This time five years ago I was sitting on a hospital ward with Graham waiting to hear news of Star who was in the operating theatre. This was the beginning of the end of an eighteen month journey which started when Star woke up one morning with a wonky neck. We took her to the…
EDS
Elhers Danlos Syndrome Awareness Month.
At the top of my page you may notice a tab called My Little Zebra, if you click it you will be taken to a new blog all about my little girl who has Elhers Danlos Syndrome. As it is EDS awareness month I’m going to share her story here, only a little more condensed….
Word of the Week – Eyes
This week I had to take the Little Man to see an orthoptist and an optometrist at the paediatric eye clinic. He’d been given an eye test at school and it had shown that he was weak in one eye, so he was sent to the clinic. They gave him another eye test and again…
My Life and Pain
Way back to when I was a little girl I can remember pain. I would wake in the night and cry, waking up my parents. The pain would be in my legs, my knees or my ankles. Occasionally it would be in my neck or shoulders. I know that mom had taken me to see…
Rare Disease Day 2015
If you look at my links above you will see one saying My Little Zebra. This takes you to my blog written especially for Star, a medical zebra. “When you hear hoof beats, think horses not zebras” This is what medical students are taught, to look for the obvious. Star has been diagnosed with Hypermobility…