Raisie Bay’s Series of Unfortunate Events, (and some good ones.)

Well, it’s February already and it’s cold! But…we haven’t had any snow, nope, none of the white stuff here.

It Started Well

Last week turned out to be pretty busy with the girl’s parents evening and the visit to the school’s SENDco. I really don’t like going out when it’s cold, but popping from the car into the school isn’t too bad.

The week passed okay until we got to the weekend. Saturday was fine, the kid’s had a good day with very limited laptop time. I am worried about the amount of time they spend on their laptops on the weekend, so we’ve decided to ration it. They helped with the housework and cooking and played with toys, read books and watched a little television. Boo is really into Lemony Snicket’s Series of Unfortunate Events. Oh my, it’s so dark, those poor children having to fight off the evil Count Olaf’s schemes every episode. Even the website states ;


All of the stories about these three children are unhappy and wretched and will most likely fill you with deep despair

She is wanting the books to read now, I’m divided on whether you should read books before watching the series or film, but I guess it’s too late for Boo now. I’ll get her the first book and see how she gets on.

Then the Sickness Struck!

On Sunday, Star was feeling under the weather, just laying around, not doing much. As the day wore on she became really hot and felt ill. I sent her to bed with some paracetamol and she managed to sleep through until about 5am. Then she got into bed with me, something she’s not done in many years. We got up at six on Monday and it was obvious she wasn’t well enough for school. She had a really awful day, and I had to change my hospital treatment to another day as I didn’t want to leave her, and I didn’t want to risk transferring the sickness to other vulnerable patients at the hospital.

Then Boo came home from School and went straight to bed because she felt ill. The pair of them are off school today, Tuesday. I’m just hoping the Little Man has avoided it. I’ve kept him away from his sisters but you can’t really stop these bugs once they start. Eldest son has caught it, eldest daughter has been hiding in her room when she’s been home. Graham said he feels unwell. If I get it then I won’t be able to go to hospital tomorrow either.

The Bad Tooth

I went to the dentist 3 months ago and she said I needed a filling in one of back teeth. She put in a temporary filling and made me an appointment in 3 months to have it filled properly.

The temporary filling came out at Christmas time while eating a crisp. It didn’t hurt, it hadn’t hurt before the filling was put in.

Then last week it started hurting. I think I had some food in it because it felt better after flossing and cleaning. But the pain came back and I’ve been counting the days until my appointment.

I went back to the dentist and she took a look. Apparently the tooth is so bad now it needs removing, as does the tooth next to it! Then she told me she couldn’t do it because I’d have to be monitored with the anaesthetic because of my medication. So now I have to wait for an appointment at the dental hospital. She did put another temporary filling in though, so I’m only eating soft food until it’s sorted. I hate tooth pain, isn’t it unbearable?

In other News

I finished the blanket I was making with a ‘Crochet Along’ Each month we were given a different pattern to make a square (or two) and then last week it was time to sew them all together and crochet the border. It’s not perfect but it’s so colourful I love it. And more importantly, it’s incredibly soft and cosy. Here is Boo modelling it, she was feeling poorly at the time, but said it was okay for me to take a photo while she pretended to sleep.

Little girl sleeping on sofa covered with a patchwork crochet blanket
CAL Blanket

I’ve also finished the Dragon Hooded Scarf that I was making, and now I have to decide whether to start another blanket or get on with the axolotl pattern.

In the meantime, I’m hoping the sickness bug passes quickly and that I don’t get it so I can go to hospital tomorrow.

Thanks for reading x

Debs Random Writings

First Birthday of the Year

It turned out to be quite a busy week last week. Well, busy in my terms anyway, compared to not doing very much at all.

I had to go out and buy my first born some birthday cards which is always a task. Do you think I can remember how many siblings he has and which card will be appropriate for each one. You may think it easier to take them to choose their own, but I think I’ll pass on that and get them myself. Cards purchased I decided to pop into nearby M&S to buy a birthday cake. The choice was not brilliant and despite us being a large family, I couldn’t really justify buying a cake for sixteen. What I did buy was a chocolate tray bake which looked really nice, and was already cut into portions so no arguing over who gets the biggest slice.

I also popped into Boots to look for something a little extra for my son and discovered that they had a lot of their Christmas gifts on sale for half price. So I stocked up! I’ve got a few family birthdays in the next three months so that will save me loads.

I really enjoyed the shopping trip. It’s good when we go somewhere newly built because they always accommodate wheelchair users, sliding doors and no steps are such a bonus that walkers take for granted. The only problem I did have was that it was so cold I lost all feeling in my legs. It was a struggle to get back in the car afterwards.

The Birthday!

My son’s birthday arrived, but his birthday present didn’t. I’d ordered him a really nice gift online over a week ago and it didn’t turn up in time. I don’t like late presents, I believe that everyone should have gifts to open on their birthday and not have to wait, even if the gift is worth waiting for. I had however, stocked up on some gifts on the previous days shopping trip, so he had some to enjoy. Then when his main gift arrives it will be an extra treat.

