Hello and welcome to the home of Word of the Week. A nice and simple weekly linky, with everyone welcome to pop by and share. The idea of the linky is to reflect back on your past week and share it with us. It’s great if you can sum it up in a word or phrase, hence giving us your Word of the Week. My word this week is ‘struggle’ and you can read more about that below.
I’m not totally strict on using just a word or phrase. But please try to stick to the theme of summing up your week.There are not too many rules with this linky, just remember to read at least another couple of posts in the link up after adding your link. I will read and comment on all posts and tweet them out for you. I also have a Pinterest board devoted to Word of the Week and I will add posts to Mix Please add the badge below to your post so that others may find us and join in. If you comment or tweet then please use the hashtag #WotW
Word of the Week is open from 6am on Friday Morning to 12 noon on Monday. Plenty of time to join in!
If you are unfamiliar with the Word of the Week linky then please feel free to ask any questions. New linkers are always welcome, we love to hear what you have been up to in the past week.
MY WORD OF THE WEEK – Struggle
Last week I wrote about the help that we were all getting. This week has been a struggle. We are still battling on though, but I wish life could be simpler sometimes.
I took Star for some blood tests on Monday but it didn’t go well. The nurse couldn’t get any blood and Star nearly passed out. She tried so hard to be brave, but it just didn’t work out. So we were told she’d have to go to the hospital.
She also needed another test which went wrong too. I can’t say too much as it’s personal but it’s been a nightmare. Yes, I’m glad they are testing her, we’ve struggled for a long time and not been taken seriously because of her age. Now she’s older they can see that this is a real problem, not just a kid being awkward. No-one wants another diagnosis for their child, but there are so many things it could be that can be helped with simple medication. Which she can’t get unless she gets a diagnosis.
She can’t have her hospital blood tests done until October 27th, so now we are waiting again.
The Girl’s school has been amazing, but we’ve still found things a struggle. School refusal can be serious and it’s a known condition. I was worried that we may be having further issues from Boo when nothing the school did worked and she became more and more distressed. Shutting herself in her room, not eating properly, not interacting with the family and making herself ill.
The struggle has been uphill but I think we may have reached a peak and yesterday the school tried something new. It seemed to go well, so fingers tightly crossed.
Finally, we have news of the first COVID case in the Little Man’s School. Not in his year, but it’s all very worrying. Roll on the break next week, it’s been a very long term.
I have definitely been feeling better since having the IVIG, but I still can’t help wishing that it would actually make me better. It’s hard to explain, and I guess any improvement is a good thing. But sometimes, I just wish none of this had happened. I long for my life back…even if I could just have it back for a few more years until my kids grew up.
I think at the moment I’d be happy with 10 years of being who I used to be and then die suddenly, than another 20 years of this (which would still make me younger than my Mum was when she died.) Is that selfish of me. Maybe, but I’d give anything to give my children the life they deserved.
Sometimes the struggles we have can seem overwhelming. But I know we’ll climb those mountains.
Now, does anyone have cure for COVID yet?
Over to you guys, what word or phrase sums up your week this week?