This week I am on a warpath. I feel guilty for not pushing sooner, but I put my trust in others and now I am angry and upset. My little Star has been in pain for more than thirteen weeks now. And the hospital have done nothing but mess us around and possibly made her…
hypermobility syndrome
My Little Zebra
You may have notice a new tab at the top of my blog with says Zebra Hooves, this is where I am now going to keep my posts about Star and her progress and problems. Currently I am trying to get a proper diagnosis for her, she has already been diagnosed as having high functioning…
Star’s Neck – The Saga Continues
It seems like so long ago now but back in early August Star suffered from a subluxation of the atlanto occipital joint in her neck. In layman’s terms, she twisted her neck. She was admitted to hospital for a short while but they seemed unsure of how to treat her, first thinking of manipulation under…
This is My Child, This is My Star
I am writing this post for the Mumsnet #Thisismychild campaign to raise awareness about the issues facing parents whose children have special needs, and myths about disabilities. This is my child, This is Star. It is her eighth birthday today and here she is stuffing her face with pizza. We had considered a birthday party…
Star and the Broken Neck
Star is hypermobile, she was diagnosed almost two years ago when we were having the pain in her knees investigated. We didn’t really understand the full implications, or that there were several types of hypermobility. We have now been promised that she will have a full diagnosis of the type of hypermobility she does have…