An Animal That Means a Lot to Me

Day 11 of Blogtober16 and the prompt is simply ‘favourite animal.’

Well, I’m a cat lover and proud of it. I also have two gorgeous Roborovski hamsters that are so tiny I can fit both in the palm of my hand. Well, I could if they got on, one of them is a bit of a bully and attacks the other whenever they are together so now they both have separate cages.

But…I wanted to do this post with a twist and say…


a zebra in the wild
image curtesy Weknowyourdreams

The zebra means a lot to me and my family because both me and my daughter Star are medical zebras.

This means we both have very rare medical conditions. Why zebra? Well medical students are taught to look for the obvious and not to get caught up in a rare diagnosis. The saying goes; “When you hear hoof beats think horses, not zebras.”
We have both been fairly lucky. It took a while to convince my daughter’s consultant that she was a zebra, but once we did she has been given a lot of help. She has Elher’s Danlos Syndrome which is a connective tissue disorder. There are seven types of EDS and Star is still being tested to find out which type she has. Mostly her condition is invisible and she looks like every other child. However, it wasn’t invisible when the connective tissue holding her neck up became too lax and her cervical spine was damaged.
my little girl lying in bed with her cervical halo
This is Star wearing her cervical halo. I took this photo because some people thought we took it off for her to sleep in. Nope, a halo is fixed into the skull and cannot be removed except by a surgeon. She had to wear the halo twice, for around thirteen weeks each time. 
Star has had a fixation, which means her neck is held together with screws and titanium plates. Without it her future would have been bleak, if she actually would have had one.
So she is one special little zebra.
As I said at the beginning, I am also a zebra. I went into hospital this year on January 1st with a mystery condition which left me paralysed. I had a condition that affects only 300 people a year in the UK. I wasn’t lucky to get the condition but I was lucky to get a consultant that knew what it was straight away and giving me the best chance of recovery. 
The bad news is that so little is known about the condition I don’t really know if I will recover, but I can keep on hoping and working towards recovery. One day I could be free from pain and be able to walk normally again. One Day I will as free as a zebra! 
I hope you don’t mind me turning this around from being about an animal but I do like to take the chance whenever possible to let people know about these rare conditions that have blighted my family. 
You can find out more about Elher’s Danlos Syndrome here, or read Star’s Story here.
You can find out more about Transverse Myelitis here, or read my story here.
Thank you x


  1. October 11, 2016 / 11:12 am

    Great choice of animal! I'm a zebra too (EDS) 🙂 Hopefully there will be more recognition and support for medical zebras in the near future. #Blogtober16

  2. October 11, 2016 / 8:13 pm

    Your hamsters sound adorable.
    Aww! That is lovely about Zebras.
    I remember when Star had her halo. Bless her. She is such a trooper!
    I hope you get your time to be as free as a zebra x

  3. October 12, 2016 / 11:33 am

    I think you've creatively turned the post into a really enlightening read
    Your Star looks very smiley in that photo and such a star by name and deed. I do hope you both get your time to be free like Zebras soon
    Great post.

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A little Note About Positive Reviews on Raisie Bay

A little Note About Positive Reviews on Raisie Bay

Some people only write reviews when things go wrong with products, which is good because it lets people know that there could be potential problems. I’ve also seen negative feedback with say things like, I had to return this item because the colour did not suit me…is this useful?

I write reviews on most items I buy because I like to give genuine feedback. If I have a genuine problem with a product I will write my review in the appropriate place.

I write reviews on my blog too, but they are mostly positive. Why? Because I only write reviews for the things I’ve loved. If I don’t love them I let the person who sent me them know with details why and then let them decided if they would rather me write a negative review or not write one at all. It’s always the latter.

This is my blog, my place and I’ll let you know about the things I love. If you want to find out what other people have hated about the product then you will need to look elsewhere.

My reviews may all be positive, but they are still genuine.