I left you last week with my memories of our lovely holiday in Devon. The family has decided that next year they would like to try a Butlins holiday camp instead. My anxiety over this is rising, but I know I will do it if I can. First up, I do have many experiences of Butlins Camps and they have been very crowded and busy. Also, I don’t like chalets, I really don’t, so our accommodation will have to be something else, and it will have to be ground floor and accessible. This means the cost is going to be much higher. If I start now, I can be prepared, I hope.
Back To School
It’s back to school week this week for most and I’ve been getting everything prepared. I left the uniform shopping a little late, but I think I have everything now. (I’m still waiting on Boo’s p.e. trousers as they were out of stock in her size, so I hope she doesn’t have p.e. on her first day back.) We went to get their new school shoes and were shocked to find that Boo has bigger feet than Star! There is nearly two years between them and Star is much taller, but Boo has the bigger feet and you know what that means? Yes, we had to buy her bigger shoes. It’s only half a size so I’m glad they chose completely different shoes so they won’t get mixed up.
It’s just six weeks until the awareness day for Stiff Person Syndrome and I am on the team for promoting this day. I run the Twitter account and I have prepared some photos with facts to tweet out on the day, twenty of them to be precise. I am also preparing a video with little statements from several Stiff Person Syndrome sufferers. I have a list of everything I need to do to make sure I am fully prepared. I’m also hoping that the new website will be ready in time, but I’m not in charge of that. I will be helping to promote it though. Awareness is the key, the more people that know about our condition the easier diagnosis will become and maybe one day we’ll even get someone interested in researching cures and treatments. It’s all preparation for future generations.
My word of the week this week is prepared. That makes a change for me.