Eight months ago today my daughter woke with a stiff neck. It got worse, I took her to the GP. It didn’t get better so I took her to A&E, and now, eight months later things are still no better. At first she was treated with a neck collar and regular physio therapy. That didn’t…
hospital
My Angel Has Lost Her Halo
Yesterday, Star went into theatre at 9am and came out just half hour later minus her dreaded halo. Just in case you don’t know what a halo is; All the gritty details of our day can be found on my blog of Stars journey, Zebra Hooves, but here I just wanted to let you know…
Still Waiting For a Cuddle
Monday marks the tenth week of halo wearing for Star. Ten weeks without a proper cuddle, it’s not good for either of us. We have adapted so much that we barely notice the halo now, but I am getting so fed up, I just want her back to normal. She’s coping better than me, it…
Talking Point
Star had another hospital appointment today and thankfully it was not as distressing as the last. I’m keeping a new blog to track her journey, not just with her neck but with her hypermobility and autism too. You can find it at www.zebrahooves.co.uk We are now looking forward as the past week has gone quickly…
Extended Sentence
I started today with great expectations, it was Star’s fifth hospital appointment since her discharge and they told us that the halo was to be fitted for six weeks. Last weeks appointment had been cancelled by the hospital. I’m not sure why, they just said come in two weeks the week before. I was confused…