So last week I had my IVIG treatment and I’m pleased to report that I have had no side effects at all! The last time I was so ill with the most horrific migraines, including a hemi-plegic migraine which paralysed me. This time I’ve had zilch, nothing, not even a bad headache. I think the hydration thing really worked, I drank so much water to filter down the thickening of my blood rushing to my head.
So, my third infusion was much better for me in the way of side effects.
I have also felt better from my condition. Not miraculously better, I’m still not walking and have many symptoms, but better non the less. I have felt slightly less neuropathic pain. This is the constant pain that I feel, it never goes away. But this week it has been slightly easier to bare, for a couple of days earlier in the week it was much easier. I had two nights comfortable sleep without waking in spasm. The myoclonus have eased off a lot, which is great. I’m still getting the startle reflex, but it’s nice to be not twitching all the time.
I just hope this feeling better lasts.
I could have taken advantage of feeling better this week by going out more, but hasn’t it been so cold? I just couldn’t bear to go out in it, so apart from a visit to the Vet with our cat I’ve not really been out. Also, I don’t really want to catch that nasty flu bug that’s going around, I have every sympathy for those that have succumbed to it, it sounds so awful.