Health

December – Life with a Chronic Illness

December 2, 2019 by Anne Sweet 9 Comments

Each month I join up with Sheryl from A Chronic Voice for some writing prompts aimed at living life with a chronic illness. This months writing prompts are Travelling, Bonding, Warming, Coping, Ending.

Travelling

I don’t do much travelling around this time of year. My family are all close by, and the only ones who are not come to visit us. This will be on December 14th.

In November, I only left the house three times, and one of those outings was an hospital appointment! The other I was only out for an hour, and the final outing was on the very last day when we went to the local Christmas Tree lights festival. (Anyone who follows me on Social Media will have seen me saying that I’ve only been out twice in November, but that’s brain fog for you, I completely forgot about the other time.)

I will be going out more this month (Fingers crossed) but not really travelling much. I have booked our holiday for next year though. It’s still in the UK but I love a seaside holiday. I have also realised that as my kids get older these families will become a thing of the past. I still remember when my eldest kids became to old to come on holiday with us. I even remember when I got too old to go on holiday with my Mum. I feel sad, but maybe it will give me an opportunity for more travel seeing as it will cost less paying for so many children. Let’s just hope I stay healthy enough.

Bonding

We have had a week of a sickness bug running it’s way through the family and suddenly I have had children again and plenty of bonding. In particular, my Little Man. Instead of wanting to be glued to a laptop or phone or other device, with his headphones on and seemingly in another world, he has spent time talking to me and we even cuddled up together on the settee one day and watched a movie together. I think we all need this special time, either as a family or just two of us. I also got to watch a movie with my husband which rarely happens. He’s generally more interested in watching the sports channel upstairs, sometimes life is too hectic for this kind of bonding.

In past years Christmas was always a time of bonding as my Nan, who was the glue of our family, would bring us all together for the holiday. She left us many years ago now and the family drifted further and further apart. In fact I barely see any of my cousins, aunts, uncles, nieces, nephews and so on. I don’t even see one of my brother’s. So it’s just Graham’s Mum and brothers and my eldest brother and his wife. It seems so distant, those days of a house full of relatives, when the furniture would be moved around to fit them in and the chairs from the kitchen dotted around the living room.

These days the only bonding I get with my extended family is through sending Christmas cards. And sometimes I don’t even manage this.

Warming

I suffer so much from cold weather, even at home I find myself covered in blankets and layers of clothes just trying to keep warm and the pain at bay. Sometimes, you just have venture out though and that’s when the warmer clothes come in handy.

In no particular order, the things that make me feel warm in December are;

Hot chocolate with cream and marshmallows (And maybe a tot of Baileys)
Christmas Carols, I love them and know all the words
Believing in Father Christmas, the kids might be getting older but I will always believe in him as it gives me a warm fuzzy feeling.
Christmas bells, we are lucky to live near a carrillion which plays the most wonderful Christmas music on a Saturday afternoon.
Christmas feel good movies. I can watch them all, no matter how corny.
Christmas decorations, trees and lights. I get a warm fuzzy feeling just looking at them.
A lovely real fire. We don’t have one, we don’t even have a chimney (But it’s okay, Father Christmas has a magic key) but I can put the You Tube video of a real fire on my TV and put my feet up in front of it. There is no heat but it still makes me feel warm.
Christmas food..yummy, everything from chocolate to brussell sprouts. I love Christmas dinner with all the trimmings, and all the treats and deserts that are okay to indulge in over Christmas.

And there is nothing nicer than coming home after a cold outing to a lovely warm house, or cuddling up on the sofa with a blanket, or getting into a lovely warm bed. There are so many ways to feel warm.

Coping

This is a big one for me this month. I stopped my treatment, on advice from my consultant, nearly three months ago. So it’s probably completely out of my system now. It’s been hard and I’ve almost phoned the hospital on many occasions to ask them to give me my treatment (my consultant said I could do this any time.) But, on the other hand, I’ve coped better than I thought I would, and although I’ve gone backwards on many things, I’ve also noticed that some of the side effects are starting to disappear.

That’s one of the problems with a rare chronic illness like Stiff Person Syndrome, no-one really knows what will make it better, and everyone who has it reacts differently to treatments. So coping is the best I can do.

As for the season’s festivities, I cope with them by taking everything slowly. There was a time where I’d be in a tiz if my decorations were not put up on December 1st, but we have a lot on in the following week so I doubt my husband will be able to get the decorations out for me any time soon. We will also have to move furniture, something I can’t do. The Christmas shopping is mostly done online, so that’s how I cope with that. Along with very careful planning.

