Reader Interactions


  1. Louise (Little Hearts, Big Love)

    It must be worrying to have that risk of falling – I’m glad you’ve never actually fallen over though. I do hope that you manage to find treatments that will help slow down the progression. I completely agree that you can choose to be happy – sometimes it is harder than others to look for things that make you happy, but it is a choice. I love that quote from Brene Brown. I’m glad you’re able to stay positive. That’s a lovely photo of you taking the kids to the fete. I’m sorry that Little Man was too young to remember you as a healthy mum. Good luck with transforming his bedroom and I hope he likes it. #MMBC
    Louise (Little Hearts, Big Love) recently posted…Friday Focus 01/10/21 – Gentler

  2. Sarah Warburton

    Such an insightful and honest post, Anne, I always learn such a lot from these monthly prompt posts about how others deal with their illnesses. And I am glad that you have avoided falling. I loved your quote:
    “When you live with a chronic illness you can’t always choose how your body is going to behave, but you can choose how to deal with it”
    It’s not always easy, but definitely, words to live by.
    Take Care
    Sarah W x

  3. Fee

    It must be be a worry to have that risk of falling – I’m glad you’ve never actually fallen over though, and you make sure you have something to hold at all times. I can’t imagine what it is like to live with a chronic illness especially one as rare as yours, and I hope you find a treatment that works for you and like you say your condition is progressive, but so is medical research x
    Fee recently posted…Blogtober Tag 2021

  4. Claire Evans Evans

    So glad you haven’t fallen. I agree with the comment above that although your condition is progressive, medical research is too. I also believe that a positive mind makes a big difference, although of course you’re allowed low moments too. It’s funny when you look back and realise you weren’t big at all. Such a good reminder for us all to appreciate what we do have while we have it. Sorry, you didn’t manage to do your garden this summer, I failed at mine too and it’s so hard to get out there at this time of year as it’s dark by the time I’m free. Good luck doing your son’s room- it will be lovely xxx

  5. Jenny Clarkson

    I love your saying, ‘We can’t stop the leaves or ourselves from falling, but we can hope that the transition is gentle’. Like you, I have a progressive illness (secondary progressive MS) and, though I am not positive all the time, I do try and be as much as I can because being otherwise just makes me emotionally worse! We sound the same in terms of kids too – my son was 5 and my daughter 3 when I started having problems. They can’t remember how able I used to be, except my son remembers me chasing him and playing ‘kissy monster’.

    Thank you for the lovely read 🙂

  6. John Gatesby

    Living with chronic ailments is not easy and very challenging and then patients look perfectly fine from outwards, so your writing about it goes a long way in spreading awareness about it.

  7. Carla Corelli

    Anne, your strength is inspiring. Thank you for your courage to share your experience with us. My struggles are different to yours – they are mental health related – but I understand how overwhelming it all gets sometimes. I am sending you a hug and lots of love xxx

  8. Eveline @ Ketaminescottsdale

    Reading this while in a high level of pain. But sometimes even an opiate seems to not help certain types of pain. Like when I have inflammation based pain or tendinitis it helps but once you move it hurts again.

    Opiates are not always the answer but can help heavy pain. However there are many alternatives—though not always the easiest to access for most people

Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.

error: Content is protected !!