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Hello and welcome to the home of Word of the Week, a nice and simple weekly linky, with everyone welcome to pop by and share. You reflect back on the past week and sum it up in one word. Then share your word with us in a blog post, with as little or as much explanation as you like.

There are not too many rules with this linky, just remember to read at least another couple of posts in the link up after adding your link. Do try to stick to the theme of summing your week up. I will read and comment on all posts and tweet them out for you. I also have aBuy Discount Tramadol devoted to Word of the Week and I will add posts toGet Tramadol Prescription Online) Please add the badge below to your post so that others may find us and join in. If you comment or tweet then please use the hashtag #WotW

If you are unfamiliar with the Word of the Week linky then please feel free to ask any questions. New linkers are always welcome, we love to hear what you have been up to in the past week.

My Word of the Week

I’ve kept to my promise that I made to myself about getting out of the house more. I’ve been out three times again this week.

Monday, I was in hospital having my IVIG treatment. I’m there for about three and a half hours, sometimes it goes quickly, sometimes not so. This week I was without an audio book so it went a little slower.

Tuesday, we had to go to the Little Man’s school to speak with the Special Educational Needs and Disabilities (SEND) teacher. It is believed that the Little Man does have some kind of autism and is now on the SEND register and we are waiting for his final diagnosis. It wasn’t really a surprise, but it still brings up all sorts of feelings that are difficult to deal with. (I didn’t sleep very well on Tuesday night.) The Little Man, however, is quite happy.

Wednesday, I went out shopping. It was kind of a spur of the minute thing but I had promised to fetch a game for my eldest son and because my daughter ordered it they had refused to give it to Graham. I went along pretending to be my daughter. We also popped into Iceland for a bit of food shopping.

The rest of the week I’ve spent trying to sort out my blog. I’ve still a way to go to get it how I want but this theme allows for a lot of editing so I should be able to tweak it lots.

So, although there has been a lot of things going on this week, I am choosing the word Autism as my Word of the Week. It seems kind of strange that we found out for sure about the Little Man’s Autism on World Autism Day. It is also Autism Awareness Week (or month) and yesterday Get Tramadol Onlineabout what Autism means for our family.

So Now it’s over to you, what word or phrase sums up your week?

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When you’ve met one person with Autism, you’ve met one person with Autism

I can vouch for this, I have three autistic children and they are all very different. As it’s Autism Awareness week I would like to share my stories.

Number One Son

Many years ago I was told that my son was autistic. I had seen the film Rain Man, and that was about as far as my knowledge of autism went.

I went to the library and armed myself with reading material. I researched remedies and hoped there was some cure. Yes, I went down that path! I didn’t want a son with autism, I just wanted my son back.

Then I realised, he was still my son. He hadn’t changed just because he’d been given a diagnosis. Yes, our lives changed, especially where school was concerned, but we carried on and suddenly it didn’t seem so bad. We could do this!

Star

It may or may not come as a surprise but Star’s real name isn’t actually Star. When I started writing this blog she was five years old. I asked what I should call her on my blog and she said Star. So I did, and she has proved to me time and time again what a little star she is.

Star’s autism was picked up much earlier than my eldest son. She was first assessed at the age of three, but not given her diagnosis until she was six. Some girls are able to mask their differences, but Star has always embraced hers and I wouldn’t have it any other way.

Apart from her autism she has had other physical difficulties that we are still trying to get to the bottom of. She has been in for surgery five times, and had to wear a halo vest twice for a total of seven months.

But, although she lost an entire year of school, she is still on par with her peers and attends a mainstream school. She’s about to start choosing her options for her GCSEs and is not fazed at all.

The Little Man

We’ve known for a while that The Little Man has had problems. (Just to clarify, his name is not actually Little Man either.) Right from when he was very small he was different. He didn’t walk or talk until he was nearly two years old. As a baby he liked to lie flat all the time, he hated being sat up. There wasn’t anything wrong with him though, he was just doing it all his way.

He has always had difficulties at school, he gets into trouble for not listening, not concentrating or doing his work.

