This Week I am Waiting

New Sofas

Do you remember my new sofas from six weeks ago? Well, even though I really like them, the rest of the family had mixed feelings and now we have ended up swapping them. We had to wait for the new ones to be made but I think they are worth it. The new sofas are a bit different because even though they are leather, they have fabric seats and backs. (Not cushion backs, I’m sorry but they would drive me insane.) They arrived on Monday morning at 7.30am. Just as we were getting the girls ready for school!

I believe everyone is happy with the new sofas. Well they had better be, I’m not changing them again. I’m just glad I was able to change my mind with no issues this time.

Sports Day

The girls are having sports day this week and they are both really excited about it. I was never a sporty person and I hated P.E. and sports day. The only game I really liked playing was rounders. I was good at the long jump, especially having longer legs, I barely had to put in any effort to get further than anyone else. I was rubbish at short distance running as I was a slow starter. I did manage to keep up stamina in longer races though. I can’t remember ever winning anything.

School sports day these days are much more fun, and the girls love them. Star can’t take part in a lot  because of her Elhers Danlos Syndrome. She suffers from tiredness, dizziness and joint pain. She does try as much as possible though and still has fun. The school is brilliant with her, if she says she can’t go on they let her stop.

Boo loves sport, she’s not the best at most things but she tries really hard. I’m hoping that she wins something as I know she will get a real boost if she does. I’ll be waiting impatiently to hear how she does. Daddy is going to watch her.

Update: Both girls had real fun on their sports days, no medals were won but they really enjoyed themselves. Boo did get a trophy at the year six leavers assembly, for being ‘Artfully Creative.’ Now, I’m waiting for them to come home from their last day at school…yay!

Holiday

It feel like I’ve been waiting for this Summer holiday for so long! We really deserve a rest from school. Can you believe, I have spent a whole term home educating the Little Man. He’s done really well and we have folder full of work to show the LEA when they come to check on him. As well as all the curriculum work we’ve also enjoyed learning about electronics, rainforests and magnets. We have even fitted in a little Quantum Physics!

He’s been reading a longer book than usual, Kid Normal by Greg James and Chis Smith. We can’t wait to see how the book ends.

The summer holiday is looking really exciting for us. We start with Boo’s birthday, I’m not sure what we will be doing yet but I do have her presents. Then we have a charity gig to go to and Graham will be on stage doing his part.

Next up is the Little Man’s birthday and I’m really hoping we can get out for the day. We have yet decided where to go  but I’m sure it will be fun. I have most of his birthday gifts ready.

Mid August we will be going on holiday, it’s a camp in Devon that we went to 8 years ago. Before the Little Man was born. We had such a brilliant time there that I’ve been waiting for a chance to go back and now I won’t have to wait too much longer.

After the holiday we still have some excitement as it will be Star’s birthday before they go back to school.

Rain

I think that when it rains it’s going to be so welcome as we’ve waited for so long now. It’s just not the way we expect our summer to be is it. We had a tiny bit of rain the other day, I was actually sat in the garden and felt it. Sadly, it was not enough to even leave the patio wet.

I want to it to rain now, a nice big downpour to bring back the green!

Then it can go away again and give some more weeks of glorious sunshine. I’ve never been a summer lover but I have to admit, I’ve felt so much better in the heat, the usual aches and pains are really not so bad. I can see why chronically ill people decide to move to hotter climates.

IVIG

IVIG, is the treatment I receive for my condition. I have it by infusion in hospital once a month and it seems to be helping. Before I used to have to wait 3 months for a treatment, but the monthly one is working much better so I’ll be telling my consultant at my appointment in October. I have been waiting patiently for my consultant appointment, I’ve been doing some research and want to ask him about some other treatments.

There won’t be too much waiting for my next treatments though. I have one next week and another the day before we go on holiday, how brilliant is that! Having it monthly also seems to reduce the side effects because the dose is smaller.

 Waiting

Hand holding a watch

Photo by Jaelynn Castillo on Unsplash

My word of the week this week is waiting because I’m waiting for so many things, thankfully they are all good.

 

Debs Random Writings
The Reading Residence

 

17 Comments

  1. July 20, 2018 / 10:36 am

    Lots of good waiting! Your holiday plans sound lovely, and with three birthdays to celebrate they are bound to be exciting! Glad you’re all happier with your new sofas now and that Sports Day went well for the girls x Thanks for sharing with #WotW

    • Anne Sweet
      Author
      July 22, 2018 / 11:15 am

      Yes, we do tend to have exciting summers, but this is the first time we’ve saved our holiday for the summer time. I just hope the weather doesn’t change before we go away. Although, we will still have fun even if it rains all week. x

  2. July 20, 2018 / 11:22 am

    Hooray for the new, new sofas. hehehe
    It sounds like sports day went well. Congrats to Boo for the trophy…
    Little man is doing so well being taught at home.. I am so ready for the school holidays.
    I hope you got some rain. We had some mid week and it was lovely!
    It sounds like the treatment is going well.

