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Raisie Bay

sick

Flu, Strains, Hunger Tales and Conkers

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If you thought last weeks post was a downer, then you’ve not heard the worst. I left you with two kids down, off school sick but it didn’t stop there. It turned out to be some kind of gastric flu, fever, congestion, upset tums, headaches…and general all round feeling bloomin’ awful.

Star and Boo barely moved for four days! No1 son was much the same but he stayed in his bedroom where I could hear him moaning all day. I kept the Little Man well away from them and eldest daughter stayed in her room as much as possible (she’s lucky she has her own bathroom too!)

It was obvious that me and Graham wouldn’t escape the bug though.

Weekend of Hell.

photograph of a mug in foreground with a bed in the background

Photo by David Mao on Unsplash

Thursday I went to bed feeling unwell, my hands and feet were like ice and I just couldn’t get warm despite the heating being on in the bedroom. I woke on Friday with a migraine. After doing nothing all day I crawled to bed just before 6pm as I just needed a dark room to lie down in. Then I started vomiting. I’d not eaten more than a piece of toast all day, but the vomiting didn’t stop all night long. It felt like I was turning inside out.

Saturday, I was really poorly and Graham was also feeling ill. Thankfully the girls were starting to feel better and No1 Son, although still not out of his room, was gaining more of an appetite.

Sunday was much the same but the girl’s were looking much brighter. I started having a pain in my side which was really sore and unbearable. I couldn’t get comfortable and when I went to bed, I couldn’t lie on it.

New Week

Monday came and the girls went back to school. The Little Man was still fit and healthy and so was eldest daughter. I had to go to the GP and it wasn’t until I saw all the posters for the flue jab that it struck me. We must have all had some type of flu and the Little Man and Eldest Daughter didn’t get it because they had the flu jab! They were immunised, safe, protected….I’m definitely making sure I get my flu jab next.

Anyway, back to my GP visit. I’d gone because of the pain in my side. I’d managed to pull a muscle and it was very tender. That’s the joy of Stiff Person Syndrome. My muscles contract on their own in painful spasms. When I’m not well the spasms get worse. So, where someone may pull a muscle by lifting something heavy or over exercising, I can pull one by doing nothing at all.

It’s starting to heal now though, so no worries.

Hunger Games and Conkers

pink background with a white empty plate. On the plate is a sad face drawn with pen and a knife and fork

Photo by Thought Catalog on Unsplash

Last night I had two stressed out girls. Today is Enrichment day at school and Star’s year is doing ‘Hunger Games’ while Boo is going to the adventure center, Conkers.

Star has been told nothing about what they are doing for the Hunger Games, the teachers have told them it’s a surprise. Star doesn’t do surprises, she doesn’t like the change of routine either. The school is usually really good in preparing the autistic kids for these kinds of things, but not this time. I’m not sure if it because she has been away from school and they haven’t had the chance to take her to one side and prepare her, or if it’s because they really want to keep all the activities a surprise from everyone.

It did feel a bit weird for me this morning, waving my daughter off to the Hunger Games, she’s no Katniss Everdeen!

Boo’s problem could probably be described as the Hunger Games too. She was stressing out because she doesn’t like packed lunches. She’s not a big fan of sandwiches and when we usually have a packed lunch I pack her some different things to eat. However, because of her being off school last week I did not even know she had a trip until she came home yesterday. I may have still had time to have made her something but she wouldn’t tell me what she was worried about…….until five minutes before she was going to school! I know, I should have realised, but I guess not feeling so good it hadn’t occurred to me. I offered to put some snacks in her bag but she refused in case she got into trouble.

I’m pretty sure that they will both have good days, and neither of them will go hungry, but, oh the stress.

The Next Chapter

The illness has left the building, so that’s the best point to end on. It’s hard to think of any other positives after such an awful week, but getting well again is good enough. I have missed my treatment for this month, if I did go in now I’d have to change all my appointments for the year and I’ve arranged everything around them as they are now so changing them will just cause problems. So, I’ll just have to wait until my next round.

Next week I’m sure I’ll have better news to share. It will be half term at last!

Thanks for reading x

Debs Random Writings

Word of The Week – Sun

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Ok it may have disappeared right now, but my word of the week this week is SUN!

We spent the entire bank holiday weekend stuck indoors with the curtains drawn, blocking out the sun and the neighbours having fun in their gardens. We were sick! It just kept coming as one after another we were knocked out by a sickness bug.

We knew the sun was out there though and it made us feel even more miserable.

The kids went back to school on Tuesday, and then it was into the garden when they came home. Making the most of the sunshine.

I was still ill but I had to go to the GP. The surgery is only at the end of our street and I felt so poorly as I got into my wheelchair to go, wishing I didn’t have to. But, once I was outside and I breathed in the fresh air and soaked up some sunshine, it made me feel better, like a skin absorbed tonic.

