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Raisie Bay

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Word of the Week 6 – Welcome to Our Sanctuary

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Hello and welcome to the home of Word of the Week. A nice and simple weekly linky, with everyone welcome to pop by and share. The idea of the linky is to reflect back on your past week and share it with us. It’s great if you can sum it up in a word or phrase, hence giving us your Word of the Week. My word this week is ‘Sanctuary’ and you can read more about that below.

I’m not totally strict on using just a word or phrase. But please try to stick to the theme of summing up your week. There are not too many rules with this linky, just remember to read at least another couple of posts in the link up after adding your link. I will read and comment on all posts and tweet them out for you. I also have a Pinterest board devoted to Word of the Week and I will add posts to Mix Please add the badge below to your post so that others may find us and join in. If you comment or tweet then please use the hashtag #WotW

Word of the Week is open from 6am on Friday Morning to 12 noon on Monday. Plenty of time to join in!

If you are unfamiliar with the Word of the Week linky then please feel free to ask any questions. New linkers are always welcome, we love to hear what you have been up to in the past week.

MY WORD OF THE WEEK – Sanctuary

The word Sanctuary imprinted over a photograph of butterflies

I love butterflies, if I had a happy place it would be in a butterfly sanctuary and I would enjoy them flying around and just watching them. I often think of my life and my family in the term of butterflies. We are delicate and always on the verge of breaking, but we keep on flying high and appreciate that life is short.

Last week we were on a slippery slope but just as I thought it couldn’t get any worse we had a hell of a weekend. Our sanctuary of home was disturbed once again.

My eldest son ended up in A&E after falling ill. It’s a long story, and he’s an adult so I won’t go into all the details. But it was a very long and distressing day. My son was okay in the end though and is feeling much better now.

This week has not been so bad. My daughter isn’t well, but again I can’t talk about her. My younger three are getting marginally better. The girls are doing a little more work and the Little Man attending all his lessons…but he’s still not doing his p.e. daily like they have asked. At least they have dropped the wearing school uniform rule they introduced. My Little Man gets dressed each day, but he didn’t want to put his uniform on.

Star has been looking a colleges for when she leaves school and we have found the perfect one with a course she would like. We just have to see if we can get her in. She wants to work with animals so she will start with animal welfare then work along a career course. She doesn’t want to be a vet, but she would love to work in a zoo or an animal sanctuary. We have two ideal places near our home, so fingers tightly crossed.

Our home is our sanctuary and even though times get difficult, and we all get under each others feet, sometimes it just clicks that there is nowhere else we would rather be.

Now it’s over to you, what word or phrase sums up your week this week?

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Word of the Week 49 – Hospitals

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Hello and welcome to the home of Word of the Week. A nice and simple weekly linky, with everyone welcome to pop by and share. The idea of the linky is to reflect back on your past week and share it with us. It’s great if you can sum it up in a word or phrase, hence giving us your Word of the Week. My word this week is ‘hospitals’ and you can read more about that below.

I’m not totally strict on using just a word or phrase. But please try to stick to the theme of summing up your week. There are not too many rules with this linky, just remember to read at least another couple of posts in the link up after adding your link. I will read and comment on all posts and tweet them out for you. I also have a Pinterest board devoted to Word of the Week and I will add posts to Mix Please add the badge below to your post so that others may find us and join in. If you comment or tweet then please use the hashtag #WotW

Word of the Week is open from 6am on Friday Morning to 12 noon on Monday. Plenty of time to join in!

If you are unfamiliar with the Word of the Week linky then please feel free to ask any questions. New linkers are always welcome, we love to hear what you have been up to in the past week.

MY WORD OF THE WEEK – Hospitals

Image of a hospital with the word hospitals across in bold lettering.

This week my word of the week is hospitals, in the plural because it involves three different hospitals.

Tuesday The Little Man and Boo went with their Dad to see Star’s genetic consultant. We knew this would happen eventually, the appointment has taken around three years to come through. As Star has a genetic condition they wanted to make sure that Boo and the Little Man were unaffected. It seems that they are okay but there are a few more tests to go just to make sure, including Echocardiograms for both of them. Fingers tightly crossed. I was a little worried about Boo as she has very similar body frame to Star, but the geneticist has confirmed that she is not exactly the same. The main thing being an arm span equal to height.

On Wednesday I was on Facebook when I read some notifications from a local group. Someone mentioned the clinic where I go for my infusions and they blatantly lied about them not taking any COVID precautions, along with a snarky comment about the doctors knowing more about the virus than ‘Joe Public.’ I don’t usually bite on comments like this, but as it’s my clinic where I have been going for over three years, I felt I needed to stick up for them. They have a two door system, they take your temperature on entry and give you a mask if you don’t have one. They have hand sanitizers everywhere, all the staff wear masks on their faces properly and they are the most loveliest bunch of people. I hated to think someone was lying about them. Fortunately, I was not the only person who stuck up for them and the original poster didn’t come back.

