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Raisie Bay

word of the week

Word of the Week 4 – It’s Been Difficult!

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Hello and welcome to the home of Word of the Week. A nice and simple weekly linky, with everyone welcome to pop by and share. The idea of the linky is to reflect back on your past week and share it with us. It’s great if you can sum it up in a word or phrase, hence giving us your Word of the Week. My word this week is ‘difficult’ and you can read more about that below.

I’m not totally strict on using just a word or phrase. But please try to stick to the theme of summing up your week. There are not too many rules with this linky, just remember to read at least another couple of posts in the link up after adding your link. I will read and comment on all posts and tweet them out for you. I also have a Pinterest board devoted to Word of the Week and I will add posts to Mix Please add the badge below to your post so that others may find us and join in. If you comment or tweet then please use the hashtag #WotW

Word of the Week is open from 6am on Friday Morning to 12 noon on Monday. Plenty of time to join in!

If you are unfamiliar with the Word of the Week linky then please feel free to ask any questions. New linkers are always welcome, we love to hear what you have been up to in the past week.

MY WORD OF THE WEEK – Difficult

I guess a lot of people are finding things difficult at the moment, or indeed for the past year, but this week I’ve found things have been difficult.

difficult, image shows photo of a man in a cave with the opening to escape looking like it will be impossible.

I feel like I’ve fallen into a pit and can’t get out. My mood is at an all time low. It’s not because of being stuck home all the time, after five years I’m used to that.

Those around me are suffering. The girls won’t do their school work online, they started off okay but just find it so difficult to understand and complete. And they Won’t get OUT OF BED in the morning. I’m sure they are not the only teens that find this difficult. We’ve finally managed the evening routine of getting them off screens and into bed at a reasonable time. But they still won’t get up.

I feel Like I don’t really know Boo anymore, I’m not sure where my little girl has gone. She’s just a shell who sits and watches You Tube all day. The older kids (Adults) tell me to step up and be a parent. But even though I’ve tried everything I can’t inspire any motivation.

Star is depressed, it’s obvious. She bursts into tears at the slightest thing. Some evenings she just sits on the sofa next to me watching whatever is on the television. It’s like she just wants to be near me. When I ask her what is wrong she can’t really tell me, or her problems sounds so insignificant I can’t make out whether it’s my maturity or her lying to me. I am there for her whatever though (and don’t worry, I never tell her that her problems are insignificant, we try to work through them together.)

The Little Man is working hard on his school work. Getting up early, attending every class and contributing. He’s doing written work too (Which he hates.) But then as soon as he gets a break he wants to spend it playing Minecraft or Roblox. So it’s like he’s spending twice as much time on screens, but what can I do when his school is on screen? I’ve tried hard to get him engaged in other stuff (he baked a lovely cake the other day) but it seems unfair to take away his games which he loves.

The adults are feeling stressed and are bickering with each other all the time. It’s difficult living with three other adults. It might be easier without the kids in the mix, but we are a family and occasionally we appreciate the fact that we all live together and never feel lonely….but…

I’ve never felt more alone.

As my mood gets lower my pain seems to rise. I hate my pain. I want it to leave me alone, even for one day it would be nice, forever would be great. But unless some great cure is discovered (million to one chance) then I know I will be in pain for the rest of my life. It’s difficult.

So, to end on a high note. I’ve been thinking about my garden dreams again and I would really love a conservatory. Just a small one, but it would be so nice. Anyone fancy coming around and building one for me?

Dreams make the difficult times more bearable don’t you think? Time to look at some more conservatories.

Now it’s over to you, what word or phrase sums up your week this week?

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Word of the Week 3 – Home School

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Hello and welcome to the home of Word of the Week. A nice and simple weekly linky, with everyone welcome to pop by and share. The idea of the linky is to reflect back on your past week and share it with us. It’s great if you can sum it up in a word or phrase, hence giving us your Word of the Week. My word this week is ‘Home School’ and you can read more about that below.

I’m not totally strict on using just a word or phrase. But please try to stick to the theme of summing up your week. There are not too many rules with this linky, just remember to read at least another couple of posts in the link up after adding your link. I will read and comment on all posts and tweet them out for you. I also have a Pinterest board devoted to Word of the Week and I will add posts to Mix Please add the badge below to your post so that others may find us and join in. If you comment or tweet then please use the hashtag #WotW

Word of the Week is open from 6am on Friday Morning to 12 noon on Monday. Plenty of time to join in!

If you are unfamiliar with the Word of the Week linky then please feel free to ask any questions. New linkers are always welcome, we love to hear what you have been up to in the past week.

MY WORD OF THE WEEK – Home School

Like Many people in the UK at the moment we are experiencing the joys and misfortunes of Home School. I know people feel differently but I’m so happy my children don’t have to go to school anymore. Not while Covid is so rife. The Little Man has been full time since September, but the girls have only been doing reduced hours in the SEND department. Their anxiety about school has been incredibly high.

