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Reader Interactions


  1. Samantha Donnelly

    My Daughter suffers with chronic illness and when I hear someone else with a chronic illness my heart goes out to them. Not just because of the illness but everything else especially medical care when at A&E and the ignorance around it

  2. Kim Carberry

    I think you do amazingly well coping with your own disability and caring for your daughter who has and is going through so much. Massive hugs to you both. I hope Star is doing a bit better now. Hospitals can be frustrating places especially when we know there is something wrong with our children but they don’t quite see it yet. I know they try their best when they can though. I used to be the same, as soon as I would get into the consultants room my mind would go blank. I take notes now, especially when it comes to my girls.
    I am sure your girl will get to college eventually. She’s just taking a break, like gap year a bit early. x

  3. Jenny | Midwife and Life

    Wow, what a lot you have to deal with! I agree, A&E is difficult, it really is meant to be for urgent care only, so anything that can be dealt with in primary care gets shoved back. I’m a nurse working in primary care!

  4. Claire

    Thanks for sharing. You did so well caring for your daughter while in your own position, but you realise and understand even more how she needs you. I agree, it’s so important to bring notes into the doctor’s/hospital appointments. I also write notes straight away after the appointment so I remember what has been said. I think we all have to realise and understand that we are all on different paths. My son took a few years out and is back in college now. If he’d done it when he was under 19, he would have had more financial support but this path is right for him. I hope your daughter finds answers and improvement soon and that all works out okay with college (if they choose\) and school xxx

  5. Sheryl

    Thanks for joining in the October writing prompts. I’m so happy that you’re so enthusiastic about it, even though I haven’t held one in ages! Always good to catch up with you via these prompts 🙂 You are a hero of a mother. It’s been a bad year for many of us it seems 🙁 Sending lots of love!

  6. Jayne @ Sticky Mud and Belly Laughs

    I think you do an incredible job! Looking after your lovely family on top of your own daily struggles.
    I hope Star is feeling a little better and that you get some answers soon. I too make notes at consultations, it’s the best way to make sure everything sinks in.
    Sending you a massive hug, you are amazing. Xx

  7. Catherine Green

    I think that despite all your challenges, your blog post comes across as down-to-earth and upbeat so well done for keeping your chin up! My situation pales in comparison and I know I am so fortunate to have working legs and the ability to move about after illness. I also experienced the “checklist” in hospital and have been doing my own daily stats since coming home. When I showed my cardiologist the photos of my oximeter and BP readings he was very pleased to add the data to his notes, so I will keep doing it until my next appointment. Here’s hoping that things pick up soon for everyone.

  8. Carrie Kellenberger

    Thank you so much for sharing your story and for raising awareness for both yourself and your daughter. I wish you all the best with your blogging commitment this month. When I started blogging many years ago, I used to be a once a day blogger and now I’m lucky if I get one or two posts up per month. It’s a huge commitment and I admire you for taking it on! Take good care!

  9. Alison Hayes

    Thank you so much for sharing your story and raising awareness – I think it’s such an important thing so many of us do! Each of our stories is unique and yet there are themes that overlap! So glad you found blogtober as an additional activity, my posts are often way too long to think about creating one a day. I’m sorry to hear about your daughters struggles but glad that she has such a fierce and knowledegable advocate in you! Keep going forward and sharing your journey as it’s well worth the work involved!

    gentle hugs and keep thriving!

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