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I’m so sorry to be hearing this Anne. i too suffer with chronic pain for 24 years, but feel I have to justify myself all the time as I travel, go swimming, dog park, shop etc. I have a neck injury and nerve damage and it affects my fine motor skills such as writing, cleaning, ironing, driving, typing, drying my hair etc. But the pain is there all the time, just aggravated when I complete similar tasks.
Back in May one of my twitter friends took his own life after suffering with chronic pain as he was almost bed bound, so sad for his family and for him feeling there was nothing that could be done. My acceptance point came after several visits to the pain management clinic around 15 years ago, it doesn’t make life easier or less painful, or even get other people to accept it, it just helps me stop focusing for a cure and relying on medication. I have you manage to get your wet room and grab rails sorted without too much hassle.
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Please do not give up. My brother lived with chronic illness for many years, yet he kept a great attitude and a great fighting spirit to the end. Because of him, I learned a whole lot about how to heal the body with food. What’s your chronic illness? Perhaps I can help you feel better.
Call that woman back to get the lift and the other help you need. Maybe she didn’t reply because of the holiday weekend or something else but call her back. Don’t take her lack of reply personal. My heart goes out to you.
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Thanks for joining us again, Anne, and for being such a wonderful member of this cosy little community! It seems that many of us have similar threads of thoughts even though we have different illnesses, circumstances and lives. In a strange way, pain is a powerful connector. It is such a raw, human thing and just makes you realise how fragile we all really are. Sending love. Know that you are definitely not alone x
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Hello Ann, sorry you are in such a low place emotionally! I went through a period of suicidal ideation myself and it’s really rough to manage. There is hope though, and while acknowledging how disabling your condition can be is painful, it’s often a necessary step towards greater self-acceptance and finding the right personal balance of expectations and energy – the better you can define what you can do on a ‘good’ or ‘bad’ day, the better you can manage your days to increase your good ones! Also, while getting mobility or balance aids may feel limiting, they can also give you more freedom by reducing how much energy/spoons those day-to-day activities take! Any energy saved in survival activities can help you do more fun or productive things. I’ll echo Yvonne in urging you to call the woman again for support, and remind you that accepting your limitations is the first step to finding solutions to them! Also, if your antidepressants aren’t helping, maybe you need to try a different type – there are a lot out there and each of us has our own unique body chemistry that interacts differently with different drugs. *hugs* and hope for healing!
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Hi Ann. I’m sorry you are struggling emotionally at the moment. We go through so much living with chronic illness and pain, often people underestimate the emotional toll this takes. I have been where you are, but things do get better. Take care x
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Your post really resonated with me this month. I’m so sorry the black dog nipped your heel this time but you keeping it on a leash gave me great hope for my own. “There is nothing more enlightening that realising that someone else is losing their fight when you are thinking of ending yours. ” This is so very true. It gives us great perspective, while our emotional pain is completely valid, watching someone else cling to their own life renews our armour to face more battle. I do hope you get your aids quickly from your health provider. I’ll be thinking of you this month ahead, take care xx
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Hello again Anne, I am sorry to read that you are struggling emotionally, I know this can be just as difficult as physically struggling. I hope things improve for you soon, and know that you are not alone. Take care x
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