As it was his day he decided that he wanted us to go out shopping so off we went again. Thankfully the weather was a little kinder which meant I didn’t suffer so much, but after spending two hours walking around he still didn’t buy anything.

We got home, picked the kids up from school and then it was time to go our for our dinner. He’d chosen Frankie and Benny’s for his treat. The restaurant is only a few miles from our home but as there are seven of us and our car is a five seater, we had to order a taxi. But, no-one wanted to go in the taxi (well apart from the Little Man who thought the car looked like a Lamborghini) so an argument was brewing. It was sorted eventually though and we all arrived at the restaurant at basically the same time.

a soda float drink in the foreground with a little boy tucking into his dessert behind it

The food took ages as the restaurant was very busy. It seemed every five minutes the lights went down and they played Happy Birthday to someone while taking them a cake with candles. My son would have walked out if I’d arranged that for him, thankfully I know better. In fact we had a poll while we were there, Boo, Star, No1 Son and Eldest Daughter said ‘no way,’ but me, Graham and the Little Man said we would enjoy it.

We all enjoyed our meals, with everyone ordering something different which just goes to show how difficult I find it making meals that please everyone at home.

Going Home

Then it was time to leave and to stop the argument with the taxi again, Graham said he’d make two journeys. He took the girls home first while I stayed with my two sons. We waited for the bill (ouch!) and then walked over to the arcade that was in the bowling alley opposite. As soon as we were in there I was reminded of summer holiday camps. The kids love nothing more than walking around amusement arcades playing all the games and trying to win toys from the grabber machines. We were not in there long though, Graham was back and looking for us.

When we got home the birthday boy went in first and the living room was in darkness apart from the candles on his cake. Then the girls jumped out and yelled Happy Birthday! He’s not one for surprises but this was so lovely I think he really liked that they had thought to do it.

After all that we had eaten, do you think we could manage birthday cake? Of course we could!

The Aftermath

It had been a couple of really busy days and I’d been out two days in a row. I had to pay the price, my body gave up completely and I spent a whole day doing ‘absolutely nothing!’ I always feel guilty, like I’m deliberately being lazy, but I have limitations, and boy do those limitations hit me hard.

By the next day I was feeling more rested and able to move a little. But, when I get knocked down like that, I worry about doing anything that will make the pain come back.

Thankfully, I’m feeling much better now and ready to face the week ahead.

January

So, January is almost over, but Christmas seems like it was a lifetime away. I’m one birthday down already, and the rest of the year is laid out ahead. So much to do, so much to see, so many new friends to make. How can anyone feel depressed in January when it’s a whole new beginning?

Now, I’m longing for Spring and warmer weather. I want to see flowers and leaves on the trees. I want to feel the sun warm my bones. In my Autumn years I’ve turned into a Summer person. All my life it’s been the cold weather that I’ve loved, brisk walks on chilly days, playing in the snow, early days and wrapping up warm. But since I got sick, feeling cold is really not an option because it hurts so bad. So, I long for the heat that I once shied away from, just because it feels better.

Are you a winter or summer person?

Mix It Up Linky
Debs Random Writings

Welcome Home Bernard

Welcome Home Bernard!

It took 4 months and nearly two weeks, but Bernard is now back home. I’ve not driven him yet, but I may give it a go soon. I’m really nervous, I used to love driving so much, but I’ve never really got used to driving with my hands.

We only have Bernard until September, then our lease is up and we can choose a new car. Graham has his eye on a Volvo. I thought it would be cool to get a WAV so I could just drive my wheelchair on, that was until I saw the cost…eeek! I think I’ll just stick to getting a new wheelchair and a hoist in the boot of the new car.

In Other News

I think getting Bernard back was the big news of the last week, nothing much else has happened.

I was glad to give my heart monitor back. As I suspected I had a good week with no problems, so they’ll probably give me the all clear. I am 99% sure it was my medication causing the issues, and I’ve stopped it now.

The monitor gave me some lovely sores, I think I’m a bit allergic to those sticky pads they use, I always get a rash whenever I have an ECG.

Wool Addict

My hooks have been busy this week. I’ve almost completed a dragon hooded scarf from a pattern from the lovely Tracey at Hooks and Dragon I can’t wait to show it off.

I’m also in the process of piecing together the CAL (crochet along) blanket that I started last February. I really don’t like the sewing part, but I will finish it after all my hard work, I have to.

I’ve also got the wool for a toy zebra, and the girls fell in love with a pattern for an axolotyl which they want me to make.

I’m going to be a little bit busy.

Debs Random Writings
Mix It Up Linky

Education Now and Then

old fashioned typewriter

Photo by Patrick Fore on Unsplash

Last night the girls were watching Back in Time for School. They thought that the lessons the girl’s were taught were quite hilarious. We watched them learning how to make up a cloth nappy and put it on a baby doll. The girl’s were quite amazed when I told them that I’d done that at school.

I had the nappy lessons and how to make up a baby bottle and feed a doll. For the exam in Childcare, which was an actual subject, we had to make up a bottle of formula in front of the whole class. I hated it, I really didn’t want to think about babies at the age of 16, it wasn’t on my agenda. (Yes, I am a Mum of five!)

