Today’s post is a little self indulgent as I look over the year 2016. The year started a little crazy and I needed to remind myself of how life has changed for me and look at all the things I have done.
January 1st 2016. I woke up with pins and needles which wouldn’t go away. As the day wore on they got worse and spread to other parts of my body. By the end of the day I was in a hospital bed paralysed from the neck down. This was the start of my journey with Transverse Myelitis.
In February I came fighting back with positivity. Despite losing my mobility and then losing my car I was determined that I was going to face everything full on. I was unable to get around much but we had a fun day at home when we played Popcorn Olympics.
By March it was apparent that I wasn’t getting out much, I posted on my blog a lot more than I would usually have time for. I also started coming to terms with my disability. I think up until this point I’d been sure that my recovery was going to be quick. Now, it was time to think about how I was going to cope in the future.
In April I realised I’d become a little obsessed with the trees at the bottom of my garden. I was watching them to catch the changes between winter and spring. I guess not being very mobile meant I spent more time looking at these trees during the first months of this year than I had done in the previous 2 years of living here.
I also found out in May that I’d become a finalist in the MAD blog awards of 2016. I really have no idea how I’ve made it to the finals three times, I must have some really lovely readers who vote for me. Thank you from the bottom of my heart.
One of my favourite posts of may was when I decided that I was going to add a lot more kindness in my life. Paying back acts of kindness, or even paying it forward, it’s always such an rewarding thing to do. I also started a twelve and a half week course on personal development, or more accurately personal values development. I really enjoyed The Activation Game and would highly recommend it to anyone,
In June we managed to go on holiday to Blackpool. I’d booked a holiday at a Haven holiday camp in Devon last year before I got sick. I knew that I wouldn’t make it so I rang them and they suggested that rather than cancel I could book another campsite that was easier to get to and was relatively flat for my wheelchair. So we chose Blackpool. It was a great break but a very different experience. Looking back I don’t know how we did it, but we did and we had a lovely break away. We also got to see Blackpool Circus at the Tower which is a great bonus, and they are wheelchair friendly.
Of course June was also the time of the referendum when we voted on whether our Country should stay or leave the European Union. We were a country divided on the whole debate and many friends and family argued over their opinions. The decision was made and a new word, Brexit, was added to the dictionary.
Then July comes along and the weather brightens up, well apart from school sports day when it’s almost guaranteed to rain..well it has done for us for the past three years. This year the end of school for the summer was a little more special for us as it was Star’s last year in primary school.
At then end of July it’s Boo’s birthday and this year she was nine. I normally do wonderfully executed parties with every little detail thought of, but this year it was different as I was disabled. I had no idea how I would cope with a lot of young excited children running around. I decided to keep it small and let Boo invite just a few friends to do some arts and crafts and enjoy the food and cake. It went really well and more importantly, Boo had a fantastic day.
Summer time, and in July we did, well, not a lot. I was still immobile and finding it difficult to come to terms with it. We had no transport of our own and public transport was a nightmare. We did have a fabulous day out at Hatton Adventure Farm though, to test out their new Water World feature. Also, in August we have both The Little Man and Stars birthday’s. The Little Man had a Minecraft Birthday party. Being the youngest I knew that his guests would be accompanied by a parent so I didn’t mind inviting a few more as I wouldn’t be in sole charge of them. I managed a few Minecraft themed activities. The photo booth was a big success as was his Sword in the Cake. I think he enjoyed his birthday.
Star doesn’t like birthday parties so we did the same thing we do every year and take her to Pizza Hut and Build a Bear. She also spent some time at her new secondary school which she loved and she was so excited about attending in September.
September was really busy so brace yourself… First up I got my new car and had to learn how to drive using my hands rather than my feet. It was pretty terrifying at first but I soon got used to it. September was also Transverse Myelitis Awareness Month so I was giving a lot of thought to my condition and how it was affecting me and my family. At one point I became worried that my being disabled now would ruin my kid’s childhood so I gave it some thought and came up with Ten Steps to Giving Your Kids a Happy Childhood. There are many ways you can make childhood happy and it’s the simple things that they remember most.
So September was a full and exciting month. Along with all the ups I did get down thinking about how my life had changed because of my condition. If you are interested in reading more you can find all my posts under the Transverse Myelitis tab at the top of this page.
October was busy on Raisie Bay because I took part in Blogtober where you were asked to write a blog post each day on a pre-chosen category. I didn’t manage every single day but I do have 34 posts for October! If you want to check out one of my Blogtober posts how about this one…One Thing I Can’t Live Without.
At half term we had a fantastic day out at Brick Live. We got to meet up with some lovely bloggers while there and also had the premier viewing of the Lego Scooby Doo Haunted Hollywood movie.