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  1. Kim Carberry

    It is pretty rotten that everything is blamed on Stiff Person Syndrome when it could be something else.
    Good luck with the results. Poor Star. She has really been through it. I hope there is nothing else with her to deal with!
    So sorry about your friend. Sending love and hugs! It doesn’t sound like a great time for you at all xx

  2. Nikki Albert

    One thing I never liked about having a condition is that no matter what doctors will blame that condition for everything. This infernal vertigo I have… of Course it is from migraines. Until they did some tests and an MRI and … eeehhh that didn’t look right at all. We shall see if they will brush all that off and go with vestibular migraines anyway. Which I deeply feel is wrong from the way this started and never stopped…. while on the best vestibular preventative migraine medication no less. So I do not like it when they do that but they do it all the time. All my life they have done that for various things… expecially fibro. All fibro. So I get you on that.

    I dearly hope your daughter’s genetic test comes back better than you expect. That is what we want for children… all the best things in the world.

    Reading is my go-to for coping with pain but the vertigo has made that rather difficutlt so I read just a wee bit a day… I’ll take what I can get. I read fantasy fiction though. And lately some non-fiction. But the fact the vertigo has taken that from me and I can’t like dive into a book for hours is rather depressing to me. So I write instead. We have to take what we can get.

  3. JacQueline Roe

    “Get through one day at a time, good or bad and look for the things that make me happy.” What a great way to envision what perseverance can be. I also love your refrence to the hugs of your little and big people. That personal contact and encouragement mean so much in the life of the chroniclly ill. I hope you don’t mind, I’m praying for your daughter’s and your health! 😉

  4. Kate

    You made me feel guilty for bleating in a self-pity party post when you have far more to contend with than I do. Having said that I also need to thank you deeply because your post made me cry with some of those Haig quotes especially that last one. I feel so unaccepted in my marriage and crave someone loving me for being just me warts and all. Maybe I need to do that for myself for now and you helped me today #Blogtober19

    • Anne Sweet

      no persons suffering is any worse than any others because it’s all so personal. I am sorry that you feel unaccepted though. I think I’ve spent my whole life wanted to be loved for who I am, but I know I’m not an easy person to love. Matt Haig is wonderful, but he has been lucky in love, it sounds like his wife has had to deal with a lot and I’m sure it’s not all been plain sailing, but his love for her is so apparant and she has stuck by him through it all. x

  5. Naomi

    You’ve reminded me of how much I enjoyed ‘i capture the castle’ although I couldn’t tell you too much about it! Just that lingering feeling of enjoying a really good book.
    I agree with you about love being a funny thing. Loving ourselves always the first and best thing we can do.

  6. Sheryl

    Thanks for joining us again Anne. I am so sorry for your loss 🙁 Grief is a tough one to deal with, and it does comes in waves. Love the Matt Haig quotes as well, so applicable to daily life. Sending lots of hugs and strength xxx

  7. Rhiann

    Hello for another month, Anne.

    I am sorry that it has been a difficult month for you. I do hope things turn around for you soon.

    Oh, the joys of having new and unexplained symptoms blamed on the diagnosis we have already accumulated. I have been through this so much, having symptoms that I was experiencing being blamed on anxiety, refusing to search for another possible cause for them. There are so many conditions that are often co-morbid with other ones, a fact seemingly forgotten by medical professions.

    Like you I love to read so thank you for your wonderful recommendations. When you love books and reading as much as me you are always searching for new reads. I’m currently reading the follow-up to P.S. I Love You. So good!

    Take care of yourself and hope October is kinder to you.

    Rhiann x

  8. Carrie Kellenberger

    Hi Anne. This is my first time to your site. So excited to meet you and dig a little deeper into all your work here.

    I hope your second test has more answers for you. I hear you. It’s super annoying when they blame it on something else you already have and you know it’s new or not normal.

    I’m so sorry to hear about your friend passing. Coping with the loss of a loved with, especially when you’re sick, is so hard. I’ve never been able to write about my losses, so I think you’re brave to do so. Sending gentle hugs. I hope Matt Haig continues to help ease your sorrow during this difficult time.

  9. Niamh

    I’m sorry you’ve been having such a rough time. “When you have a chronic illness, everything that goes wrong seems to be blamed on your current illness.” That really hit the nail on the head. They like to just brush everything under the one diagnosis. It’s what puts me off seeing my GP. I hope you get some answers with the results your waiting on for you and your daughter. Your ironing board hug made me smile. It’s amazing in the same family how differently we all express our love. By the sounds of it you have a lot of it going around in your family. They are very blessed to have you. x

  10. Alison Hayes

    Thank you for sharing, Anne!
    I also hate the tendency of doctors to blame symptoms on the diagnoses we already have instead of double-checking. I feel fortunate that I do have doctors willing to do those double-checks when needed! Then again, there are some diagnoses that are, themselves, worthless.
    I’m hoping you get the best possible news from both your testing and your daughter’s – you deserve more happiness and relief!
    I am so sorry to hear of your friend’s passing – my condolences – loss like that is so hard. Please give yourself some space to breathe and be sure you let yourself grieve this loss. Take care of yourself! *gentle hugs*

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