Hello and welcome to the home of Word of the Week, a nice and simple weekly linky, with everyone welcome to pop by and share. You reflect back on the past week and sum it up in one word. Then share your word with us in a blog post, with as little or as much explanation as you like.
There are not too many rules with this linky, just remember to read at least another couple of posts in the link up after adding your link. Do try to stick to the theme of summing your week up. I will read and comment on all posts and tweet them out for you. I also have a Pinterest board devoted to Word of the Week and I will add posts to Mix (formerly Stumble.) Please add the badge below to your post so that others may find us and join in. If you comment or tweet then please use the hashtag #WotW
If you are unfamiliar with the Word of the Week linky then please feel free to ask any questions. New linkers are always welcome, we love to hear what you have been up to in the past week.
My Word of the Week
Options
This week Star had to go to a meeting at school to discuss her GCSE options. Parents were invited but she decided it would be too much trouble for me to attend so she went with her Dad. I’m not sure if she was genuinely worried it would be too much for me, or embarrassed of my being in a wheelchair. Either way, I know she didn’t mean to cause any distress so I didn’t make a big deal about it. We still had the chance to discuss everything in detail and now I’m just hoping she’ll get her choices.
We were running out of meal options, even a take out is undesirable to my fussy lot now. If I buy something new in the online shopping then no-one wants to try it, but everyone complains that they are bored of the meals we have. So, we went shopping! It took over two hours and the shopping trolley was overflowing. My bank account took a bashing but hopefully, we will enjoy our meal options for the next week or so.
On Monday I was at the hospital having treatment and was joined by two other patients with the same one in a million condition. We got one of the nurses talking to us and he gave us a really good run down on the options we have in the form of treatments. It was all very eye opening, and a little disheartening too.
Now it’s over to you, what word or phrase sums up your week this week.
Good luck to Star with getting her GCSE choices. How interesting that you got to meet a couple of other people with the same condition as you and hope it was helpful although sorry to hear it was a little disheartening too. Meal choices are something we struggle with at times too – hope your epic shopping trip has helped with that. Thanks for hosting #WotW
Fingers crossed for Star getting her choices. What a coincidence meeting those people it must have been for a reason I’m sure. Sorry to hear the treatment options were disheartening, I hope there’s better news soon for you. I also have a house full of fussy eaters, husband included it can be such a nightmare sometimes. Hope you have a nice bank holiday weekend x
Good luck to your daughter deciding which option is best for her. From reading your blog, it seems to me like she has a genuine concern for your well-being. It’s amazing that you met other people with the same 1-in-a-million condition as you. What a coincidence. I hope you can all encourage each other and be a support group for one another. Best wishes for the coming week!
Ah bless you Anne, it must be so hard managing some of these events. Hope Star feels she made the right decisions although I am sure there must be leeway to change. I hope it helped talking to fellow sufferers it must be so lonely suffering from a rare condition no one understands. And we get that here too when everyone gets fed up with meal options x
The options time is such a stressful time! I’ve hated it, the twice I’ve been through it. Hopefully she’ll get what she wants x
Eek! GCSE option nights at school are made out to be such a big deal but really they aren’t, especially when the child already knows what they are wanting to do. To be honest when we went with my teen it was just us going around all the teachers with them saying they wanted her to study that subject or didn’t. You didn’t miss out on much, I’m sure. Good luck to Star!
Good luck with the new meals. I feel in a bit of a rut with meal planning. I want to eat summer things like salad and BBQ food but the weather isn’t playing fair. If I cook a roast it’s boiling out and if I plan a salad it’s wet & grey! lol
Wow! Fancy meeting 2 other people with the same condition. So sorry the chat was disheartening x
Hope Star is able to take the options she wants. She sounds like a thoughtful person. What odds to be there at the same time as other people with your condition. Can only be a good thing to have an opportunity to compare notes and hear other options. I’m sorry it wasn’t all positive. I think you are a brave person to take everyone to the supermarket. We go through stages of either being stuck in a rut, or meal choices not suiting everyone. Seem to have it right at the moment, but it’s only a matter of time. Thanks for hosting.