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I can imagine that it does feel awkward to see your own story in print, but if it spreads awareness then it must be worth it. I hope good things come from this.
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It is really awkward seeing yourself in the paper….
When I won the cinema for the hospital where my girls had their heart surgery they ran a story in our local newspaper and I felt so nervous about it but they got it all spot on!
Your story deserves to be shared to make people more aware of Stiff Person Syndrome. The only reason I know about it is because of you x
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It is good you are raising awareness, sorry to hear about the headline I guess it sells the more dramatic X #mmbc
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I think it’s great that you are spreading awareness. I do hope that there is a cure one day. #MMBC
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