Ending

The end of the year, such a bittersweet time, especially as you get older. I often wonder if this will be my last year on this earth, will I even make it through another year. I often wonder how I will make through a night so this is not an isolated feeling. Some people say they are glad to see the back of the year, especially when things have not been so good. But I always look back and think of all the positive acheivements I’ve made. The bad times don’t just disappear, but it’s much nicer thinking about the good times, and there is always more than you think.

In past times the period between Christmas Day and the New Year has brought much sadness, grief and pain. It’s a difficult time for us as a family and we realise that all we have is each other, so we try to spend the time quietly, bonding with each other and coping in our own way.

I was admitted to hospital on New Years Day 2016 which is when my chronic illness journey began. So this year it will be four years sick.

Thanks for reading. I’m linking up with Sheryl here and you can click through to see other bloggers interperete the same prompts.

Explaining the Different Types of Eating Disorders

October 23, 2019 by Anne Sweet 1 Comment

photo of a woman with a plate of food — *stock photo from Unsplash/PicMonkey*

While it’s a fairly common, albeit harmful, misconception that eating disorders are just phases, fads, or kinds of lifestyle choices, they should be seen as the serious mental illnesses they really are. Eating disorders can have serious and detrimental consequences on a person’s physical and psychological health, not to mention affecting their everyday lives and social lives.

Eating disorders are classified as a mental health issue, with at least 1 in 10 people in the United States suffering from an eating disorder at some point in their lives. Understanding the different kinds of each type of eating disorder is necessary to help recognize symptoms and find successful treatments before the consequences become life-threatening.

What is an eating disorder?

Eating disorders are usually started from an obsession with body weight, body shape, and food which can result in serious health problems and even death. People who suffer from eating disorders can starve themselves by restricting the amount of food they eat, can have an unhealthy relationship with food and binge, or can over-exercise or purge after eating to avoid caloric intake.

They are most often reported in young women and adolescents, but can affect any gender at any age and can be brought on by genetics or other mental illnesses like depression, anxiety, post-traumatic stress disorder, and obsessive-compulsive disorder. Often, eating disorders are co-diagnosed with other mental illnesses.

Binge eating disorder

People who suffer from binge eating disorder have similar symptoms to those with bulimia, as the illness causes them to eat unusually large quantities of food in short periods of time. Binge eaters often also feel a lack of control during their binges and end up over-eating. Unlike the other types of eating disorders explained in this article, people with binge eating disorder don’t count or restrict calories or use purging behaviours to counteract their binges, which are often done in secret.

People who binge eat are often obese or overweight, which can increase the risk of medical conditions like stroke, heart disease, and type 2 diabetes. If you or someone you love is suffering from binge eating disorder, there are treatment options, including visiting a treatment centre like edentreatment.com, where professionals will work with you or your loved one to find a personalized treatment plan.

Anorexia nervosa

Anorexia nervosa is the eating disorder that is most well-known and most often thought of when eating disorders are discussed. People who suffer from anorexia typically view themselves as overweight, even if they are dangerously underweight, and will drastically restrict their food intake in order to be thinner. They will usually constantly monitor their weight and avoid eating specific types of foods while having dysfunctional thoughts about food and eating. It also isn’t uncommon for people with anorexia to have difficulty eating in public.

Anorexia nervosa is severely unhealthy for the body, as it can cause serious health complications like heart, brain, or multi-organ failure and death. 20% of people who suffer from anorexia will die from the disorder, making it the deadliest mental illness. In less severe cases, it is still quite damaging to the body, causing thinning of the bones, brittle hair and nails, infertility, and the growth of a layer of fine hair all over the body.

Bulimia nervosa

People who suffer from bulimia nervosa will eat unusually high quantities of food in a short period of time, similar to people who binge eat. However, people with bulimia will attempt to purge the food after eating in order to compensate for the calories they have just consumed. Purging activities include forced vomiting, fasting for relatively long periods of time, taking laxatives, and excessively exercising.

Symptoms are usually similar to the symptoms of binge eating or anorexia, however, it isn’t uncommon for a person suffering from bulimia to maintain a relatively normal body weight rather than becoming underweight. The side effects can be quite serious, including stroke or heart attack caused by an imbalance in body levels like sodium, calcium, and potassium. Less serious side effects can include tooth decay and worn enamel, acid reflux, gut irritation, inflamed throat, and severe dehydration.

