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    • Anne Sweet

      No relief. I visited my consultant last week. (I have 6 monthly visits) and it was just the same as every other appointment. There was a glimmer of hope, depending on my bloodwork, I may be put forward for a more aggressive treatment. No guarantees though.

  1. Carol

    You’re so brave to write so openly about your chronic illness. My family and a couple of friends are the only ones that I share my health problems with. As I age every year I have to accept and adapt to new problems, pain, and inability to do what I want to do. I understand your brain fog although I describe my exhaustion differently. I say consider my body a tub full of water. With RA exhaustion I can wake up totally emptied. Someone pulled the plug and emptied me. I don’t have the energy to get out of my chair and can’t even think well. Saying a prayer for you and your family. God Bless.
    Carol

  2. Kim Carberry

    The brain fog sounds so frustrating. It must be hard accepting your disability and things like the modifications to your home are a constant reminder. I wouldn’t be keen on having a lift in my house either. What would happen if it broke down when you were in it? Eek! Good luck with keeping up with the organising and cleaning.
    Sending love and hugs to you. x

  3. Max

    You find it difficult to trust others, especially doctors, because of your condition and its nuances. I heavily relate to this and have spoken about this as well. I’ve once gone to the doctor as i had chronic tendinitis. Essentially, they were unable to figure out the cause of my tendinitis and so it appeared as if they believed I was faking it. Can you believe that? I get called a fraud for their inability to help me. Im sorry you feel that way, Anne. Its an awful feeling.

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