We have another week of the holiday left here. In fact we have a whole week and two days because the kids don’t go back until next Wednesday. That is apart from Boo who is doing Easter School in the mornings this week. She needs to get the extra practice in for her SATS in May. I could get on my soap box about the SATS but I feel I’ve done that enough already; and it’s totally up to Boo whether she wants to go to school this week or not. She can’t go every day because we have a few appointments that clash.
Last week turned out to be pretty busy, I actually went out four days in a row! Of course, I had to go to hospital for two of those days. Then we did some food shopping and then some more fun shopping. The kids ended up with lots of new goodies last week, but mostly books, pens and decorations to use on their Littlest Pet Shop toys. It’s amazing how thrilled the girls are to be in possession of a new packet of shiny stickers. I also bought them some clay to do some customisation’s. The Little Man wanted a Minecraft Sticker book which was a good buy as he has spent ages sticking in it. He also enjoyed sticking his football player stickers into his Panini World Cup album.
We decided to stay in all weekend, but the Little Man still popped out with his Dad to run some errands. It really has been a life saver having Graham driving. He’s only had his licence for just over a year but he does most the driving now. I’m still waiting to see if the DVLA will let me have my licence back after medical checks. I haven’t been behind the wheel in a long time. Fingers crossed that I won’t lose my licence, I’ll be devastated at the thought of never driving again.
This week will be busy later on with hospital and clinic appointments for Star and the Little Man. We are also hoping to fit in something fun but I have to be careful now as we overspent last week.
Next Monday we are going out for a meal on my niece’s birthday which should be a nice family get together. I’m thinking of going without my wheelchair, if Graham can drop me right outside the door I know I can navigate inside the pub on my crutches.
I have felt some benefit from my treatment last week, although there was a wobble this weekend when I ran out of medication. Graham went to pick it up from the chemist that had my prescription on Saturday morning, but it was closed. I survived on a lower dose, but I really noticed the difference.
While I was in hospital last week the nurse asked me if I’d considered having the treatment at home. I was a bit flabbergasted and told her I knew nothing about it.
It then got me thinking so I asked about it on my help group. A few overseas patients take the immunoglobulins with a subcutaneous injection so I looked up the system that they used. It is available here but it depends on whether your consultant can get it approved and you have to be trained how to use it. The more I think about it the more it appeals to me. I will think about asking my consultant next time I see him. But I’ll also ask that nurse for more information too.