I know that not all hospitals are the same, but so far I have not had any issues at all. I’ve visited the main hospital, the rare disease centre, the geneticist, the Children’s hospital and the Cancer Centre for my MRI. All I have seen is hard working staff following all the COVID rules and taking every single precaution.

Today, I won’t be around much as Star has another hospital appointment at the Children’s hospital Out patient department. I won’t go into too much detail right now because we don’t know what’s going to happen, but something unusual came up in one of her tests and they want to investigate further. It could be a number of things, but I am hopeful that she will get the right treatment and we can finally get the issues that have bothered her for years under control.

So, this week is all about hospitals but I’m hoping that the next few weeks will be hospital free. I’m due to go back in on January 4th.

You are invited to the Inlinkz link party!

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Word of the Week 46 – Struggling

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Hello and welcome to the home of Word of the Week. A nice and simple weekly linky, with everyone welcome to pop by and share. The idea of the linky is to reflect back on your past week and share it with us. It’s great if you can sum it up in a word or phrase, hence giving us your Word of the Week. My phrase this week is ‘struggling’ and you can read more about that below.

I’m not totally strict on using just a word or phrase. But please try to stick to the theme of summing up your week. There are not too many rules with this linky, just remember to read at least another couple of posts in the link up after adding your link. I will read and comment on all posts and tweet them out for you. I also have a Pinterest board devoted to Word of the Week and I will add posts to Mix Please add the badge below to your post so that others may find us and join in. If you comment or tweet then please use the hashtag #WotW

Word of the Week is open from 6am on Friday Morning to 12 noon on Monday. Plenty of time to join in!

If you are unfamiliar with the Word of the Week linky then please feel free to ask any questions. New linkers are always welcome, we love to hear what you have been up to in the past week.

MY WORD OF THE WEEK – Struggling

The word struggling on a brown and red paint affect background

This week my word of the week has been provided by my daughter Star. I asked her for the word of the week and she immediately replied ‘struggling.’ I can’t deny that she has a point.

The girls have not been to school this week, they haven’t been very well and they’ve been struggling to sleep. They are also finding school a struggle. Boo can’t cope with all the changes and Star is struggling because she is supposed to be doing her mock GCSEs but feels she hasn’t learned enough.

We have spent a lot of time doing lessons on Ed Place, keeping up with Maths, English and Science. But the girls are falling further behind and beginning to feel the struggle.

I hope that when they feel a little better they can get back to school and get some more work done.

It’s also been a struggle to get our food this week. I logged on to do my online shop last week and there was nothing available until Wednesday, I normally have a delivery on Monday. I really don’t know where my money goes because I seem to spend more and more on food and we seem to have less and less to eat. It really is a struggle to buy enough to fit our needs. I have my girls at home for lunch every day which works out more expensive and they never know what they want to eat. It was not too bad when it was just Star as she was happy with a sandwich, but Boo isn’t a fan of bread unless it’s home made.

I struggled to finish my last book that I was reading, although I enjoyed it in the end it wasn’t the easy read I was expecting. You can read my review on my other blog here. The Book of Two Ways by Jodie Picoult.

I have been struggling with a shawl pattern that I’m crocheting. It’s a cable affect and it took me three attempts to grasp the pattern, only to find I was missing a big chunk and had to frog (undo) it and start again. Then you turn the pattern around and work along the side. There were 128 rows but I was supposed to do a row of 199 stitches along the side. It’s not impossible, but I’m currently on my fourth attempt.

There are many other things I’ve struggled with this week, so I think Star chose well. I’m just hoping for a nice easy weekend now to relax and forget my struggles. I hope the girls can feel more relaxed too and hopefully we’ll be back to some sort of normality next week. Or should I say, back to the crazy routine I was struggling with last week!

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Word of the Week 42 – Struggle

by 8 Comments

Hello and welcome to the home of Word of the Week. A nice and simple weekly linky, with everyone welcome to pop by and share. The idea of the linky is to reflect back on your past week and share it with us. It’s great if you can sum it up in a word or phrase, hence giving us your Word of the Week. My word this week is ‘struggle’ and you can read more about that below.

