Hospital
I’m off to hospital today, I’m hoping there will be a few more people than yesterday on the day ward.
It’s not that I mind being on my own, but I have made quite a few nice friends on this ward.
I only have two days to do this time, It used to be a whole week but that was every three months. Now I get my IVIG every month and I think it’s making a difference. The last one only wore off towards the end of last week. I just have to remember to keep hydrated and ward off those horrid migraines.
Transport
Last week I went to Naidex44 which is a disability show at the National Exhibition Centre in Birmingham. I got to try out lots of different wheelchairs, but I’m still not sure what to save up for. I know which one I’d really like but it’s out of my price range.
Graham also had a look at some cars. I was interested in the Wheelchair Accessible Vehicles but Graham was not so keen. At least if we had one I would be able to have a more robust wheelchair that didn’t need to be folded to go in the boot!
School
We had a meeting at the school about the Little Man and they are hopeful that they can sort things out. He’s already coming home a little happier and not refusing to go to school. We will have another meeting next week to see how things are going.
This evening, Graham is off to Star’s school for a talk about her trip to France next month. Star is really excited about it but I’m sure the nerves will kick in when it gets closer. I am nervous already, but I need to allow my children to experience new things and try not to worry.
Boo is also off on a residential next month but she’s staying in this country at least. I’m not so worried about her, she can be fickle but she is so much more independent than Star.
In other news
I have a frozen shoulder and it’s been giving me some real trouble lately, in fact I barely slept last night because of the pain. I’ve tried painkiller, a pain relief cream, massage from my shoulder massager (which is rather lovely) and some gentle exercises. It’s starting to ease off a little now but I’ve heard it can take years to heal.
I’m also having a problem with the stairs in my house. I have two handrails which I use to pull myself up and support myself down. However, twice in the last week I’ve been unable to walk down the stairs, my legs have just given up on me. I have tried getting down on my bottom but that’s one of the places I get a lot of pain. So I’ve ended up having to go back up, with help, and go to bed to rest. It’s really annoying and pretty scary.
To keep myself busy I’ve been reading a lot and listening to my audio books. I’ll be writing some reviews soon. I’ve also been crocheting a lot and I’ve completed two more squares of my Crochet Along blanket and I’ve started on making an arctic fox for Star. This will be my third animal creation and each one is getting a little better as I get to grips with the techniques. Can you believe, I’ve just realised that I have sewn the arms wrong on the last two, I did wonder why they were too floppy!
How has your week been? Have you read any good books lately, or made anything creative?
The last week has been filled with doctor visits and tests. I’ve started a 5 week series of shots in both knees that is supposed to make it easier to walk and make more cushy stuff in the joint. I had the 2nd shot yesterday and my knees are feeling better today. (Hurts like the dickens when fist get the shot.) Got my fingers crossed that it will work well. Sorry about the stair problem. I really couldn’t live in a house with stairs – my kness are a mess and my wrists, hands, and ankles aren’t great either. Hope this week is a lovely one for you and your family. #Keepingitreal
I hope this week is improved and your shoulder is a bit better. I hope you get some help with the school. Sending lots of love and hugs xx
Hi Anne, I’m glad to hear the change in treatment is working better, fingers crossed it stays that way… It sounds like you’ll be needing two vehicles, one for you and one for Graham. A wheelchair accessible vehicle sounds much more practical, but boys will be boys!… It must be a relief that the school is stepping up now, I hope Little Man continues to want to go to school… Those first school trips away are a mixture of excitement and nerves and that’s just for the parents. Gregs never wanted to go, which in a way I was comfortable with as the schools here aren’t the same as in the UK and if he’d have got stressed they wouldn’t have had a clue what to do. As for Catherine, she loved them from the start, I used to drop her off and she wouldn’t even look back. I’m sure both your girls will have a fab time and come home safe, sound and full of stories (even some you’d much rather not hear)… I’ve heard that frozen shoulder can be both painful and long-lasting, so I hope that isn’t the case in your instance… What a pain in the bum (literally!) not being able to handle the stairs, I do hope it was a one-off and that you can manage them again now, mind you those Stena (?) stair lifts look like fun!… Your crochet creations sound lovely. I’m halfway through a pair of gloves but probably won’t do much crocheting until after the summer now. I have just finished a good book, I think it was ‘Bad Me, Good Me’ (I’m terrible with titles). Last night I started Gone Girl. I’m reading the paper version, but I do much prefer reading on my Kindle as I find the backlight on it makes reading easier.
Thank you for stopping by and linking up with #keepingitreal.
xx