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  1. chaosinkent

    I have never heard of this and absolutely did not realise you had this condition. Wow! My hat goes off to you as I think you do an amazing amount of work and I often wonder how you manage to do it all. Wow! Just wow!

  2. Rainbowsaretoo

    Wow, I think it must be quite helpful to read another's story about such a rare condition. And helping spread the info about it will only show others what the options are you. I think you are an amazing person – and particularly nice too 😉 #TheMMLinky

  3. Kat

    Sounds like such an interesting read! I imagine that must be really difficult to deal with and wish you luck in finding treatments that work best for you! #mmlinky

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