Hello and welcome to the home of Word of the Week. A nice and simple weekly linky, with everyone welcome to pop by and share. The idea of the linky is to reflect back on your past week and share it with us. It’s great if you can sum it up in a word or phrase, hence giving us your Word of the Week. My phrase this week is wetroom and you can read more about that below.
I’m not totally strict on using just a word or phrase. But please try to stick to the theme of summing up your week.There are not too many rules with this linky, just remember to read at least another couple of posts in the link up after adding your link. I will read and comment on all posts and tweet them out for you. I also have a Pinterest boarddevoted to Word of the Week and I will add posts to MixPlease add the badge below to your post so that others may find us and join in. If you comment or tweet then please use the hashtag #WotW
Word of the Week is open from 6am on Friday Morning to 12 noon on Monday. Plenty of time to join in!
If you are unfamiliar with the Word of the Week linky then please feel free to ask any questions. New linkers are always welcome, we love to hear what you have been up to in the past week.
MY WORD OF THE WEEK – Wetroom
Last year I told my occupational therapist that I was having trouble with showering. She came to visit my home and said that I could do with a wet room. I don’t know why, but the thought of having my bathroom ripped out and changed just scared me and I said no. So we worked on some other things that would help, like seats, bars, steps etc. Sadly, nothing really helped. So I called her and told her that I had changed my mind about the wet room. She came to visit again and told me that I could also do with a through floor lift from my living room to my bedroom. In for a dollar in for a pound I guess.
I was told that work would start in April, but this week a workman turned up and said they would be starting this week! So, on Wednesday we had a house full of builders making tons of noise. I don’t deal too well with noise, but I popped in my headphones and just got on with it.
On Thursday, the workmen didn’t turn up until lunchtime!! I had to be at the hospital with Star, so I really didn’t have to spend to much time listening to their noise
I can’t wait to be able to shower with confidence. For the last six months it’s felt like I’ve been risking my life every time I shower, especially with my balance being so bad. And I’ll be able to go to the bathroom in my wheelchair during the night. I’ve had so many near misses with falls trying to make the couple of metres from my bed to the toilet when I’ve woken in the night. One night I crashed into the bathroom door and thankfully my eldest son was still awake and came to help.
Next up it will be my lift and I’m dreading the work involved, but again it’s something I really need. I can’t wait to not have to walk up and down the stairs anymore.
In other news, the hospital appointment on Thursday for Star was with her neurologist who told us all is well with her neck, yay! Just one more appointment at the Children’s hospital next year and she’ll be discharged. If anything happens from then on, she’ll be at the adult hospital. Now, that’s a scary thought! (Not the adult hospital, but the fact that she will be classed as an adult for medical issues!)
Oh, and we heard this week that she does NOT have Marfan Syndrome. We still don’t know what her actual problem is, she has a lot of characteristics of Marfan’s but no variation at all of the rogue gene febrillin that causes it. Of course, I may be jumping the gun as we still have some more testing to come back and don’t, as yet, have a follow up with her geneticist. It looks like she just might be one of those rare children that just doesn’t fit in any box. I wonder where she gets that from?
Now it’s over to you, what word or phrase sums up your week this week?
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Having all that work done at once must be such an upheaval but will be so worth it when it’s finished. I would love a wet room.. I don’t need one, but I’d love one. Tell the workmen to at least pick a station of your choice to listen to!
I’m sure your children will be relieved to feel that you are safer with the modifications to your house. A wetroom actually sounds pretty cool!
Laurie recently posted…February Runfessions
I’m glad that the wet room is now being installed for you and hope that the work for it is all done as soon as possible and isn’t too disruptive for you all. Good news too with Star’s neurologist appointment although I can imagine that it must feel a little disconcerting that she’ll be treated as a adult from a medical perspective after her appointment next year. It’s good to that you have an answer and that she doesn’t have Marfan Syndrome but I guess it does also bring up questions when you still don’t have any diagnosis that fits in a box. #WotW
I am sure the end result with the shower and lift will be worth all the noise! It sounds like it’s going to really help and not having to deal with the stairs will be amazing!
That is great news about Star and her neck. What a relief it must be. It is scary when they go up to the adult hospital. Becky has with her latest heart appointments but they are still great with her. The only difference is Becky gets asked all the questions, not me. lol
Kim Carberry recently posted…This week my Word of the Week is: Busy! #WotW
I am so excited to think of how your wetroom and lift are going to improve your home life!!
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Not long now. Must be quite an upheaval, but it will make such a difference. Goodish news for Star. I hope her other results are helpful. Have a lovely, relaxing weekend (without the builders) #wotw
Funny, we recently moved and I miss my wet room! Currently on a waiting list for an assessment, but won’t be a wet room, as we are renting at the moment. I’m going to ask for a lift if the next house is two storeys. Your OT sounds so switched on. Hope she sticks around for you.
Anne I cant imagine what you go through just trying to do normal things, I am so glad these adaptations will make such a huge difference to you, you so deserve it! Thats great news about Star I hope you get to the bottom of it soon x