Reader Interactions


  1. Jen thebrickcastle

    You will walk again. You have far in such a short space of time. What has happened to you is so cruel, yet you have coped so very well. There was a lot here I didn't know, thank you.for sharing so much with us xx

  2. Julie

    Thank you for posting this clear explanation. I am a sufferer too but luckily not as severe as you. It's a frightening illness and it's wonderfully supportive to know there are others out there. Keep working at it xxx

  3. TheMadHouse

    Thank you for being so open and honest about your condition. I had never come across it before you got it. Living with a chronic condition can be hard, but you have such a great attitude.

  4. Barbara

    It seems all cases are different aren't they ? And to me that is the worrying thing, l think the reason l had an attack of TM is the fact that 3 members of my family , two now deceased , suffered Chrohn's disease…auto immune disease is in my opinion linked …the onset of my brothers Chrohn's started when he got terrific leg cramps an tingling , so bad he had to stop his car, my TM came on that way, then progressed to paralysis in my right leg , and severe nerve damage (persisting today) in my left, l also had banding around my trunk….five years on l try to remain positive , and still have no medication , five days of steroids on onset that's all, and the doctors said they didn't know how they helped….

  5. rebeccabeesley

    I still hoping and praying for a full recovery for you. What useful information about such a rare condition. will share on twitter x

  6. anthea

    Wow, I have never heard of this before. It must have been and probably still is a very frightening condition to have. II hope it settles enough for you to have more'normality' if that makes sense and I wil definitely do more reading around it… scary that your dr and never heard of it!

  7. Karen L.

    I was diagnosed with TM about a 1 1/2 ago. I was devastated, didn't what was TM. I started reading about it, got more of a very scary feeling. For day and days I cried. I've good progress in the beginning, then had a setback. I went from walking with a walker, now presently in a wheelchair, learning to walk again. I don't if I will ever get back on my feet. I 'm just hoping and praying for my recovery. I like to share others experience with this horrible disease. I think I am in denial as to what is really happening. Anyone with this horrible disease , please share with me, send me a email at landkr1@cox. net. Thanks . My name is Karen Landry

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