I’m not totally strict on using just a word or phrase. But please try to stick to the theme of summing up your week.There are not too many rules with this linky, just remember to read at least another couple of posts in the link up after adding your link. I will read and comment on all posts and tweet them out for you. I also have a Pinterest board devoted to Word of the Week and I will add posts to Mix Please add the badge below to your post so that others may find us and join in. If you comment or tweet then please use the hashtag #WotW

Word of the Week is open from 6am on Friday Morning to 12 noon on Monday. Plenty of time to join in!

If you are unfamiliar with the Word of the Week linky then please feel free to ask any questions. New linkers are always welcome, we love to hear what you have been up to in the past week.

MY WORD OF THE WEEK – Struggle

Photograph of a woman holding a white much with the words on the mug saying 'I Can't Even..' At bottom is a big white word saying 'struggle'

Last week I wrote about the help that we were all getting. This week has been a struggle. We are still battling on though, but I wish life could be simpler sometimes.

I took Star for some blood tests on Monday but it didn’t go well. The nurse couldn’t get any blood and Star nearly passed out. She tried so hard to be brave, but it just didn’t work out. So we were told she’d have to go to the hospital.

She also needed another test which went wrong too. I can’t say too much as it’s personal but it’s been a nightmare. Yes, I’m glad they are testing her, we’ve struggled for a long time and not been taken seriously because of her age. Now she’s older they can see that this is a real problem, not just a kid being awkward. No-one wants another diagnosis for their child, but there are so many things it could be that can be helped with simple medication. Which she can’t get unless she gets a diagnosis.

She can’t have her hospital blood tests done until October 27th, so now we are waiting again.

School Struggles

The Girl’s school has been amazing, but we’ve still found things a struggle. School refusal can be serious and it’s a known condition. I was worried that we may be having further issues from Boo when nothing the school did worked and she became more and more distressed. Shutting herself in her room, not eating properly, not interacting with the family and making herself ill.

The struggle has been uphill but I think we may have reached a peak and yesterday the school tried something new. It seemed to go well, so fingers tightly crossed.

Finally, we have news of the first COVID case in the Little Man’s School. Not in his year, but it’s all very worrying. Roll on the break next week, it’s been a very long term.

Health Struggles

I have definitely been feeling better since having the IVIG, but I still can’t help wishing that it would actually make me better. It’s hard to explain, and I guess any improvement is a good thing. But sometimes, I just wish none of this had happened. I long for my life back…even if I could just have it back for a few more years until my kids grew up.

I think at the moment I’d be happy with 10 years of being who I used to be and then die suddenly, than another 20 years of this (which would still make me younger than my Mum was when she died.) Is that selfish of me. Maybe, but I’d give anything to give my children the life they deserved.

Sometimes the struggles we have can seem overwhelming. But I know we’ll climb those mountains.

Now, does anyone have cure for COVID yet?

Over to you guys, what word or phrase sums up your week this week?

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You are invited to the Inlinkz link party!

Click here to enter

Word of the Week 39 – Relief

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Hello and welcome to the home of Word of the Week. A nice and simple weekly linky, with everyone welcome to pop by and share. The idea of the linky is to reflect back on your past week and share it with us. It’s great if you can sum it up in a word or phrase, hence giving us your Word of the Week. My word this week is ‘relief’ and you can read more about that below.

I’m not totally strict on using just a word or phrase. But please try to stick to the theme of summing up your week.There are not too many rules with this linky, just remember to read at least another couple of posts in the link up after adding your link. I will read and comment on all posts and tweet them out for you. I also have a Pinterest board devoted to Word of the Week and I will add posts toMix Please add the badge below to your post so that others may find us and join in. If you comment or tweet then please use the hashtag #WotW

Word of the Week is open from 6am on Friday Morning to 12 noon on Monday. Plenty of time to join in!

If you are unfamiliar with the Word of the Week linky then please feel free to ask any questions. New linkers are always welcome, we love to hear what you have been up to in the past week.

MY WORD OF THE WEEK – Relief

relief, a picture of a rainbow in a blue sky and the word relief in white letters

On Saturday I got the news I’d been waiting for, My MRI was clear. Walter has left my brain and everything is going to be ok. It took a while but it was such a relief and great news.

Another relief is getting back into the school routine. Well, apart from Star. She has done one day so far. She went in for a meeting on Monday and they agreed to a gradual return to school, just a couple of hours a day and some work sent home. She agreed but then got sick again. In fact she has been really poorly and we had to call the GP yesterday. She now has medication and has had samples sent off for testing. I’m hoping the medication starts giving her some relief soon. Maybe we can get her back to school next week.

There is not many things to feel relieved about in this world at the moment so I’ll take all the little wins I can.

Now it’s over to you, what word or phrase sums up your week this week.

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You are invited to the Inlinkz link party!

Click here to enter