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  1. Louise (Little Hearts, Big Love)

    Raising awareness is such an important thing to do. Glad you had a few new people find your Facebook group. Being able to find other people that understand what you’re experiencing and find that online support makes a huge difference. The beauty of the Internet is that ability to bring together people from different places and different walks of life and to help them know they are not alone. #WotW

  2. Karen

    Love the video, very informative. Raising awareness about rare conditions is very important, and I think you are doing a great job. Facebook support groups can be very helpful as I’ve recently found out 🙂

  3. Cheryl Thompson

    It sounds like the awareness campaign has been successful if people are finding your facebook group. Worth all the time your group has put into it. Fingers crossed it reaches more people that could do with your support.

  4. Sarah Christie

    Well done on you video Anne its such a great way to share peoples stories and create awareness. And it’s so great that people have found support because of it. It just shows how amazing the power of social media is and how positive it can be x

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