And empty plate and cup in a kitchen background. Eating Disorders — *stock photo from Unsplash/PicMonkey*

This is a collaborative post, read more on my page here.

Rehabilitation: What Is Involved and How Can It Help?

September 12, 2019 by Anne Sweet 2 Comments

a fence with trees behind it and three signs saying, don't give up, you are not alone and You matter.

While medication, therapy, and family support are often invaluable in a person’s recovery from mental health or addiction, sometimes a more intense approach is required in the form of residential rehabilitation. These facilities can offer programs for teenagers and adults suffering alcohol or drug addiction as well as a wide range of mental health conditions. These centers will offer a wide range of treatment programs which will be tailored to suit the individual depending on their needs. Here is a brief introduction to the types of treatment which could be included in a rehabilitation program for mental health conditions, substance misuse or addiction.

What is residential rehabilitation?

There are lots of facilities which offer residential or inpatient treatment programs. This means that the patient lives at the center for a certain period of time where they receive 24/7 care. The facilities are available for people recovering from substance misuse, addiction, or mental health problems. Some rehabilitation centers will focus on a particular issue or group such as Ignite Teen Treatment which works with teenagers. In some cases a residential or inpatient treatment program is not necessary, and an outpatient arrangement would be more beneficial. This means the individual will attend appointments or therapy sessions during the day but return to their own home at night.

Types of treatment

Often multiple types of treatment are combined to provide the most effective treatment program depending on the individual’s needs.

Medication or medical detox

There are several options when it comes to mental health medication, and it may take some trial and error to find the right type and dosage for the patient. This is something which is done under medical supervision in a rehabilitation facility. People undergoing a medical detox for substance addiction should also be under medical supervision as complications can arise.

Talking therapy or counseling

Counseling gives patients the opportunity to meet with a counselor or therapist who will listen to them talk about their feelings while helping them to come to terms with their condition. This could include learning to understand their triggers and to develop healthy coping mechanisms which they can use when they return home after rehabilitation.

Experiential therapy

Some people respond well to experiential therapy which involves the use of activities or props to work through past experiences and emotions. This could be done through role-play, crafts, music, interaction with animals or art.

Family therapy

To ensure that the patient is supported in all aspects of their life, it’s sometimes recommended that family members also take part in therapy either with their family member or just with the counselor. This may help them to gain a deeper understanding of what their family member is going through and how they can help them in their recovery.

How rehabilitation can help

Giving a teenager or adult a calm and safe space with tailored medical care and a break from the stresses and worries of everyday life can be very much like a retreat. With focused care, structure, and supervision, they can focus on their recovery without the triggers they have at home, work or school, and learn healthier coping strategies.

Disclosure: This is a collaborative post

4 Yoga Poses That May Trigger an Injury

August 19, 2019 by Anne Sweet 3 Comments

Whilst yoga has many health benefits and is a great way to unwind and relax, there are some positions which are known for incurring injuries. Here are some poses and how they can negatively impact your body so this can be prevented.

Standing Forward Bend

The standing forward bend which is also commonly recognised as Uttanasana is great for stretching out the legs and hips, as well as helping to stimulate the liver and kidneys. It is advised that you do not push yourself too far, especially if you already have back problems. A good way to prevent injuring yourself is by lying on your back and stretching out your hamstrings. Make sure to use support such as a strap to further prevent muscle damage whilst stretching.

Shoulder Strand

If you are looking to improve your metabolism and improve the health of your thyroid, Sarvangasana is a popular inversion pose within yoga that can help with this. A negative side to this position is that it can put a lot of pressure on the neck and spine. It is important to stretch with caution and not relieve yourself of too much compression.

Bound Triangle Pose

This pose is very effective on the hips and can teach you to open the hips more. A modification of Baddha Trikonasana involves holding your hands behind the back. However, this can easily result in damage in many muscles, the hamstrings especially. A useful tip to stop any injuries in this pose is seeking advice from an instructor. Consider finding a personal trainer that you can get advice on ways to prevent harm to your body. Having this ongoing relationship with a fitness expert is really helpful for at-home exercises especially and is necessary for preventing harm to yourself. Make sure to research more into what is best for your body and start off with beginner yoga poses.

When working with a yoga instructor, be mindful of how they treat you. If you have any bad experiences, consider looking into medical negligence claims to find out more about receiving support from experienced lawyers when being involved in any medical accidents you may have whilst using their services. This service offers a free consultation with an expert lawyer and can give you well-trained information and advice.