One thing that always bothered me was the computer room. I’d walk past watching the boys file in and try to get a look at these elusive computers through the window. Then I’d go down the corridor to my typing lessons. I have to admit, though, I did like typing. The feel of my fingers tapping along the keys while looking at the document to my right made me feel like I was learning something special. My fingers were learning those keys and it’s something I’ve never forgotten. Of course, I was never interested in an office job either.

It was interesting to see how little had changed from the TV program to my school days despite it being more than 20 year later. Thankfully, my girls have much more opportunities at school these days. There are no limitations, they can learn what they want. The typewriters and dolls with nappies are long gone, and the computers are not kept for the boys use only.

School Today

I like to give updates every now and then on how my kid’s are getting on at school and this seems like a good time.

Star, is now my longest lasting child to manage main stream school. She is in year nine and thriving. The school fits her needs perfectly and she has even made a couple of friends. She told me that a lot of her peers are more mature now and the teasing and bullying is no longer an issue. I’m sure it goes on elsewhere, but for Star it’s not a problem which is great. She is doing well in her lessons, learning well and being treated with respect for her disabilities.

Boo is coping well with Secondary school. Her transition was painless as she was already at the school from year six. Being in the building and getting used to the teachers helped loads, she even picked up the playground and lunch time rules with ease. She is not super bright but she tries very hard and works well so I’m sure she’ll succeed. She listens to her teachers and behaves well. She has a lovely group of friends who she gets on so well with and is generally happy.

The Little Man has settled in well in his new school. I’m so glad we found this school for him, he’s already doing better than before and is much happier. There is no bullying and although he still gets into trouble occasionally, it’s not every single day like before. I don’t know if he will still be going through an assessment but I think as long as he’s doing well then I’m not going to worry. He will spend another two years in this school after this one and I’m sure any issues will be ironed out by then.

But one of the things I’ve really enjoyed recently is the lack of head lice! It must have been the Little Man’s old school that was the problem because since he left we have eradicated the little blighters completely. Any Mum that has had to deal with frequent attacks of nits with more than one child will understand my excitement in this.

Lucy At Home UK parenting blogger
Twin Mummy and Daddy

Reflections on the Past Year and Looking Forward to the Future.

Happy New Year

Photo by Sylwia Forysińska on Unsplash

The New Year is a time of reflection and also a time to think about the future.

Reflection

I’ve mostly been thinking back on the last three years and my illness. It all started on January 1st 2016 when I ended up in hospital for two weeks. A year later I was finally diagnosed with Stiff Person Syndrome plus PERM.

I had to learn to walk again which was difficult, and I had to learn to cope with a completely different life. I was independent and strong, but now I’m dependant and weak. People say I’ve come a long way since I was first sick, but they are just being polite. Yes, I can walk a little, but I know I’ve not really made that much improvement. You learn to live with the pain and discomfort and just get on with it.

I’ve tried to keep going, keep life as normal as possible especially for the kids. We’ve had holidays and days out and lots of fun together. We have made lots and lots of memories.

The past year I’ve found out how intolerant people can be of someone chronically ill. I’ve had personal attacks and people just cut themselves out of my life. Talking to other sufferers, it appears to be a thing. It’s not nice. It hurts. But for whatever reason that finally made them do it I have to forgive them and move on with my life.

The Future

Three years ago I had big hopes of being in a better place by now. I think that has been playing on my mind over the past few weeks and bringing me down. But now I have to keep looking forward and keep on fighting.

I have some exciting adventures planned for this year and may even go abroad for the first time. I want the kids to experience so much more before they grow up..and boy do they grow up quick. My illness is progressive, but I can still fight it. I’ve been looking at other treatments rather than medicine. I think my IVIG is working better which is great, but I have cut down and even cut out some of my other medications.

The future doesn’t have to be bleak, even with a chronic illness.

I don’t do New Year resolutions, but if I had one this year it would be to enjoy life as much as possible.

Do you make New Years Resolutions?

Thanks to all my readers and supporters over the last year, I really appreciate you all.

I would love for more people to join me on fridays for my Word of the Week linky. It’s a simple link up where we all share our weekly round up and sum it up in a word or phrase. Do come along and join us if you can. Look out for my tweets on Friday.

Other linkies you might like to join in with

DIY Daddy
Lucy At Home UK parenting blogger

A little Note About Positive Reviews on Raisie Bay

A little Note About Positive Reviews on Raisie Bay

Some people only write reviews when things go wrong with products, which is good because it lets people know that there could be potential problems. I’ve also seen negative feedback with say things like, I had to return this item because the colour did not suit me…is this useful?

I write reviews on most items I buy because I like to give genuine feedback. If I have a genuine problem with a product I will write my review in the appropriate place.

I write reviews on my blog too, but they are mostly positive. Why? Because I only write reviews for the things I’ve loved. If I don’t love them I let the person who sent me them know with details why and then let them decided if they would rather me write a negative review or not write one at all. It’s always the latter.

This is my blog, my place and I’ll let you know about the things I love. If you want to find out what other people have hated about the product then you will need to look elsewhere.

My reviews may all be positive, but they are still genuine.