The New Year is a time of reflection and also a time to think about the future.
I’ve mostly been thinking back on the last three years and my illness. It all started on January 1st 2016 when I ended up in hospital for two weeks. A year later I was finally diagnosed with Stiff Person Syndrome plus PERM.
I had to learn to walk again which was difficult, and I had to learn to cope with a completely different life. I was independent and strong, but now I’m dependant and weak. People say I’ve come a long way since I was first sick, but they are just being polite. Yes, I can walk a little, but I know I’ve not really made that much improvement. You learn to live with the pain and discomfort and just get on with it.
I’ve tried to keep going, keep life as normal as possible especially for the kids. We’ve had holidays and days out and lots of fun together. We have made lots and lots of memories.
The past year I’ve found out how intolerant people can be of someone chronically ill. I’ve had personal attacks and people just cut themselves out of my life. Talking to other sufferers, it appears to be a thing. It’s not nice. It hurts. But for whatever reason that finally made them do it I have to forgive them and move on with my life.
Three years ago I had big hopes of being in a better place by now. I think that has been playing on my mind over the past few weeks and bringing me down. But now I have to keep looking forward and keep on fighting.
I have some exciting adventures planned for this year and may even go abroad for the first time. I want the kids to experience so much more before they grow up..and boy do they grow up quick. My illness is progressive, but I can still fight it. I’ve been looking at other treatments rather than medicine. I think my IVIG is working better which is great, but I have cut down and even cut out some of my other medications.
The future doesn’t have to be bleak, even with a chronic illness.
I don’t do New Year resolutions, but if I had one this year it would be to enjoy life as much as possible.
Do you make New Years Resolutions?
Thanks to all my readers and supporters over the last year, I really appreciate you all.
I would love for more people to join me on fridays for my Word of the Week linky. It’s a simple link up where we all share our weekly round up and sum it up in a word or phrase. Do come along and join us if you can. Look out for my tweets on Friday.