I love the Greatest Showman, and This is Me has to be the most inspiring song. I can relate being disabled as it’s particularly aimed at those who are perceived to be different. But my story goes much deeper than my disability because I also have three children on the autistic spectrum and one with Elhers Danlos Syndrome. We have had a lot to deal with over years, but we march along to our own beat of the drum and will never apologise for being different.
A Brief Introduction (This is Me)
If I wrote a book of my life it would probably have many different volumes. I had a very interesting childhood, tinged with a loss and change. Then married young and being a young mother again my life took a different turn. I went into higher education later than most and got my degree at 34 years old.
My older children grew up and I don’t talk about them here but I do have two adult children who still live at home with me and continue to add colour and variety to our life.
I met Graham, my current husband, in 2001 and we got married in 2016. We had three children who have blog names, Star born 2005, Boo born 2007 and The Little Man born 2010. I’ve been writing here on Raisie Bay since 2011.
I am Brave, I am Bruised, I am who I’m meant to be.
Ok, I’m not always that brave, I don’t feel brave, but I’ve dealt with a lot over the years and I don’t care anymore what people think of me. I was struck down on January 1st 2016 with a rare condition. Originally mis-diagnosed with Transeverse Myelitis, I was later told I had Stiff Person Syndrome plus PERM.
It’s a progressive condition so I won’t get better, but I do my best, along with my consultant to keep it under control. The condition has left me unable to walk unaided and even aided I can only manage to walk for a very short period. I feel pain constantly, which you do kind of get used to. Occasionally, I don’t deal with it very well.
I get treated by a bucket load of medication and infusions of human plasma called Immunoglobulins. (IVIG) These help to keep me going.
I Know There is a Place For Us
This is me, it’s my place, my little spot on the Internet where I blog it all out. I also have another blog where I post most of my book reviews and affiliate posts as well as things that keep me happy while spending most of my life stuck at home.
This blog has been going for nine years and it’s recorded my little ones growing from babies to teens (Apart from The Little Man, at 10 years he’s still my baby.)
Each Friday I run a Word of the Week linky which has also been going for years and I love doing it. I also take part in My Sunday Snapshot and The Ordinary Moments on Sunday. I also take part in a Chronic illness link up each month were I go into more detail about my condition following writing prompts given.
To join in with Blogtober just pop on over the Mandi’s page using the badge below, or check out the Facebook page I’m looking forward to reading some great posts and hopefully getting to know some new bloggers.
I will definitely check out your word of the week linky!
This is a very lovely introduction into you! Thank you for sharing.
Jupiter Hadley recently posted…Blogtober Tag 2020 – Our First Blogtober
Welcome back! So lovely to catch up with everyone, and this song is definitely your song! I didn’t know that you hosted word of the week, I shall do my best to join in going forward.
I also gained my degree later, I started it in 2002 with two children and completed it in 2008 when I had 5, I can’t say I miss the late hours of studying and sitting yearly exams whilst heavily pregnant wasn’t fun, but I feel glad that I achieved it.
And 10 year old is definitely still a baby, I still refer to them all as my children until the two eldest point out they are 20 and 22! looking forward to hearing more about what’s been going on during the next month x
I had a 16 year gap between kids so I fitted my degree in then, a bit easier 🙂 x
Lovely to meet you I get about the disability part my Daughter has ME, Fibromyalgia and IIH she has been assessed for EDS as well but just on the border of that. Lovely to meet you and look forward to finding out more about you x
This Is Me is the perfect song to relate to you and your family! I love the Greatest Showman too.
You are brave! You have had so much to deal with over the years and are always so positive even in the darkest of times. x
Kim Carberry recently posted…This is me. #Blogtober20
Thank you Kim, I’m a miserable cow in real life 🙂
Here we are again. Looking forward to catching up and reading your posts. I will check out your book blog too.
Jo recently posted…20 Books for Christmas 2020 Reading Challenge
Yes, I’m still working on my 20 books, but I don’t think I’ll read that many, I’ll try my best.
I do keep meaning to join your Word of the Week linky !!!! Fab post !#blogtober20
You would be most welcome 🙂
It’s nice to meet you! Good luck with Blogtober.
Thank You Natalie
I forgot all about word of the week – I used to love your linky many moons ago. I must link up again soon! #Blogtober
Do come and link up when you have time, we have a lovely community.
Great to connect, looking forward to reading more over blogtober.
Great take on the prompt! I agree there’s no need to apologize for who you are. I think I forgot to comment on your post about Blogtober but it was you who introduced me to it.
Astrid recently posted…This Is Me: Beyond the Labels #Blogtober20
Oh that’s great, I hope you enjoy it.
i have aspergers and m.e .
Lovely honest words thank you for sharing, I look forward to reading more of your blog xx