Reader Interactions


  1. Sheryl Chan

    Thanks as always for joining us, Anne. You have lived an amazingly full life from the sounds of it! So impressive. I was chronically ill since I was 14 so I don’t know any different. But my childhood was filled with such energetic, happy memories, and I wondered what it was like to be ‘sick’. Well now I know haha.

    I think it’s great for those who developed chronic illnesses later in life to share their experiences, too. It’s fascinating for me to read about how stark the differences are, and muse at your life. Sending love!

    • Anne Sweet

      Thank you Sheryl. I always feel self conscious talking about by illness, especially as I was perfectly fit and well when I started this blog. Having your prompts gives me the opportunity to share a little of what my life is like now. I know I’ve had a full life, and if the rest of my life has to be battling this condition, so be it. I will live my life the best way possible. x

    • Anne Sweet

      Yep, forever in my 40s, or perhaps even younger in my head…shame about my body, but you can’t stop getting older so it’s best just to get on with it.

  2. Alison Hayes

    Thanks for the great read! I’ve been managing minor disabilities since childhood, and my FND stepped in in college – so I’m with Sheryl in minor envy that you were able to be abled for so long before your condition stepped in.

    Sharing the different perspectives is so very important for our community because our power often is our diversity – and the disabled community is one that anybody can enter at any time due to accident, symptoms, or diagnosis.

    It seems sometimes like all we can do is minimize our own suffering and visualize a present and future where we have things as well-managed as possible. Love how much visualization has helped you! I do a fair amount of meditating, but visualization isn’t my strong suit!

    • Anne Sweet

      I think it’s a double edged sword. Having lived a full life before disability hit, I still mourn for what I had. But I still appreciate having it, even though it’s gone now. I think a lot of people do not understand that disability can happen to anyone.

  3. Catherine Green

    Your post was really insightful, Anne, and made me think about my mum who is now disabled, in her 60s, but still feels much younger in her mind. She has fibromyalgia and related health challenges, but she still finds smiles and time for her grandchildren.

    As for me, I am not disabled but I have always been ill, although it is only during adulthood that I recognised my condition made me different. It was normalised when I was a child so I didn’t know any better, and my family always supported me through surgeries and hospital visits.

    I suppose we learn to live with what we have in life.

  4. Melissa

    Thanks for such a great post! I can relate to being really active and working before illness, then having to mourn what is lost afterward. That transformation is something that just keeps happening over and over, and the way you described it and how you’ve adjusted really resonates with me. Thanks again for sharing!

  5. Joleisa

    So insightful. Every time I come here, I feel that I know you a little bit more. I can’t quite get my head around what it must be like but I must say that I admire you for not giving up, and for just getting on with life and doing your best to enjoy it too.
    You and your daughter should take some strength and inspiration from each other .
    Loving this post. Keep pushing. It’s inspiring, whether you believe it or not.

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