Déjà vu

Last week I was back a the hospital to see a different Doctor. I almost got the times wrong but thankfully I checked at the last minute. I seem to be doing that a lot lately, getting times wrong and missing appointments. Or just simply forgetting to do something that I’d promised to do. Anyway, as usual I left the hospital feeling that it was ‘all in my head.’ Why do they do that, unless you are actually at death’s door Drs just don’t want to listen. I had symptoms of my illness for about three years before I lost the use of my legs, but no-one would listen. What if they had? Would I still be able to walk now? Why does it keep happening to me?

It also surprises me at how little attention my condition warrants from doctors. I mean, I have an ultra rare condition that barely any doctor has heard of. I have been diagnosed by a very reputable neurology consultant, it’s not something I made up. If I was a doctor I’d think, ‘ooh that’s interesting I’ve never heard of that, tell me more.’ But they show so little interest, they don’t even ask how it affects me. I sometimes wonder if they would show more interest if I gave it it’s original name Moersch and Woltman Syndrome, maybe Stiff Person Syndrome sounds a little naff to them. The Doctor I saw was also under the impression that I was still diagnosed as having Transverse Myelitis, maybe he knew what that was.

Grumble over, I am having further tests, just in case. Fingers crossed that the doctor is right and there is nothing to worry about. In the meantime I’m going to assume it’s all in my head, and use my head to stop it!

It Happened Again

On Saturday, me, Graham and the Little Man had to go and see a specialist doctor about our injuries from our car accident a month ago. The girls stayed home with their older siblings. We were at the surgery for about an hour, then did a little shopping before coming home.

Graham bought a packet of peanuts to eat in the car. He said the last time he bought peanuts was when we had our crash. I just had to point out that our crash also happened on a Saturday afternoon and there was just the three of us in the car.

Just a few minutes away from home, Graham stopped by a parked car because there was another car coming up the other way. Then, crash! Someone went straight into the back of us. Again! 

Thankfully, it was not as bad as our last crash and I did not need to be stretchered off in an ambulance. The Little Man was upset but unharmed, so there are always things to be thankful for. Tell that to the car hire company that is loaning us the brand new Mazda while our car is still being repaired from the last crash! 

Busy

As for the rest of the week, I’ve been pretty busy. As well as going out Friday and Saturday, I also had to go out on Monday and today, Tuesday. I think I may need the rest of the week being glued to my settee. That probably won’t happen though because today it’s treatment day so, as long as I avoid the side effects, I’ll probably be feeling pretty good for the next week or so. 

As well as going out I’ve also managed to finish two crochet projects. One is a Christmas present so I can’t show you that. But I’ll show you a pic of my blanket which took me ages. It’s a gorgeous soft wool and I love the colours. I crocheted it in diamonds and then had to sew them all together. It’s the first time I’ve done this type of project and I found it hard work. I am happy with though.

a crochet blanket in red, white and blue diamonds

Debs Random Writings

11 Comments

  1. November 13, 2018 / 12:23 pm

    That blanket is stunning.
    As for the Doctors indifference, I agree there has to be a clinical detachment of sorts. I just could never be that indifferent to people suffering. #KeepingItReal

    • November 13, 2018 / 12:32 pm

      Thank you Jo x I guess I do understand the doctors indifference, and after three years of my illness and two with my daughter, I really am used to it. I just think that if I was a professional and someone came in with something I’d never heard of, I’d really want to know more. So far I have had only one GP get interested in my condition and he showed much delight in looking it up and reading about it. x

  2. November 13, 2018 / 3:50 pm

    I didn’t realise stiff person syndrome could be triggered by sudden noises so I can image having two crashes would cause you a lot of problems on top of your day to day health worries. I’ve been diagnosed with an auto immune disease jsut running through a million and one tests now to find out which way, it’s all so very tiring isn’t it? #keepingitreal

    • November 14, 2018 / 11:25 am

      I’m so sorry to hear that Suzanne, I do hope they find out what you have and how to deal with it soon. I remember having a million and one tests the first year I got sick, it’s not much fun. And yes, I really don’t deal with sudden shocks well at all x

  3. November 13, 2018 / 7:13 pm

    Oh my goodness. I can’t believe someone else crashed into you. I am so glad you are all OK. At least it wasn’t in your own car.
    That blanket is gorgeous! I love the colour. x

    • November 14, 2018 / 11:27 am

      Oh, yes, it would have been a shame to smash up poor Bernard after all he’s been through. It’s rather touching that the garage phones me every week to let me know how he’s getting on. He’s had some major work done. Thanks for the blanket love x

  4. November 14, 2018 / 8:47 am

    Your blanket is lovely. Well done. Sorry to read that you are having a rough time of it lately. I hope things improve – and definitely no more car crashes!

    • November 14, 2018 / 11:28 am

      Thank you Lisa, I’m done with going out for a while now, I’m a nervous wreck in the car, thank goodness I’m not driving!

  5. November 15, 2018 / 2:07 pm

    No more car craches I wish youu

  6. November 18, 2018 / 10:57 am

    Hi Anne, we were fobbed off by doctor after doctor trying to get a diagnosis for Gregs, so I feel your pain (not literally, of course) and it is so frustrating too. I too hope that you are imagining things and nothing comes of your concerns (meant respectfully!)… Oh no! Little Man will be put off from getting into ever getting into a car at this rate! Shopping on a Saturday should be avoided by you too! Glad no one was hurt this time, though… You’ve done a good job of that blanket. It’s different. The weather is so miserable today I plan to get my crochet out later and see if I can make progress on my gloves!

    Thank you for linking up with #KeepingItReal

    xx

  7. November 19, 2018 / 12:22 pm

    You are certainly very talented. I also know how frustrating the doctor’s can be and they think it’s ok to keep you waiting! #keepingitreal

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A little Note About Positive Reviews on Raisie Bay

A little Note About Positive Reviews on Raisie Bay

Some people only write reviews when things go wrong with products, which is good because it lets people know that there could be potential problems. I’ve also seen negative feedback with say things like, I had to return this item because the colour did not suit me…is this useful?

I write reviews on most items I buy because I like to give genuine feedback. If I have a genuine problem with a product I will write my review in the appropriate place.

I write reviews on my blog too, but they are mostly positive. Why? Because I only write reviews for the things I’ve loved. If I don’t love them I let the person who sent me them know with details why and then let them decided if they would rather me write a negative review or not write one at all. It’s always the latter.

This is my blog, my place and I’ll let you know about the things I love. If you want to find out what other people have hated about the product then you will need to look elsewhere.

My reviews may all be positive, but they are still genuine.