with the chest pain. A few days off home schooling won’t hurt your little man I’m sure. Have a nice weekend x
Oh no, Anne, sorry to hear you’ve had such an awful week. So frustrating that so little can be done to help you. And it must be all the worse when your family are suffering around you, too. I hope the pain eases for everyone soon x Thanks for sharing with #WotW
Oh no. What a pain filled week. I get migraines and they can wipe me out, so I can’t imagine what all of this together must feel like. Hope this week is much better for all of you. #wotw
That’s great news about making a new friend but not so great about all the pain and your hospital visit. I am so sorry. I really hope you are in less pain soon.
I hope everyone in your house feels better too. Sending hugs x
Sorry to hear that you have been in so much pain, I suffer with migraine developed in adulthood, they are awful. I hope you get some rest and you feel better soon X #wotw
Being in pain is something I can relate to fortunately there’s something I can do to make the pain go away I’m sorry you can’t. I also know the mum guilt and worry that goes with raising a kid and hoping that they’ll do well in their education. #keepingitreal
So sorry to hear that you’ve been unwell and in pain and that Star and Graham have also been in pain too. I hope that this week is a much better one for you all x #WotW
Pain is really something that can stop you off your tracks so I hope this week will be better for you and the rest of your family. And hopefully no one will be next.
#wotw
Hi Anne, it must be nice to talk to someone who really understands what you go through and the pain you feel. We may all know what pain is, but the majority of us have no idea what it feels like to be in constant pain. I hope your migraine was caused by the treatment being administered too quickly rather than a change in how it affects you. And you mustn’t beat yourself up about not being able to teach your son. I think you do admirably on a daily basis, so when you really can’t, then you really can’t… I hope you get to the bottom of the chest pains too.
Thank you for linking up with #keepingitreal
xx
I’m so sorry you’re in pain this much. I understand it must be hard to deal with a rare condition that no-one knows how to manage, let alone treat. It must’ve been a blessing in some weird kind of way to meet this new friend. #WotW