Those of us in the Stiff Person Syndrome community have long awaited the documentary I Am Celine Dion, especially since she admitted on Instagram last December that she had Stiff Person Syndrome. I did a post about it here. I watched it as soon as it was released on Prime. I think Celine Dion had…
SPS
Stiff Person Awareness Day 2019
Tomorrow is Stiff Person Awareness Day and I thought I’d try and give you some insight on what it’s like living with Stiff Person Syndrome (SPS) First of all, it seems as though it’s different for everyone. I’ve spoken to, and met, many people with SPS but no-one has exactly the same symptoms. Diagnosing SPS…
Two and a Half Years (and a couple of weeks)
In the Beginning Two and a half years and a couple of weeks ago I woke up with pins and needles and ended up in hospital paralysed. It seemingly came from nowhere, but I now believe I did have hints that something was happening with my body. After two weeks in hospital I came home…
Keep on Hoping, Keep on Wishing but Most of all Keep on Believing
Last week I went to A&E because I really thought there was something wrong with my heart. It felt like someone was sitting on my chest, crushing me and making it hard for me to breathe. I called my GP but I was told to go straight to A&E. I was given a red card…
One In A Million
I’ve just finished reading One In a Million by Jaqui Atkinson I read it in two days, it was really difficult to put down. Here is the ‘blurb’ Imagine all of your muscles going into spasm, and being unable to move a single part of your body. Imagine being in excruciating pain. Then imagine how…