He has been bullied a lot because he doesn’t know how to interact properly with other children. I’m not saying it was his fault that he was bullied, but young children do tend to pick on kids that do things differently.

This week we have been working with his school on getting him assessed for Autism. He’s already on the school’s Special Education Needs and Disabilities (SEND) register.

The Truth About Autism

Quite simply, autism is different for everyone. My three children are different with similarities. My experiences with all three of them have been different. Other parents of autistic children will have very different experiences too.

Autism Awareness is necessary for people to understand these differences. But most of all, we should understand acceptance. Autistic children and adults just want to live their lives in this world like everyone else, but they may perceive the world differently. A little more understanding and acceptance is all they can ask.

Star is in a very accepting school. The teacher’s understand her needs and although some students might tease her, she has support in place so she doesn’t get upset or overwhelmed by school life. Because she is accepted she is doing really well, she knows what she wants to do after school and I can see she will have a future. It’s not like that for all autistic children, but it should be.

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I will confess, it has a been a difficult couple of weeks. A difficult month actually, when it just seems that everything that could go wrong has gone wrong in the most drastic way possible.

This morning we were faced with something we really don’t deal with very well in our house, a change of routine! Graham had to get up early and take Ash to the vets for his operation. We tried so hard to change the appointment, but 8am is the only time they take the pets in for ops, so there was no option. The vets is 40 mins away by car which meant that Graham would not be able to take the kids to school.

The girl’s should really be able to walk themselves to school but for two problems, a very busy road and Autism.

The Autism looked like it was winning for a while, it’s a good job I set the alarm early to make way for a 15 minute melt down. But, we still managed to get ready and it was Big sister that saved the day. Not only did she get up early to help them across the busy road, but she also instilled a calm in the house which helped Star recover and actually leave the house on time.

The Little Man had to wait for his Dad to return home to take him to school, it’s just too far away and big sister doesn’t even know how to get there (I don’t even know how to get there!) But being at primary school, a quick phone call to tell them he was going to be late and all was okay.

Turning a Corner!

Maybe this morning is proof that we can function (almost) normally as a family? I guess to some people it sounds rather strange me saying that, but the kids all managed to get into school and no-one was killed on a busy road, so I’d say it was a success.

Ash has already started to wake up from his operation and I’ve been told he’s doing fine. So now we just have to get through the rest of the day.

And while I’m feeling positive I can also report that yesterday went quite well too. Another day of disrupted routine, the girls had an inset day, the eldest son had an appointment that I had to attend with him and it was my birthday. Autism (son and daughter’s) almost took over on two occasions but we got in there quick and stopped it. I had lunch out and a take out for dinner, which was way too much food.

I had presents, lots of presents and cake and beautiful designer cheesecakes, and chocolates.

Three individual cheesecakes, cookies and cream, strawberry and white chocolate and Baileys. — Three individual cheesecakes

I had a friend come to visit in the evening and we watched ‘I’m a Celebrity Get me Out of Here’ while making pom poms and catching up.

For the first time in weeks I feel like the bad stuff will go away. We have hard fought for appointments coming up to ease health issues. The stressful things are done and dusted. Now we just have to survive until Christmas.

We can do that can’t we?

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I have two, possibly three children with high functioning Autism.

If your child is not developing properly as a young child or baby then your health visitor will generally lead the way to seeing if your child has autism or other special needs. Often, though, autistic children can slip through the net and diagnosis does not happen early. My eldest child was not diagnosed until he was twelve years old. This was partly my fault, because although I knew he was ‘different,’ I did not know anything about Autism and thought he was just an awkward child.

It’s not easy to admit there is something wrong with your child.

This is often the first hurdle, admitting that your child is different, that something is wrong. With my eldest, both myself and his Dad would not accept that his behaviour was anything other than him being naughty, a typical boy. His Dad would say, “he’s just like me when I was a kid.” But he wasn’t. Well, he may have been, but his difficulties lay much deeper, his problems more complex. They appeared more obvious as he became older and he needed help.

With Star, it was different. I accepted that she was having problems just like her older brother, and had thought that maybe she too was autistic. However, I still kept my thoughts to myself until her teacher at school said she thought she might need further intervention and asked us to refer her to a child psychologist. We did, and she was diagnosed at six years old. That’s a whole six years earlier than her brother. And I’m so glad that we did because she has coped so much better with school than her brother did.