Camel Pose

The camel pose, also known as Ustrasana is ideal for preventing tiredness, anxiety and can help with your breathing. If you have ever experienced any problems such as nerve pinching, doing an intense back bend like this is not the greatest idea. Prepping your body beforehand is a main priority to assure your body is comfortable when being unevenly flexible. Take a look at some tips on how to warm up for yoga.

No matter what poses you do in yoga, it is important to remember not to push yourself over your own limits and listen to what your body is telling you. This way you won’t strain or pull muscles to the point of damage. Bear these things in mind so that you can continue a healthy relationship with yoga that will provide many health benefits.

collaborative post

Writing Prompts for August

August 5, 2019 by Anne Sweet 6 Comments

Prompts for the Month – Capturing, Financing, Controlling, Exchanges, Motivating

Capturing

Ever since I can remember I have been capturing memories. I have boxes and boxes of photos and photo albums from the days before digital photos were a thing. My many digital photos I wouldn’t dare to count, it would take me forever.

I have also been capturing memories with diaries. Hidden in my wardrobe I have a selection of handwritten diaries starting from around 1982! The most regular years are from when my older children were little, 1988 to about 2000. I stopped writing things down then because life got too tough and the memories from the next couple of years are imprinted on my brain and I don’t need reminding of them.

By the the time my younger children were born then online journalling was a thing. I started my first blog in 2003. In more recent years I’ve been capturing so much of our life right here on Raisie Bay. It’s full of all our lovely memories, and some of the not so lovely ones.

This post about Stars 7th Birthday Party has been one of my popular posts of all time.

And here’s a captured memory of my Little Man in a Fire Engine in 2014

A little blonde haired boy looking out of the window of a fire engine

Financing

Being in the UK, I am lucky to have the help of the wonderful NHS. However, it’s sad to see that it’s struggling so much. If I decided to go private then the cost would be well beyond my means, and my lovely NHS consultant could refuse to treat me once my money ran out.

Why would I want to go private? Well, I don’t complain about the NHS because I know I owe them so much, but my treatment has not always been good. I’ve even had to go to the complaints department because of the way my daughter has been treated. But my treatments cost a lot and the NHS funds them.

There are other treatments I could have that would cost a lot more. There have been mixed results from these treatments, but I guess I’ll never find out if they would work for me. My consultant is trying to get funding for one of them, but he is very doubtful it will be approved.

Another treatment is HSTC a form of stem cell treatment. I could fight for the treatment on the NHS but so far I only know of two people with my condition in the whole of the UK who have had it on the NHS. One worked, the other didn’t. I could go private, there are groups which encourage you to fundraise and got to Russia or Mexico for treatment. I really can’t see myself doing that. I’d never be able to raise the money needed, I’d not want to leave my family for the months it takes, and I wouldn’t be entitled to help from the NHS if it all went horribly wrong.

So, although unlike many other’s with my condition in other contries. I’m lucky that I get treatment for free. But Finances also play a big part in my treatment.

Controlling

When it comes to my illness I like to think that I’m controlling it rather than it’s controlling me. It’s the cup half full approach and you have to have the right mindset. It doesn’t always work and I have my dark moments. But I have to have faith in myself that I can do this.

I have three young children and there is no way I’m not going to be the mother they deserve. They know I’m sick, it’s a little too obvious, but they have dealt with it well so far, because I don’t let it control our lives.

On bad days I could very easily lose control and let the pain take over. I have done and it’s awful for everyone, not just me. But mostly, I have learned that I need to take care of myself and hopefully take control of what I can and can’t do.

Exchanging

The only thing I can think of for this prompt is that next week I’m exchanging my view of my back garden for one of the beach! I’m so looking forward to getting away and enjoying a different view and more relaxed life for a few days.

Motivating

After last months dip into self pity and despair, I feel the sunshine on my face and the fact that I have a holiday due very motivating. I have my children at home on their school holiday and they help keep me motivated too. It’s so much easier not to be self absorbed when you have little ones around to keep you on your toes.

Of course, life can be more difficult too. The pain doesn’t subside just because you have more to do. And some days have been very difficult. But I keep going so I guess my children are my motivation for getting through each day, and indeed for getting through life.

Linking up with the lovely Sheryl from A Chronic Voice who gives us these prompts each month. Together we have built up a lovely community, together we are able to express our voices about our illnesses.

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