Home School, photo with words and child learning in the background.

Now, I have them all at home where we will be staying. Although we are planning some outside exercise when the weather allows and they are not tied up in home school lessons. We do not plan on meeting up or being with anyone else. We want to be isolated in our own bubble. My daughter goes back to work next week but she’s been vaccinated. That doesn’t mean she won’t be able to pass the virus on to us, but at least she will have some protection.

Home school this time around is different to anything I have experienced before (And I have a LOT of experience with home school.) My three children are responsible for attending lessons on Teams and joining in with a class which is produced by a teacher at their schools. They work independently without any input from me at all. (Unless the technology plays up and they need help.)

I know some people would rather have their children in school, but I’m happy having them home and they are learning which is good. We still have problems but so far things are not too bad and I hope they can improve as the kids get used to this way of learning for a while.

How are your children getting on with home school? Is it something you are happy with or not?

Now it’s over to you, what word or phrase sums up your week this week?

You are invited to the Inlinkz link party!

Click here to enter

Word of the Week 2 – Needing Help

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Hello and welcome to the home of Word of the Week. A nice and simple weekly linky, with everyone welcome to pop by and share. The idea of the linky is to reflect back on your past week and share it with us. It’s great if you can sum it up in a word or phrase, hence giving us your Word of the Week. My word this week is ‘Needing Help’ and you can read more about that below.

I’m not totally strict on using just a word or phrase. But please try to stick to the theme of summing up your week. There are not too many rules with this linky, just remember to read at least another couple of posts in the link up after adding your link. I will read and comment on all posts and tweet them out for you. I also have a Pinterest boarddevoted to Word of the Week and I will add posts to Mix Please add the badge below to your post so that others may find us and join in. If you comment or tweet then please use the hashtag #WotW

Word of the Week is open from 6am on Friday Morning to 12 noon on Monday. Plenty of time to join in!

If you are unfamiliar with the Word of the Week linky then please feel free to ask any questions. New linkers are always welcome, we love to hear what you have been up to in the past week.

MY WORD OF THE WEEK – Needing Help

This week has been all about needing help. I’ve been in hospital every day getting help, the Little Man has had help each day from his teacher to learn at home, and we have needed help with technology products which have failed us.

needing help, two hands reaching out to each other.

Hospital

I’ll start at the top. I’ve been having my IVIG treatments which give me help to boost my immune system. I usually get through the week okay, with the usual headaches and tiredness and just writing it off as a rough week. However, this week I was needing more help than usual when I had a spasm during my treatment. Thankfully one of the nurses knew exactly what to do and she also taught another nurse there. It was a great help and I was soon feeling better. I don’t go out much so I don’t really have spasms other than at home, but the last time I had one in the hospital the doctor in A&E had no idea what to do. That’s one of the problems with having a rare condition. I’m lucky that the nurse on my day ward has dealt with others with my condition and knew what to do, particularly as I lose my voice too so I’m no help!

Home School

As soon as it was announced that school were going to be closed I was prepared for the kid’s having to be taught by myself. However, The Little Man’s teacher set up a classroom through Teams and, although he has been needing very little help, I’m so glad that she has been there for him when I have been unable to be. He has been learning every day along with his peers and he’s not needed me at all! Next week, the girls will be starting their lessons. As a family with plenty of technology I thought we were well prepared, but that’s not so. We need to have three laptops working at the same time so we are short. The tablets do not work well enough. We were needing help and the school came to the rescue with a further laptop loan. Of course, this means that I won’t be online much as I’ll have to give my laptop to one of the children for lessons. I just hope the internet holds out!

Needing Help With Technology

My eldest daughters phone stopped charging just before Christmas and as it was insured I put in a claim for repair, but we heard nothing back. I found out today that we can’t claim on the insurance because the phone is still under warranty. So now I’m waiting for the phone to be collected for repair. It’s astonishing when such an expensive piece of technology fails within the first year of use.

To top that, my other daughter’s tablet has an issue with the headphone socket. Again the tablet is less than a year old and still under warranty but we can get it fixed quicker for a small fee. We are unsure what to do yet but we are certainly needing some help.

Now it’s over to you, what word or phrase sums up your week? I hope you have all the help you need.

You are invited to the Inlinkz link party!

Click here to enter

Word of the Week 50 – Wrapping

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Hello and welcome to the home of Word of the Week. A nice and simple weekly linky, with everyone welcome to pop by and share. The idea of the linky is to reflect back on your past week and share it with us. It’s great if you can sum it up in a word or phrase, hence giving us your Word of the Week. My word this week is ‘wrapping’ and you can read more about that below.

