Word of the Week – Hope

There has definitely been a hint of Spring in the air this week. It’s been warmer and lighter and I’m hoping the weather continues over the Easter Holidays.

Star broke up from school on Wednesday lunchtime and it was her last day in her current school. When she goes back at the end of April it will be into a brand new building. I’m hoping she’ll get on okay with the changes.
The other two break up at lunch time today, let the holiday begin.

I’ve not been so good this week, when you get sick on top of a chronic illness it’s never a good combination. I’ve had a few early nights this week to try and compensate. I’ve also had to go out a couple of times which I really didn’t want to do, but some appointments can’t be missed. I’m hoping that I will feel much better over the next couple of weeks while the kids are at home.

One of those appointments was  to see a new nurse for Star and we came away filled with hope that she will be able to help her with some of her issues. The bad news is that it’s going to be a long and tricky road to recovery but at least we can see that there is hope of things getting better for her.

I also have an appointment with my consultant at the rare diseases hospital (it’s brand new!) coming up, and I’m hoping that he will agree to me having IVIG treatment which I’ve heard is really good. I could even be pain free for a couple of weeks, now that’s something I always hope for.

We have some exciting things planned for Easter. We will be doing lots of Easter Baking, including biscuits, cake and the kids are hoping to make their own Easter Eggs (well we have chocolate bunny moulds!) Then we have a day out planned at a National Trust site for their Egg Hunt. We hope to have another day out coming up too, but that’s a surprise for now.

I’m also hoping for  a little home improvement during the holiday, I’m still waiting for our family bathroom to be decorated and the new cabinets put in.

So what are you hoping for over Easter and how has your week been?

The Reading Residence

7 Comments

  1. April 7, 2017 / 10:01 am

    Sorry to hear you've been sick this week, I do hope you can shake that off soon. Sounds like you've had reasons to hope this week, good news for Star and I hope you get the treatment you want. Have a lovely Easter, lots of fun planned! Thanks for sharing with #WotW x

  2. April 7, 2017 / 11:56 am

    I think that the spring air gives us all a bit of hope for brighter days ahead. I hope Star likes her new school buildings and isn't overwhelmed by the changes. I'm glad that her nurse appointment was so positive. You don't mind the long haul for treatment so much if their is hope of a better outcome. Have a great Easter break! #wotw

  3. April 7, 2017 / 12:17 pm

    Lots of hope. Spring always lifts the spirit, but it sounds like you have a few more events that are helping too. I hope Star settles into her new school building and her new nurse can help. Hope your treatments turn out as you would like. Love your Easter plans. I've got a few NT paces planned and Easter biscuits too. Roll on end of school.(Your story of sleeping through your daughter's US adventure, made me equally smile and gulp!) #wotw

  4. April 7, 2017 / 6:57 pm

    Sorry to hear you haven't been feeling too good. I hope you feel a bit better soon.
    Hooray for the Easter holidays….I'm hoping for some warmer weather too. It sounds like you have some great plans.
    #WotW

  5. liquoriceuk
    April 8, 2017 / 8:42 am

    So sorry to hear that you have been ill this week and hope you are feeling better now. Fingers crossed that the new nurse will be good for Star and hope that you have some hope for being pain-free for a while after your consultant appointment. I love the sound of your Easter holiday plans – we've been doing some Easter baking too and will be doing a NT egg hunt at some point as well 🙂 #WotW

  6. April 8, 2017 / 4:20 pm

    Hope you're feeling better and have a fab easter break – it's been a long time coming this one hasn't it? #wotw

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