It’s a Week of New Things

a purple star with the word, new, in the middle

Last week my word of the week was School as we had found a new school for the Little Man. We went out on Saturday to buy his new uniform and although we got everything we need the day didn’t end well. More about that in a little while. First I want to tell you that the Little Man absolutely loves his new school. He’s made lots of friends already and thinks his teacher is great. In one week I’ve found him keen to read his book just so I can give him his comment in his reading log (he’s never been keen before) and he’s been singing songs to me that he’s learnt. 

He is happy and excited to go to school in the morning and comes home bubbling. I have missed him like crazy but it was certainly the right decision to send him back to school, he is so much brighter.

The Crash

We also have a brand new, I mean, so new it’s only just over a month old, car! It’s a top of the range Mazda with leather seats and so many features, including many safety features. Graham is in love already. BUT, it’s not ours really, it’s a courtesy car while our poor Skoda, Bernard, is being repaired. 

After uniform shopping on Saturday we were involved in a car accident. While waiting to turn right another car ploughed into the back of us at speed. Thankfully the girls were safe at home with their big sister so there were only three of us in the car.

Graham was fine at the time but has since become stiff and sore from whiplash and is suffering from recurring headaches. The Little Man was hysterical, but it was more fright than anything. He hit is head off my seat, despite being strapped in. He has bruising on both his legs and also has a stiff neck and shoulders. 

I don’t even remember what happened but I remembered seeing blood from my foot and my shoe was missing. My back was really hurting and I’d gone stiff in spasm from my condition. I can only surmise that the shock of the accident caused my startle reflex to set in and I somehow managed to get pretty bashed. I was taken to Accident and Emergency by ambulance, but my experience at the hospital was not good. The Dr had no idea how to treat me because my stiffness meant he couldn’t make his usual examinations, after poking my back and sending me into a massive spasm again. It’s difficult to examine someone for spinal injuries when they already have a knackered spine. I can’t blame him for not knowing what to do, nobody ever knows how to deal with me.

I left hospital unable to weight bear on my left side and my back has been hurting like crazy. But, it is slowly getting better so I just need to heal. If it was getting worse I would be worried. About three days after the accident I also suffered from the stiff neck and shoulder pain. My ankle is also swollen, bruised and grazed. But the main thing is, we survived. 

New Plan of Treatment

On Tuesday I was back at the hospital but this time for a scheduled appointment with my consultant. We first discussed the IVIG which I am feeling benefits from now that I’ve been having it for a year. Changing it to every month, rather than every three months, has made a big difference. 

Then we discussed all the new issues I’d been having and he told me that they are all side affects from my medication. I’ve been taking this medication for three years now without side affects, but now that the IVIG is in my system there seems to be a battle going on with the IVIG and my medication. So, the plan is to reduce the medication and adjust the IVIG so that I get the best benefits without the side affects. 

It sounds good to me. I’m quite happy to be pumping less drugs into my body, especially if it gets rid of the side effects.

Other issues I’ve been having can be put down to me lacking in B12 and folate. My medication can stop my body from absorbing these from my food so now I am taking supplements for four months to help. 

I am actually beginning to feel more positive. I know there are other drugs that can be used to help my condition, but as it’s so rare it’s hit and miss as to whether they work. So although, although I’d give anything to take something to make me better, the thought of taking even more drugs was making me feel anxious. I’m so hoping this works out, my consultant seems quite confident it will. 

The Reading Residence Debs Random Writings

10 Comments

  1. October 11, 2018 / 3:33 pm

    Ahh! I am so pleased that your little man loves his new school. It sounds like he’s settled in well.
    The crash sounds awful. I am so glad you are all OK apart from bumps, bruises and whiplash.
    It sounds like the appointment with the consultant went well. x

  2. October 12, 2018 / 12:49 pm

    I am so pleased to hear that school is going well, sounds like Little Man is having a wonderful time there. And good news on your meds, great that you’re beginning to feel more positive. But so sorry to hear about your car accident, it sounds absolutely awful. I hope you’re all well again soon x

  3. October 12, 2018 / 7:14 pm

    It’s really lovely to hear that your little man is all settled in his new school. So glad that you are all ok after the crash. It could have been much worse! Thankfully it wasn’t!
    It sounds like your appointment went really well. Onwards and upwards!

    Thanks ever so much for sharing with #MMBC. x

  4. October 12, 2018 / 8:39 pm

    Aw I am over the moon little man is in a new school if he is anything like Joe he will be a different child, we are still pursuing a complaint with the last school and I wont stop until we get answers and they start following their anti bullying policies. Omg the crash sounds scary thanks god it was not more serious although you all sound quite battered. Hope the new mediation routine works for you xx

  5. October 13, 2018 / 9:52 am

    Wonderful news about little man liking school, it must be such a huge relief for you. I’m sorry to hear about the crash, how frightening for you all, I hope you are starting to feel a little better. It sounds like you are feeling much more positive about your treatment, hopefully the supplements will help with the deficiencies. xx

  6. October 13, 2018 / 6:48 pm

    Awww it such a receive to know they have settled and feel good about school. Sorry to hear about your crash, so fruatrating. All the best with the new treatment X #wotw

  7. October 14, 2018 / 9:35 am

    So pleased to read that the little one has settled at his new school. Sorry to read you werre involved in a car accident. May everyone mend soon. #mmbc

  8. October 15, 2018 / 5:48 pm

    Hi Anne, I felt a glow of happiness to read that Little Man is settling in nicely at his new school, so I can only imagine how you felt. Every child should be able to go to school without having to worry about being bullied, and I hope that your sons continues to enjoy the school for as long as he needs to be there… That was a hell of a knock you took in Bernard, so there is no surprise that you are all feeling a little battered. At least your condition doesn’t seem to have been made worse by the accident… A reduction in medication sounds good, so fingers crossed that it works for you. You must feel like a human guinea pig at times not knowing what the treatment brings?

    Thank you for linking up with #keepingitreal

  9. October 15, 2018 / 10:21 pm

    Oh, how scary. Hope you are all feeling better now. Glad to hear that Little Man is enjoying his new school. What a difference, although I’m not surprised you are missing him and your time together. Hope the change in your medication is a good solution. What a week for you all. #wotw

  10. October 17, 2018 / 3:36 pm

    So sorry to hear about your car accident and I’m so glad that none of you was more seriously hurt. I hope that the soreness is starting to ease for you all now. Glad to hear that Little Man is settling in well to his new school and that the IVIG is working well for you. Fingers crossed that the reduction in medicines works out well for you too. #WotW

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A little Note About Positive Reviews on Raisie Bay

A little Note About Positive Reviews on Raisie Bay

Some people only write reviews when things go wrong with products, which is good because it lets people know that there could be potential problems. I’ve also seen negative feedback with say things like, I had to return this item because the colour did not suit me…is this useful?

I write reviews on most items I buy because I like to give genuine feedback. If I have a genuine problem with a product I will write my review in the appropriate place.

I write reviews on my blog too, but they are mostly positive. Why? Because I only write reviews for the things I’ve loved. If I don’t love them I let the person who sent me them know with details why and then let them decided if they would rather me write a negative review or not write one at all. It’s always the latter.

This is my blog, my place and I’ll let you know about the things I love. If you want to find out what other people have hated about the product then you will need to look elsewhere.

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