Now, we suspect that the Little Man may have issues. Only it’s hard to admit. Is he autistic or not? We have had suspicions and his early years definitely point to it, but his Dad swears he’s just like him when he was a child (Is history repeating itself?) The Little Man is having a difficult time at school and I’ve suggested we get him some help, maybe a talk with a psychologist, see if he is autistic. His Dad thinks we should move him to another school. I do think that a new school may be the answer for now, but not long term. You’d think that this far down the line it would be easier to admit to there being something wrong, but it really isn’t, not ever.

It’s Not Easy to Get a Diagnosis

This is one area that seems to have gone backwards instead of forwards. It is said that there has been a huge rise in autism diagnosis, but because of the rise it is taking longer for the diagnosis to take place.

With my eldest, I know I held off getting him a diagnosis, but once I’d got past that and arranged for him to see a psychologist, the diagnosis came quite quickly. There was an interview with me and him. A little interview with him (which didn’t really happen because he refused to speak to her.) And a report from his school. That was it, a diagnosis of Asperger’s Syndrome.

With Star, again the diagnosis was fairly straight forward. The main difference was that instead of a report from the school, she was observed at school. Her diagnosis was High Functioning Autism.

Now we are still considering whether the Little Man has Autism or his problems are related to something else. The school has raised concerns so we went to the GP who told us he couldn’t refer him. The next step is to ask the school to refer him for assessment, but as I’ve already stated, the school has already told us they can’t and that it’s down to the GP. Already we are being passed from pillar to post without any help and we haven’t even reached the assessment stage.

Why A Diagnosis helps.

I’ve found with both my autistic children that once they get a diagnosis things start to get better. On a basic level it seems easier to accept that their behaviour is so different because they have a diagnosed condition. They still need disciplining like any other child, but deep inside it helps to know that they can’t help it. School life can also become easier. These days a lot of school have a good understanding of the needs of an autistic child.

With my eldest it was more difficult because the school were unhelpful, they had no idea how to cope with a child with autism and their first step was to put him in the special needs unit.

Some autistic children do not have learning difficulties, my children don’t. Putting my son in the special needs unit was the worst thing they could have done and he rebelled, a lot! Eventually, after several meetings with the school I decided my only option was to take him out and teach him at home. This triggered a whole lot of help that I wasn’t offered before.

He had a tutor that would come to our home and teach him one on one. Then he was given a place at a special school for children who couldn’t go to a regular school. This ranged from children with sickness, broken limbs, emotional problems and young pregnant girls. My son fitted in fine. He didn’t have to speak to anyone or make friends which suited him fine, but he did get to learn and eventually do his GCSE’s. It wasn’t problem free, I lost count of the number of times I had to go and collect him and bring him home because he was ‘acting up’ or being unresponsive. But, it worked for us, much better than his previous school. None of this would have been available had he not been given a diagnosis.

Cheap Tramadol Overnight Delivery about my daughter at school. She goes to a mainstream school which is very good with it’s autistic pupils and she is getting along fine.

The Future

The future is the unknown with any child not just autistic ones. But deep in your heart, when your child is autistic you have to accept at some time that the future may not turn out the way you wish it to. If your child is high on the spectrum then you will probably realise that your child will always be with you and the independence you would normally expect your child to achieve someday may never happen.

With a high functioning child, or one low on the spectrum you may have hopes that they will achieve some independence. When my eldest was 19 yrs, he was put forward to a scheme of independent living, where he would have had his own little apartment but still have someone keeping an eye on him. The decision was that he wasn’t suitable for the project. Half of me was relieved, it’s hard to let your child go, but the other half was disappointed that he couldn’t go out into the world and fend for himself (or partially fend for himself at least.)

Star, has ambition, and I do hope that one day she achieves a lot more than we expect. But although I’ll encourage her all the way I will always know that her autism is the hurdle we will have to overcome if she is to achieve independence. I guess, I have learnt my lesson. A little too late.