Hello and welcome to the home of Word of the Week. A nice and simple weekly linky, with everyone welcome to pop by and share. The idea of the linky is to reflect back on your past week and share it with us. It’s great if you can sum it up in a word or phrase, hence giving us your Word of the Week. My word this week is ‘Testing’ and you can read more about that below.
I’m not totally strict on using just a word or phrase. But please try to stick to the theme of summing up your week. There are not too many rules with this linky, just remember to read at least another couple of posts in the link up after adding your link. And please only add one post to the link up each week, multiple posts will be deleted. I will read and comment on all posts and tweet them out for you. I also have a Pinterest board devoted to Word of the Week and I will add posts to Mix Please add the badge below to your post so that others may find us and join in. If you comment or tweet then please use the hashtag #WotW
Word of the Week is open from 6am on Friday Morning to 12 noon on Monday. Plenty of time to join in!
If you are unfamiliar with the Word of the Week linky then please feel free to ask any questions. New linkers are always welcome, we love to hear what you have been up to in the past week.
MY WORD OF THE WEEK – Testing
This week is all about testing in some of it’s different forms. And just writing this has reminded me to book a blood test for my son, I tried yesterday but I was 9 in the queue so I decided to try later and forgot…oops!
We’ll start with my son. He had to visit the GP last week and is having several tests done. I went with him because these problems have been ongoing for some time and he’s never had them properly investigated. My son is autistic, but he’d been going to his own GP appointments, but this time I decided to be his advocate and make sure that he was getting the proper help. I think I’ve had enough experience over the years with dealing with doctors now.
Then there is Star, we are still waiting for her test results, she has had blood tests, ultrasound, urodynamic testing, faecal tests MRI and CT scan. So far we have had zero response from the hospital from both the urology or the gastro departments. It was three weeks today since her last tests so next week they had better be prepared as I start making enquiries. It’s time we got some answers. She has been sick again this week. I’ve had two disturbed nights. I really don’t know how much more either of us can take.
Now, my turn. I have had a pain since last year and so far my GP has said it was gastric, a cracked rib and finally musculoskeletal. I’ve been to A&E when it became unbearable and they said it was musculoskeletal. So, basically, they believe it’s caused by my current condition, Stiff Person Syndrome, and it’s something I just have to get used to. I’ve had to get used to a lot of pain over the past seven years, but there have been pains that have been brushed aside by my GP and even A&E which have turned out to be something else. Like my subdural hematoma, which was discovered by MRI. Thankfully, it did resolve itself in time but my consultant keeps an eye on me. I did have an x-ray at the hospital which discovered scarring on my lungs, but the doctor didn’t think that was causing my pain. I’ve had a follow up x-ray but no further testing was carried out.
When I saw my consultant last month (I see him twice a year) I told him about the pain and asked him if it was related to my SPS. He said it was possible but he wanted to make sure so ordered further testing. This began yesterday with a scan with contrast. So, at least I will know for sure one way or another.
This month we did our last round of Covid Testing for the Office of National Statistics. We’ve been doing them every month for 3 years. The questions asked would take me about an hour and a half to do each time.
I have also found home educating the Little Man this week very testing. He is a good boy but if he doesn’t want to work then he doesn’t want to work and it’s been one of those weeks. Hopefully he will have a better time today at School of Rock.
Before I hand it over to you can I just promote my latest giveaway which went live earlier this week. It’s easy to enter and you can win a lovely journal and set of Mind Cards.
Now it’s over to you, what word or phrase sums up your week this week?
I think your son will get on well getting the help he needs from the doctors with you on his side. Good luck with Star, I hope she gets her results soon. The waiting is the worst. I hope your results form your scan comes back OK too.
Oh wow! Well done you for doing the Covid Testing thing for 3 years. x
Hope that the test results for your son help give some answers and that Star’s test results come through soon. Hope you get some answers from your scan as well. Sorry to hear that its been a testing week with home-schooling Little Man. Hope next week will be a better one x #WotW
I hope that you get some answers for Star and that your results are ok. It must be so frustrating to not really be sure what is causing your pain. All the best with your little man’s schooling next week.
Just checking in. What a week! Testing is definitely the right word. I often wonder how you cope with all of what you do cope with! Sending hugs and best wishes for everyone.
Oh, Well done on the shop with mindfulness in mind. I love the idea of scented things like essential oils, also soft and fluffy things like blankets and cushions etc. Don’t know how easy it would be to add those?
So much testing but also why haven’t they got any results back to you yet? I hope you have had some by now. I hope they let you go to the doctor without any fuss with your son. Things do change when they reach 18 don’t they? I know I shouldn’t but I’m kind of sticking my head into the sand until then! #WotW