    • Anne Sweet
      Author
      July 22, 2018 / 11:16 am

      Twice now it’s rained, but both times it’s been a really light shower and not helped much at all. I don’t want it to start bucketing down now, but a nice shower overnight would be really nice 🙂

  3. July 20, 2018 / 11:29 am

    Oh I loved catching up on your week 🙂 It’s currently raining here and I can hear it bouncing off the conservatory. Hoping it’s on its way to you too! #WotW

    • Anne Sweet
      Author
      July 22, 2018 / 11:17 am

      We had a conservatory when I was little and I would rush in their every time it rained and write poems. 🙂

  4. July 21, 2018 / 8:25 am

    It sounds like you have a fun and full summer planned Anne, I’m always in awe of how well you manage to pack it all in. Great news about the treatments, they seem to be helping you which is fantastic. Have a lovely weekend x

    • Anne Sweet
      Author
      July 22, 2018 / 11:18 am

      Sometimes it feels like I don’t do much at all, but I’m excited about all the plans this summer, thanks to my treatments I should be able to manage everything. 🙂

  5. July 21, 2018 / 10:45 am

    Aww such a good post full of happiness. So good that you have had a lovely week and I hope you have a fantastic summer holidays X #wotw

    • Anne Sweet
      Author
      July 22, 2018 / 11:18 am

      Thank you, I hope you have a great Summer holiday too 🙂

  6. July 21, 2018 / 4:29 pm

    Hi Anne, you were so lucky you could change your new sofa! Or does it come with a comfort guarantee?… We really need new sofas too, they are so old, but as they are comfy we are hesitant. We really should look into covering them… Sports days should be about children having fun. Of course, someone has to win and lose, but that’s part of life and it’s how it’s done that is most important. A person who comes last after having given their all is someone who can hold their head up high as they know they did their very best… A big congratulations to Boo. Is she your daughter who decorates the cakes… You have done yourself proud home educating your son, but where has the time gone? I remember when you too him out of school. Is that book by the two Radio One DJs? I just recognise the names and they were funny. I loved their banter but hated the music, so now I listen to Radio two!… Where in Devon are you going? I grew up in Devon and we did enjoy camping holidays on our doorstep and in Cornwall too. It is a beautiful part of the UK… Be careful what you wish when it comes to the rain, once it starts it may not stop. Or wish for rain only at night?… I am so glad to read that the change in your treatment has benefitted you. And having a treatment just before you go away sounds perfect… And don’t forget that good thing come to those who wait!

    Thank you for shat=ring your week with #keepingitreal

    xx

    • Anne Sweet
      Author
      July 21, 2018 / 10:19 pm

      Hi Deb, yes the book is by Radio One DJs and it’s really funny. We are going to Devon Cliffs holiday park in Sandy Bay. We usually don’t go so far south like Somerset or Dorset, I’m just hoping we survive the longer journey 🙂

      • Anne Sweet
        Author
        July 22, 2018 / 11:23 am

        And the sofas, well we bought them from a place that offers credit to anyone, at a huge price, and you don’t actually own anything until you’ve made the last payment. This means that you can return anything at any time, but you don’t get the money back you’ve paid. I’m looking at it as we rented the sofas for a few weeks. The new ones are from a big store, the credit was much better and I’m now paying £20 a month less for a year less, and they are so much nicer.

  7. July 23, 2018 / 4:20 pm

    Sounds like you are going to have a fun filled packed Summer. Hope the treatment continues to work out for you. #keepingitreal

  8. July 26, 2018 / 6:58 am

    It certainly sounds like you have lots of lovely things to look forward to over the summer. I’d quite like a bit of rain too – just to stop everything looking so thirsty. It is nice to have such good weather though. Glad that your treatment is working so well for you too and that you are feeling so much better in this weather. #WotW

  9. July 26, 2018 / 4:56 pm

    I missed the original sofas, but pleased to hear you’ve got ones now you’re happy with. Sounds like the home ed is going really well. Enjoy the summer holidays and hopefully there will be some rain soon #keepingitreal

  10. July 28, 2018 / 1:40 pm

    I am so glad the treatment is working Anne it must be such a huge relief. I so miss sports days, high school is not as much fun at all. I hope you hear soon about little mans school and that he has a great birthday. We have never been to Devon before it has been on the list for ages but we just haven’t got there x

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