Reader Interactions


  1. Amber

    Thank you for this aricle. I was diagnosed two days ago with SPS. I am curious about more info on the PERM. I was originally diagnosed with Fibromyalgia and was seeking a diagnosis for ME/CFS until going to a new dr who just diagnosed me with SPS.

  2. Braden Daniels

    Newly diagnosed after 2 years of testing. Don’t know which type. Diazepam is the only thing I’ve been given. Any information on the effectiveness of THC for pain. I stopped the opioids for fear of addiction as I continued to require more.

    • Anne Sweet

      Hi Braden. THC is supposed to be really good but I don’t like the effects. I’ve tried CBD oil without TCH which gives some help. I’ve also known people who have chosen to use THC and not had good results. I guess it depends on how your body reacts to it.

  3. Ruth Carroll

    I was diagnosed with SPS in 2017 after 2 years of falling with head injuries, and 7 different diagnosis.
    I found Dr. Scott Newsome at Johns Hopkins
    And he has continually worked with me to improve my quality of life. It is not easy! I am thankful for all the support I have!

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