This week I have been waiting.
I have been waiting for three weeks, but this week it’s hit harder because before I was just trying to have a little holiday fun and not think about things.
I have still been chasing up answers though, even though I’ve not had much success until today.
Today our Limbo was ended, well sort of. Yesterday, after calling the hospital and getting a much less than satisfactory reply from the ward secretary, I decided to call the hospital patient liason team PALS. They promised they would find out what was happening for me.
Now, those that know me, know that I am a patient person. I’m good at waiting. However, this involved my little girl and she is in pain. I was told three weeks ago that she would need an operation to fix her neck. I was told that I would contacted by the end of the week and told what the next steps would be. I wasn’t contacted and haven’t been contacted since. So we have been in limbo. Is my daughter having an operation, when will she be seen again, are there any other options, is it going to get worse, can it be fixed???? So many questions and no-one to answer them.
Today, PALS called back. I wasn’t home, I’d popped out for just half hour when the call came. OH took it and informed me when I got home that our daughter was going to have an operation and that they would call next week to discuss it.
I can’t say I’m happy with that, it’s all very vague and of course, “we’ll call you” has been heard so many times now and they rarely do call.
Still, the fear has returned to my soul. The fear I have felt so many times since my girl woke up with a twisted neck almost nine months ago. I am scared, very scared. Of course I want her fixed, but how I wish it could have been done that first week she spent in hospital, why has it dragged on so long, why is it no better? Can it be fixed?
I will always be in limbo until I know the answers.
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