Yesterday, Graham had to go to a friends funeral so I had to pick up the kids from school. I actually enjoyed the journey in my chair. It was a little cooler but still sunny and the trip turned out really good. We even stopped off for ice cream on the way home.

The sun is hidden behind some thick cloud at the moment, but I do hope it returns soon. We have some catching up to do.

How has your week been?

 

The Reading Residence

 

 

Word of the Week – Sick

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We started the week with a poorly Star. She had an almighty migraine, she could barely lift her head up and felt sick. For two days she did practically nothing while it took over. It’s horrible to see your child suffer like that, especially when you are familiar with migraines and you know how awful they can be. I’m going to ask her GP if there is anything stronger I can give her.

On Wednesday morning she woke up feeling much better and went off to school without any fuss.

I spent most of Monday and Tuesday in hospital, but I wasn’t sick. I was getting my IVIG treatment which will make me feel a little better for the next few weeks.

Then on Wednesday night, I was woken from a deep sleep by a vomit covered Little Man. He was in such a mess and so was his bed. I cleaned him up, got the spare bed out in our bedroom and settled him there with a bowl for emergencies. There were several emergencies all night long and we barely slept at all.

On Thursday morning he was still being sick. I didn’t have to call the school though because it was closed for the elections. He finally settled and went to sleep on the settee. He woke up around mid day and was sick again. I didn’t think it was going to end, but it did, that was the last time, phew!

I’m now looking forward to a sunny, sick free weekend!

 

The Reading Residence

 

Word of the Week – Hope

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There has definitely been a hint of Spring in the air this week. It’s been warmer and lighter and I’m hoping the weather continues over the Easter Holidays.

Star broke up from school on Wednesday lunchtime and it was her last day in her current school. When she goes back at the end of April it will be into a brand new building. I’m hoping she’ll get on okay with the changes.
The other two break up at lunch time today, let the holiday begin.

I’ve not been so good this week, when you get sick on top of a chronic illness it’s never a good combination. I’ve had a few early nights this week to try and compensate. I’ve also had to go out a couple of times which I really didn’t want to do, but some appointments can’t be missed. I’m hoping that I will feel much better over the next couple of weeks while the kids are at home.

One of those appointments was  to see a new nurse for Star and we came away filled with hope that she will be able to help her with some of her issues. The bad news is that it’s going to be a long and tricky road to recovery but at least we can see that there is hope of things getting better for her.

I also have an appointment with my consultant at the rare diseases hospital (it’s brand new!) coming up, and I’m hoping that he will agree to me having IVIG treatment which I’ve heard is really good. I could even be pain free for a couple of weeks, now that’s something I always hope for.

We have some exciting things planned for Easter. We will be doing lots of Easter Baking, including biscuits, cake and the kids are hoping to make their own Easter Eggs (well we have chocolate bunny moulds!) Then we have a day out planned at a National Trust site for their Egg Hunt. We hope to have another day out coming up too, but that’s a surprise for now.

I’m also hoping for  a little home improvement during the holiday, I’m still waiting for our family bathroom to be decorated and the new cabinets put in.

So what are you hoping for over Easter and how has your week been?

The Reading Residence

Word of the Week – Illness

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I so wanted my word of the week this week to be positive but alas it’s not to be as our household has been struck by the dreaded lurgy! It all started last week when Star was sent home sick from school on Friday. We took her to the GP and he diagnosed a throat infection. But she seemed much worse than just a sore throat. She had a temperature, a headache, a runny nose, and an upset tummy. She went to bed early and was really not well. Then this week we have had Boo sent home from school with a high temperature and much the same symptoms. And the following day it was the Little Man’s turn to be picked up. We figured it wouldn’t be long and I’d been tempted not to send him in, but in the morning he was fine, no temperature and looked ok. By lunchtime he was throwing  up everywhere and in fact has turned out to be the most poorly of the three. Bless him.

Graham has also been struck with the bug, feeling rough and complaining a bit but he’s been getting with stuff mostly, he has too, I’m not much use anymore.
Then there is me, I didn’t escape. Of course catching a bug like this exacerbates all my other conditions and I’ve been in so much pain. If lying awake at night unable to sleep because of your cough or blocked nose isn’t bad enough, imagine trying to cope with your spine feeling as though it’s on fire, every single disc and joint from your neck to your bottom just burning and stinging and creating the most incredible pain that you can’t bear to move, not even reach your tissue. It’s not much fun and sleep has evaded me most nights. Then I’m spending the day it what feels like a drunken stupor, I’m trying to function but it’s not happening. 

Finally, I dragged my sorry butt to the doctors only to be told to go to A&E, which is where I spent most of yesterday. I have pneumonia! Thankfully they are letting me treat it at home, I just have to go back if I’m no better in 48 hours.

Next week I want a happy word to share, please!