I’m not totally strict on using just a word or phrase. But please try to stick to the theme of summing up your week. There are not too many rules with this linky, just remember to read at least another couple of posts in the link up after adding your link. I will read and comment on all posts and tweet them out for you. I also have a Pinterest boarddevoted to Word of the Week and I will add posts to Mix Please add the badge below to your post so that others may find us and join in. If you comment or tweet then please use the hashtag #WotW

Word of the Week is open from 6am on Friday Morning to 12 noon on Monday. Plenty of time to join in!

If you are unfamiliar with the Word of the Week linky then please feel free to ask any questions. New linkers are always welcome, we love to hear what you have been up to in the past week.

My Word of the Week – Wrapping

wrapping, word surrounded by Christmas presents all neatly wrapped

It’s less than two weeks until Christmas and the wrapping is underway. I used to love wrapping presents so much but lately it seems like a chore. So I do it a little bit at a time. I don’t even have that much to wrap this year…well, or so I thought. How come you think you’ve barely bought anything then you end up with a hoard?

Many years ago, before I had my young children, I would go and help my Sister-in-law with her wrapping. She had a big family with loads of nieces and nephews to wrap presents for. I’ve never really had a lot of people to buy for. With the age gap between me and my older brothers it meant that my nieces and nephews were practically peers. As the years have gone by my family is a lot smaller and I have a lot less to buy for. I still have five children myself though.

I think I already miss the days of lots of toy buying. Although the Little Man has toys for Christmas, the girls don’t and I know it’s only a few years before there will be no toys in my house….after 32 years it’s going to be strange. I do wish I had grandchildren! Maybe one day.

So, this week I’ve been watching The Queen’s Gambit each evening and wrapping my presents, and that’s about as exciting has my week as been.

EDIT: My niece has announced it publicly now so I can put it here…My brother is going to have his 6th grandchild next year…yay, a new baby in the family. Huge congratulations to my niece and her partner xx

Now it’s over to you, what word ‘wraps up’ your week this week 🙂

You are invited to the Inlinkz link party!

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Word of the Week 49 – Hospitals

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Hello and welcome to the home of Word of the Week. A nice and simple weekly linky, with everyone welcome to pop by and share. The idea of the linky is to reflect back on your past week and share it with us. It’s great if you can sum it up in a word or phrase, hence giving us your Word of the Week. My word this week is ‘hospitals’ and you can read more about that below.

I’m not totally strict on using just a word or phrase. But please try to stick to the theme of summing up your week. There are not too many rules with this linky, just remember to read at least another couple of posts in the link up after adding your link. I will read and comment on all posts and tweet them out for you. I also have a Pinterest board devoted to Word of the Week and I will add posts to Mix Please add the badge below to your post so that others may find us and join in. If you comment or tweet then please use the hashtag #WotW

Word of the Week is open from 6am on Friday Morning to 12 noon on Monday. Plenty of time to join in!

If you are unfamiliar with the Word of the Week linky then please feel free to ask any questions. New linkers are always welcome, we love to hear what you have been up to in the past week.

MY WORD OF THE WEEK – Hospitals

Image of a hospital with the word hospitals across in bold lettering.

This week my word of the week is hospitals, in the plural because it involves three different hospitals.

Tuesday The Little Man and Boo went with their Dad to see Star’s genetic consultant. We knew this would happen eventually, the appointment has taken around three years to come through. As Star has a genetic condition they wanted to make sure that Boo and the Little Man were unaffected. It seems that they are okay but there are a few more tests to go just to make sure, including Echocardiograms for both of them. Fingers tightly crossed. I was a little worried about Boo as she has very similar body frame to Star, but the geneticist has confirmed that she is not exactly the same. The main thing being an arm span equal to height.

On Wednesday I was on Facebook when I read some notifications from a local group. Someone mentioned the clinic where I go for my infusions and they blatantly lied about them not taking any COVID precautions, along with a snarky comment about the doctors knowing more about the virus than ‘Joe Public.’ I don’t usually bite on comments like this, but as it’s my clinic where I have been going for over three years, I felt I needed to stick up for them. They have a two door system, they take your temperature on entry and give you a mask if you don’t have one. They have hand sanitizers everywhere, all the staff wear masks on their faces properly and they are the most loveliest bunch of people. I hated to think someone was lying about them. Fortunately, I was not the only person who stuck up for them and the original poster didn’t come back.

I know that not all hospitals are the same, but so far I have not had any issues at all. I’ve visited the main hospital, the rare disease centre, the geneticist, the Children’s hospital and the Cancer Centre for my MRI. All I have seen is hard working staff following all the COVID rules and taking every single precaution.

Today, I won’t be around much as Star has another hospital appointment at the Children’s hospital Out patient department. I won’t go into too much detail right now because we don’t know what’s going to happen, but something unusual came up in one of her tests and they want to investigate further. It could be a number of things, but I am hopeful that she will get the right treatment and we can finally get the issues that have bothered her for years under control.

So, this week is all about hospitals but I’m hoping that the next few weeks will be hospital free. I’m due to go back in on January 4th.

You are invited to the Inlinkz link party!

Click here to enter