Today is Rare Disease Day. I’ve written lots on my rare condition and also Star’s condition, but today I wanted to write about getting help when you are rare. Star Way back in 2013, Star woke up one day with a wonky neck. I took her to the GP who said to take her to…
zebra
Zebra Child of a Zebra Mum
I have to admit, my daughter, Star, has been a zebra longer than me. A medical zebra I mean, someone who suffers from a rare condition. The problem with rare conditions is that Doctors tend to look past them and blame something else. They are looking for horses, not zebras. Star’s problems started when she…
Help Keep Families Close – Ronald Mc Donald House Charity
Today I want to tell you about a charity that is close to my heart. Ronald McDonald House Charities provides free ‘home from home’ accommodation to families while their child is in hospital. This Saturday McDonald’s restaurants are helping this charity. McDonald’s restaurants around the UK will be bringing the jungle theme to life this…
An Animal That Means a Lot to Me
Day 11 of Blogtober16 and the prompt is simply ‘favourite animal.’ Well, I’m a cat lover and proud of it. I also have two gorgeous Roborovski hamsters that are so tiny I can fit both in the palm of my hand. Well, I could if they got on, one of them is a bit of…
Eight Months Ago Today
Eight months ago today my daughter woke with a stiff neck. It got worse, I took her to the GP. It didn’t get better so I took her to A&E, and now, eight months later things are still no better. At first she was treated with a neck collar and regular physio therapy. That didn’t…
