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  1. Emma

    oh wow I read this as i came fromyour comment on Actually mummys blog I read, I nodded as we too have sent our baby down for four hours worth of surgery for it to take much longer as she stopped breathing, had an asthma attck a;ll whilst they worked on her dislocated hip. The then EDS 111 stuck and I gulped. We are here too, Not yet diagnosed with EDS but with HMS but EDS is more likely (one and the same and all that) eughhh

    • Anne Stone Sweet

      Oh Emma, any operation is scary enough, but when it takes so much longer it's terrifying isn't it. Thankfully my girl is copping well, we take one day at a time. It's taken us 6 years to get an EDS diagnosis though. xx

  2. Actually Mummy...

    It's the most soul-destroying feeling when you realise your child has a serious health condition. People compliment me on being brave, and tireless, but it's just what you do, isn't it? As a parent you can't stop doing the very best you can for your child – it's just not thinkable. I can't imagine the anxiety of a long operation for your child. Thanks for coming to visit my post too x

  3. Paul Quinn

    It must’ve been quite a harrowing experience for you, but it’s great that you opted to look at the brighter side of things, rather than fixate on the worrisome parts. Also, it's a relief that the medical care and supervision was on point and dealt with things to the utmost of their ability. Anyway, I hope that you guys are doing well these days. Good day!

    Paul Quinn @ MedCare Pediatric

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