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  1. Rebecca Greenway

    I know parents who have autistic kids and they do such a wonderful job. They have said that diagnosis helps also.

  2. Rebecca Beesley

    Its interesting (And frustrating) to see the parallels in hurdles to diagnosis. When it was clear j needed OT intervention the school would say it was the GP who needed to refer and the GP would say school. Its also interesting to read what you say about the acceptance of whether there is something wrong. With J it was so clear cut once he hit school years but now we’re facing a grey area with another of our children and not knowing whether its right to go down the route of diagnosis or not.

  3. Debbie

    Hi Anne, getting that early diagnosis is crucial to an autistic child’s development. We battled for years to get Greg’s diagnosis, we were told all sorts, his muscle disorder made it easy for medical professionals to dismiss autism, even though his very first therapist suspected he was autistic but didn’t have the power to diagnose him. It’s very much a power game here and rarely do departments work together. When we did finally get that diagnosis I was so relieved, even though no help was forthcoming it meant that I knew what we are dealing with (my husband is still pretty clueless I’m sad to say). They do say that autism runs in families and even without official diagnoses I have a feeling that the quirkiness of my family on my Dads side is probably more than plain old quirks and some behaviours now make sense. Your older son sounds very much like Gregs and it is heartbreaking to see.

    xx

  4. Jayne @ Sticky Mud and Belly Laughs

    Firstly I think you are an amazing mum Anne. I can only imagine the obstacles that you have to face.
    Well done for raising awareness. I am sure there will be lots of parents out there who will find this really helpful.

    Thanks so much for sharing with #MMBC. Have a lovely weekend xx

  5. Malin - Sensational Learning with Penguin

    It is never too late. I know the feeling of “what if…?” when thinking back at early signs, the lack of ambition in a lot of the (fairly limited) support we recieved, and our own reluctance about getting a diagnosis in the first place. But there are a lot of people who make amazing progress later in life too. And the brain is more plastic through adulthood than what was previously thought. So try not to blame yourself or feel too much bitterness over what might have been (I know this is difficult though), and try to keep your focus on the now and the future. Also, I hope your youngest will get the help needed, it sounds so very frustrating with the GP and school passing the buck, grrrr… Big hugs x

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