I’ve been at the hospital this week and each day on my journey there and back I’ve seen so much blossom, a sure sign that Spring is here. I can’t take photos while in the car, but I did snap this lovely tree just outside the hospital in the carpark.
I’ve already decided that when I die I don’t want a grave stone. I want to be under a Cherry Blossom tree. They do this at the cemetery where my family are buried. I’m not planning on joining them any time soon though.
I’ve been at the hospital getting my IVIG and even though it didn’t turn out to be the miracle cure I’d hoped for but it does seem to be holding things at bay. I don’t seem to get really poorly as often as I did and I’ve definitely eased up on the myoclonus (involuntary jerking) which is a big bonus. The treatment this week has been quite weird but not too bad. I generally get really tired and confused during treatment, and on Thursday I’d convinced myself I was well enough to cook dinner when I clearly wasn’t. But, it’s Sunday now and so far I’ve only had a mild headache rather than the debilitating migraine I’m usually left with. The science bit…scroll on.. I usually have 800ml of IVIG split over 3 days and I’ve been having in bottles of 400ml one day and 200ml over the next two days. This has been because there has been a shortage of 100ml bottles. This week I had 300ml over 2 days and 200ml on the third and it seems to be the best spread of the dose for side effects. I also have it slower than I did at first and every six weeks. I think after six years I’ve finally found what works for me. And it doesn’t wear off too soon before my next dose. I’m feeling real happy about this.
It’s May bank holiday tomorrow and we have the King’s Coronation next week. Do you have plans? We are hoping the weather brightens up enough because we are itching to get the BBQ out. I do think it’s a momentous occasion and I hope my kids realise that they are living through a part of history.
Great photo. I love all the pink blooms 🙂
That is a really pretty tree. So lovely that everything is blooming for you guys. I am glad that the treatment you are having is helping and I hope the side effects wear off soon. The coronation will be on at around 6 or 7 pm on Saturday our time. Which is a perfect time for us to watch but we are going out to see a band. We got the tickets ages ago before we knew the date of the Coronation. I’m disappointed that we won’t be home to watch it.
I agree spring flowering trees are a great exclamation of spring. I’ve never been to a cemetery where you can choose a tree instead of a headstone. I’d go tree with flowers all the way. #MMBC
I have noticed all of the blossom on the trees too, it’s so pretty. I think I would rather be under a cherry blossom tree than a grave stone.
I am glad the treatment is helping a little and that is great news that you only have a headache and not a full blown migraine. x
These spring blossoms look lovely. It is beautiful when the trees are full of flowers. I am glad to hear that treatments help you with your condition.
Have a great week!
#MMBC
I agree spring flowering trees are a great exclamation of spring, its beautiful when the trees are full of flowers.
What beautiful blossom. I’m glad you’ve finally found the timing of your medication which seems to work best.
I hope you manage to get your barbecue out soon! We’ve finally had a few days which have felt like spring.
Ooo I adore cherry blossom, it’s such a beautiful pink 🙂 Thanks for sharing your snaps and for linking up with #MySundaySnapshot.