Whenever I turn up to an appointment with my adult son or teenage daughter people are always shocked. I’m in a wheelchair, surely they should be looking after me? There was even a time when my daughter was going for a scan and the nurse thought it was me that was the patient. She was…
stiff person syndrome
Summarising My Chronic Condition
Each month I join in with Sheryl’s Chronic Illness writing prompts. She has built a lovely community of people who understand what it’s like to be constantly ill. For those that don’t, she gives us a voice to help spread awareness. These are Sheryl’s prompts for January, Summarising, Crossing, Moving, Rebuilding and Expecting. The New…
Stiff Person Syndrome and What it Means for Celine Dion
I have had Stiff Person Syndrome for almost seven years now. Celine Dion is newly diagnosed but she is the first celebrity that has been diagnosed with this condition. What does it mean for her? Well, it’s not an easy ride and that’s about all I can honestly say. From Celine Dion’s announcement on Instagram…
Finishing to Wishing, My Chronic Illness Post for November
Each month I love to join in with Sheryl from A Chronic Voice with her chronic illness writing prompts. This month she has chosen, Finishing, Fatiguing, Easing, Comforting and Wishing. Using the prompts I can let my readers know how I am coping with my chronic illness each month. I have a rare neurological condition…
My Monthly Chronic Illness Write Up Post for December
I generally write up a post each month about my chronic illness for those that wish to know how I’m getting on. I often join in with Sheryl’s writing prompts but she’s been too busy recently to do them with the Christmas Season upon us. So I’m doing my own Chronic illness write up post…
