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  1. Kim Carberry

    Aww! Bless her. I really do feel sad for Star and everything that she is going through. She really is a star having to go through all the failed attempts at getting the catheter in and the MRI scan. It sounds like the hospital were great and you were looked after. I hope the catheter helps and does the trick of giving her kidneys a rest and things go back to normal for her. It really is so unfair for someone so young.
    Sending love and hugs. x

  2. Astrid

    Oh my, all this sounds so distressing! I really do hope Star feels better soon and this issue doesn’t come back. Either that or you’ll get some real answers when the results of her MRI come in.

  3. Joanne

    OH I am so sorry to read about this ordeal. I hope you get some answers about why this is happening and how to fix it. I am sure it’s very disappointing to put off college but health must come first.

  4. Victoria Prince

    I read all your posts but never comment cos I can never seem to find the words! Life is so unfair, and I feel for you all so much. I really hope there is some kind of light at the end of the tunnel soon.

    Re the catheter bags – attach the night bag to the leg bag? My bladder packed up a few years ago so I am very familiar with catheters and that’s what I do 🙂 much easier and less invasive imo

    • Anne Sweet

      Thank you, I would never have thought of that, it does seem easier. She won’t let me go anywhere near the top of the tube. Thank you for commenting too, I love feedback of any kind.

      • Victoria Prince

        Hopefully she’ll find it easier – I have a supra-pubic one but it definitely works better for me. I feel it also reduces the risk of infection as I’m not constantly swapping bags out, but that may just be in my head! You can also get different capacities (both for leg and night bags) and different tube lengths for the leg bags, as well as different ways to attach the leg bags to the leg – I never got on with the standard straps that go through the top and bottom, but there are also leg bag holders (a “pocket” for the bag), stickers or straps that the tube clips into. You can also get bags that are worn round the waist rather than attached to the leg. Sorry, probably more than you wanted or needed to know but I know how hard I found it initially and how much of a difference little things made like finding a way to attach the bag to my leg that I got on with!

  5. underpad

    Try to find care providers who are willing to provide care for your loved one outside a hospital setting and in the home. For some care providers this may mean home visits, for others it could mean telehealth appointments.

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